Enrolled May 14, 2019 Passed IN Senate May 13, 2019 CALIFORNIA LEGISLATURE 20192020 REGULAR SESSION Senate Resolution No. 28Introduced by Senator Wilk(Coauthors: Senators Bates, Beall, Chang, Dodd, Nielsen, Portantino, and Wieckowski)March 27, 2019 Relative to Prader-Willi Syndrome Awareness Month. LEGISLATIVE COUNSEL'S DIGESTSR 28, Wilk. Digest KeyBill TextWHEREAS, Prader-Willi syndrome is a complex genetic disorder that occurs in approximately one out of every 15,000 births; andWHEREAS, Prader-Willi syndrome is the most commonly known genetic cause of life-threatening obesity; and WHEREAS, Prader-Willi syndrome affects males and females with equal frequency and all races and ethnicities; and WHEREAS, Prader-Willi syndrome causes an extreme and insatiable appetite, often resulting in morbid obesity; and WHEREAS, Morbid obesity is the major cause of death for individuals with Prader-Willi syndrome; and WHEREAS, Prader-Willi syndrome causes cognitive and learning disabilities and behavioral difficulties, including obsessive-compulsive disorder and difficulty controlling emotions; and WHEREAS, The hunger, metabolic, and behavioral characteristics of Prader-Willi syndrome force affected individuals to require constant and lifelong supervision in a controlled environment; and WHEREAS, Studies have shown that individuals with Prader-Willi syndrome have a high morbidity and mortality rate; and WHEREAS, There is no known cure for Prader-Willi syndrome; and WHEREAS, Early diagnosis of Prader-Willi syndrome allows families to access treatment, intervention services, and support from health professionals, advocacy organizations, and other families who are dealing with the syndrome; and WHEREAS, Recently discovered treatments, including the use of human growth hormone, are improving the quality of life for individuals with Prader-Willi syndrome and offer new hope to families, but many difficult symptoms associated with the syndrome remain untreated; and WHEREAS, Increased research into Prader-Willi syndrome may lead to a better understanding of the syndrome, more effective treatments, and an eventual cure for the syndrome and is likely to lead to a better understanding of common public health concerns, including childhood obesity and mental health; andWHEREAS, Advocacy organizations have designated May as Prader-Willi Syndrome Awareness Month; now, therefore, be itResolved by the Senate of the State of California, That the Senate supports raising awareness and educating the public about Prader-Willi syndrome and applauds the efforts of advocates and organizations that encourage awareness, promote research, and provide education, support, and hope to those impacted by Prader-Willi syndrome; and be it further Resolved, That the Senate recognizes the commitment of parents, families, researchers, health professionals, and others dedicated to finding an effective treatment and eventual cure for Prader-Willi syndrome and hereby proclaims the month of May as Prader-Willi Syndrome Awareness Month; and be it furtherResolved, That the Secretary of the Senate transmit copies of this resolution to the author for appropriate distribution.
Enrolled May 14, 2019 Passed IN Senate May 13, 2019 CALIFORNIA LEGISLATURE 20192020 REGULAR SESSION Senate Resolution No. 28Introduced by Senator Wilk(Coauthors: Senators Bates, Beall, Chang, Dodd, Nielsen, Portantino, and Wieckowski)March 27, 2019 Relative to Prader-Willi Syndrome Awareness Month. LEGISLATIVE COUNSEL'S DIGESTSR 28, Wilk. Digest Key
Enrolled May 14, 2019 Passed IN Senate May 13, 2019
Enrolled May 14, 2019
Passed IN Senate May 13, 2019
CALIFORNIA LEGISLATURE 20192020 REGULAR SESSION
Senate Resolution No. 28
Introduced by Senator Wilk(Coauthors: Senators Bates, Beall, Chang, Dodd, Nielsen, Portantino, and Wieckowski)March 27, 2019
Introduced by Senator Wilk(Coauthors: Senators Bates, Beall, Chang, Dodd, Nielsen, Portantino, and Wieckowski)
March 27, 2019
Relative to Prader-Willi Syndrome Awareness Month.
LEGISLATIVE COUNSEL'S DIGEST
## LEGISLATIVE COUNSEL'S DIGEST
SR 28, Wilk.
## Digest Key
## Bill Text
WHEREAS, Prader-Willi syndrome is a complex genetic disorder that occurs in approximately one out of every 15,000 births; and
WHEREAS, Prader-Willi syndrome is the most commonly known genetic cause of life-threatening obesity; and
WHEREAS, Prader-Willi syndrome affects males and females with equal frequency and all races and ethnicities; and
WHEREAS, Prader-Willi syndrome causes an extreme and insatiable appetite, often resulting in morbid obesity; and
WHEREAS, Morbid obesity is the major cause of death for individuals with Prader-Willi syndrome; and
WHEREAS, Prader-Willi syndrome causes cognitive and learning disabilities and behavioral difficulties, including obsessive-compulsive disorder and difficulty controlling emotions; and
WHEREAS, The hunger, metabolic, and behavioral characteristics of Prader-Willi syndrome force affected individuals to require constant and lifelong supervision in a controlled environment; and
WHEREAS, Studies have shown that individuals with Prader-Willi syndrome have a high morbidity and mortality rate; and
WHEREAS, There is no known cure for Prader-Willi syndrome; and
WHEREAS, Early diagnosis of Prader-Willi syndrome allows families to access treatment, intervention services, and support from health professionals, advocacy organizations, and other families who are dealing with the syndrome; and
WHEREAS, Recently discovered treatments, including the use of human growth hormone, are improving the quality of life for individuals with Prader-Willi syndrome and offer new hope to families, but many difficult symptoms associated with the syndrome remain untreated; and
WHEREAS, Increased research into Prader-Willi syndrome may lead to a better understanding of the syndrome, more effective treatments, and an eventual cure for the syndrome and is likely to lead to a better understanding of common public health concerns, including childhood obesity and mental health; and
WHEREAS, Advocacy organizations have designated May as Prader-Willi Syndrome Awareness Month; now, therefore, be it
Resolved by the Senate of the State of California, That the Senate supports raising awareness and educating the public about Prader-Willi syndrome and applauds the efforts of advocates and organizations that encourage awareness, promote research, and provide education, support, and hope to those impacted