Assigned to HHS FOR COMMITTEE ARIZONA STATE SENATE Fifty-Sixth Legislature, First Regular Session FACT SHEET FOR S.B. 1032 developmental disabilities; spina bifida. Purpose Expands the definition of developmental disability to include a severe, chronic disability that is attributable to spina bifida for the purpose of receiving services through the Department of Economic Security (DES) Division of Developmental Disabilities (DDD). Background A developmental disability is either a strongly demonstrated potential that a child who is under six years of age has or will develop a developmental disability, as determined by a prescribed test or by other appropriate tests, or a severe, chronic disability that: 1) is attributable to a cognitive disability, cerebral palsy, epilepsy, Down syndrome or autism; 2) is manifested before the age of 18; 3) is likely to continue indefinitely; 4) reflects the need for a combination and sequence of individually planned or coordinated special, interdisciplinary or generic care, treatment or other services that are of lifelong or extended duration; and 5) results in substantial functional limitations in three or more areas of major life activity. Areas of major life activity include: 1) self-care; 2) receptive and expressive language; 3) learning; 4) mobility; 5) self-direction; 6) capacity for independent living; and 7) economic self-sufficiency (A.R.S. § 36-551). The DES Director is responsible for developing and annually revising a statewide plan and initiating statewide programs and services for persons with developmental disabilities. Services include child, adult, residential and resource services. An Arizona resident with a developmental disability, supported by medical and psychological documentation, is eligible to apply for developmental disabilities programs, services and facilities operated, licensed and supervised by DES (A.R.S. §§ 36-554 and 36-559). DDD is the division of DES that empowers individuals with developmental disabilities to lead self-directed, healthy and meaningful lives. DDD provides supports and services for eligible Arizonans diagnosed with one of the following developmental disabilities: 1) autism; 2) cerebral palsy; 3) epilepsy; 4) cognitive or intellectual disability; 5) Down syndrome; or 6) are under the age of six and at risk of having a developmental disability. DDD serves more than 40,000 people with developmental disabilities and their families throughout Arizona each year (DDD). If there is a cost associated with expanding DDD services to provide for individuals with spina bifida, there may be a fiscal impact to the state General Fund associated with this legislation. Provisions 1. Expands the definition of developmental disability to include a severe, chronic disability that is attributable to spina bifida. FACT SHEET S.B. 1032 Page 2 2. Defines spina bifida as a type of neural tube defect that occurs when a person's neural tube fails to develop or close properly before birth and of which the severity depends on many factors, including the size of the spinal opening and the location on the spine. 3. Makes conforming changes. 4. Becomes effective on the general effective date. Prepared by Senate Research January 12, 2023 MM/MC/slp