Amended IN Assembly March 28, 2017 CALIFORNIA LEGISLATURE 20172018 REGULAR SESSION Assembly Bill No. 1488Introduced by Assembly Member ThurmondFebruary 17, 2017 An act to amend Section 125130 of add Part 8 (commencing with Section 106100) to Division 103 of the Health and Safety Code, relating to health care. LEGISLATIVE COUNSEL'S DIGESTAB 1488, as amended, Thurmond. Health care: genetic diseases.Existing law requires the State Department of Public Health to create programs for the monitoring and treatment of various diseases, including cancer and cardiovascular disease.This bill would require the department to establish up to 4 Sickle Cell Disease Centers, that are responsible for coordinating care of people with sickle cell disease throughout California. The bill would require at least 2 of the centers to be located in southern California, one center to be located in central California, and one center to be located in northern California.Existing law requires the Director of Health Care Services to establish and administer a program for the medical care of persons with specified genetic conditions. The program is also required to provide access for these persons to social support services.This bill would make a technical, nonsubstantive change to these provisions.Digest Key Vote: MAJORITY Appropriation: NO Fiscal Committee: NOYES Local Program: NO Bill TextThe people of the State of California do enact as follows:SECTION 1. Part 8 (commencing with Section 106100) is added to Division 103 of the Health and Safety Code, to read:PART 8. Sickle Cell Disease Centers106100. The department shall establish up to four Sickle Cell Disease Centers, that are responsible for coordinating care of people with sickle cell disease throughout California. At least two centers shall be located in southern California, one center shall be located in central California, and one center shall be located in northern California. The centers shall establish best practices for treatment of people with sickle cell disease and shall advise other health facilities on those practices and other issues facing patients with sickle cell disease.SECTION 1.Section 125130 of the Health and Safety Code is amended to read:125130.(a)The Director of Health Care Services shall establish and administer a program for the medical care of persons with genetically handicapping conditions, including cystic fibrosis, hemophilia, sickle cell disease, Huntingtons disease, Friedreichs Ataxia, Josephs disease, Von Hippel-Landau syndrome, and the following hereditary metabolic disorders: phenylketonuria, homocystinuria, branched chain amino acidurias, disorders of propionate and methylmalonate metabolism, urea cycle disorders, hereditary orotic aciduria, Wilsons Disease, galactosemia, disorders of lactate and pyruvate metabolism, tyrosinemia, hyperornithinemia, and other genetic organic acidemias that require specialized treatment or service available from only a limited number of program-approved sources.(b)The program shall also provide access to social support services, that may help ameliorate the physical, psychological, and economic problems attendant to genetically handicapping conditions, in order that a person with one of these conditions may function at an optimal level commensurate with the degree of impairment.(c)The medical and social support services may be obtained through physicians and surgeons Genetically Handicapped Persons Program specialized centers, and other providers that qualify pursuant to the regulations of the department to provide the services. Medical care, as used in this section, is limited to noncustodial medical and support services.(d)The director shall adopt regulations that are necessary for the implementation of this article.
Amended IN Assembly March 28, 2017 CALIFORNIA LEGISLATURE 20172018 REGULAR SESSION Assembly Bill No. 1488Introduced by Assembly Member ThurmondFebruary 17, 2017 An act to amend Section 125130 of add Part 8 (commencing with Section 106100) to Division 103 of the Health and Safety Code, relating to health care. LEGISLATIVE COUNSEL'S DIGESTAB 1488, as amended, Thurmond. Health care: genetic diseases.Existing law requires the State Department of Public Health to create programs for the monitoring and treatment of various diseases, including cancer and cardiovascular disease.This bill would require the department to establish up to 4 Sickle Cell Disease Centers, that are responsible for coordinating care of people with sickle cell disease throughout California. The bill would require at least 2 of the centers to be located in southern California, one center to be located in central California, and one center to be located in northern California.Existing law requires the Director of Health Care Services to establish and administer a program for the medical care of persons with specified genetic conditions. The program is also required to provide access for these persons to social support services.This bill would make a technical, nonsubstantive change to these provisions.Digest Key Vote: MAJORITY Appropriation: NO Fiscal Committee: NOYES Local Program: NO
Amended IN Assembly March 28, 2017
Amended IN Assembly March 28, 2017
CALIFORNIA LEGISLATURE 20172018 REGULAR SESSION
Assembly Bill No. 1488
Introduced by Assembly Member ThurmondFebruary 17, 2017
Introduced by Assembly Member Thurmond
February 17, 2017
An act to amend Section 125130 of add Part 8 (commencing with Section 106100) to Division 103 of the Health and Safety Code, relating to health care.
LEGISLATIVE COUNSEL'S DIGEST
## LEGISLATIVE COUNSEL'S DIGEST
AB 1488, as amended, Thurmond. Health care: genetic diseases.
Existing law requires the State Department of Public Health to create programs for the monitoring and treatment of various diseases, including cancer and cardiovascular disease.This bill would require the department to establish up to 4 Sickle Cell Disease Centers, that are responsible for coordinating care of people with sickle cell disease throughout California. The bill would require at least 2 of the centers to be located in southern California, one center to be located in central California, and one center to be located in northern California.Existing law requires the Director of Health Care Services to establish and administer a program for the medical care of persons with specified genetic conditions. The program is also required to provide access for these persons to social support services.This bill would make a technical, nonsubstantive change to these provisions.
Existing law requires the State Department of Public Health to create programs for the monitoring and treatment of various diseases, including cancer and cardiovascular disease.
This bill would require the department to establish up to 4 Sickle Cell Disease Centers, that are responsible for coordinating care of people with sickle cell disease throughout California. The bill would require at least 2 of the centers to be located in southern California, one center to be located in central California, and one center to be located in northern California.
Existing law requires the Director of Health Care Services to establish and administer a program for the medical care of persons with specified genetic conditions. The program is also required to provide access for these persons to social support services.
This bill would make a technical, nonsubstantive change to these provisions.
## Digest Key
## Bill Text
The people of the State of California do enact as follows:SECTION 1. Part 8 (commencing with Section 106100) is added to Division 103 of the Health and Safety Code, to read:PART 8. Sickle Cell Disease Centers106100. The department shall establish up to four Sickle Cell Disease Centers, that are responsible for coordinating care of people with sickle cell disease throughout California. At least two centers shall be located in southern California, one center shall be located in central California, and one center shall be located in northern California. The centers shall establish best practices for treatment of people with sickle cell disease and shall advise other health facilities on those practices and other issues facing patients with sickle cell disease.SECTION 1.Section 125130 of the Health and Safety Code is amended to read:125130.(a)The Director of Health Care Services shall establish and administer a program for the medical care of persons with genetically handicapping conditions, including cystic fibrosis, hemophilia, sickle cell disease, Huntingtons disease, Friedreichs Ataxia, Josephs disease, Von Hippel-Landau syndrome, and the following hereditary metabolic disorders: phenylketonuria, homocystinuria, branched chain amino acidurias, disorders of propionate and methylmalonate metabolism, urea cycle disorders, hereditary orotic aciduria, Wilsons Disease, galactosemia, disorders of lactate and pyruvate metabolism, tyrosinemia, hyperornithinemia, and other genetic organic acidemias that require specialized treatment or service available from only a limited number of program-approved sources.(b)The program shall also provide access to social support services, that may help ameliorate the physical, psychological, and economic problems attendant to genetically handicapping conditions, in order that a person with one of these conditions may function at an optimal level commensurate with the degree of impairment.(c)The medical and social support services may be obtained through physicians and surgeons Genetically Handicapped Persons Program specialized centers, and other providers that qualify pursuant to the regulations of the department to provide the services. Medical care, as used in this section, is limited to noncustodial medical and support services.(d)The director shall adopt regulations that are necessary for the implementation of this article.
The people of the State of California do enact as follows:
## The people of the State of California do enact as follows:
SECTION 1. Part 8 (commencing with Section 106100) is added to Division 103 of the Health and Safety Code, to read:PART 8. Sickle Cell Disease Centers106100. The department shall establish up to four Sickle Cell Disease Centers, that are responsible for coordinating care of people with sickle cell disease throughout California. At least two centers shall be located in southern California, one center shall be located in central California, and one center shall be located in northern California. The centers shall establish best practices for treatment of people with sickle cell disease and shall advise other health facilities on those practices and other issues facing patients with sickle cell disease.
SECTION 1. Part 8 (commencing with Section 106100) is added to Division 103 of the Health and Safety Code, to read:
### SECTION 1.
PART 8. Sickle Cell Disease Centers106100. The department shall establish up to four Sickle Cell Disease Centers, that are responsible for coordinating care of people with sickle cell disease throughout California. At least two centers shall be located in southern California, one center shall be located in central California, and one center shall be located in northern California. The centers shall establish best practices for treatment of people with sickle cell disease and shall advise other health facilities on those practices and other issues facing patients with sickle cell disease.
PART 8. Sickle Cell Disease Centers106100. The department shall establish up to four Sickle Cell Disease Centers, that are responsible for coordinating care of people with sickle cell disease throughout California. At least two centers shall be located in southern California, one center shall be located in central California, and one center shall be located in northern California. The centers shall establish best practices for treatment of people with sickle cell disease and shall advise other health facilities on those practices and other issues facing patients with sickle cell disease.
PART 8. Sickle Cell Disease Centers
PART 8. Sickle Cell Disease Centers
106100. The department shall establish up to four Sickle Cell Disease Centers, that are responsible for coordinating care of people with sickle cell disease throughout California. At least two centers shall be located in southern California, one center shall be located in central California, and one center shall be located in northern California. The centers shall establish best practices for treatment of people with sickle cell disease and shall advise other health facilities on those practices and other issues facing patients with sickle cell disease.
106100. The department shall establish up to four Sickle Cell Disease Centers, that are responsible for coordinating care of people with sickle cell disease throughout California. At least two centers shall be located in southern California, one center shall be located in central California, and one center shall be located in northern California. The centers shall establish best practices for treatment of people with sickle cell disease and shall advise other health facilities on those practices and other issues facing patients with sickle cell disease.
(a)The Director of Health Care Services shall establish and administer a program for the medical care of persons with genetically handicapping conditions, including cystic fibrosis, hemophilia, sickle cell disease, Huntingtons disease, Friedreichs Ataxia, Josephs disease, Von Hippel-Landau syndrome, and the following hereditary metabolic disorders: phenylketonuria, homocystinuria, branched chain amino acidurias, disorders of propionate and methylmalonate metabolism, urea cycle disorders, hereditary orotic aciduria, Wilsons Disease, galactosemia, disorders of lactate and pyruvate metabolism, tyrosinemia, hyperornithinemia, and other genetic organic acidemias that require specialized treatment or service available from only a limited number of program-approved sources.
(b)The program shall also provide access to social support services, that may help ameliorate the physical, psychological, and economic problems attendant to genetically handicapping conditions, in order that a person with one of these conditions may function at an optimal level commensurate with the degree of impairment.
(c)The medical and social support services may be obtained through physicians and surgeons Genetically Handicapped Persons Program specialized centers, and other providers that qualify pursuant to the regulations of the department to provide the services. Medical care, as used in this section, is limited to noncustodial medical and support services.
(d)The director shall adopt regulations that are necessary for the implementation of this article.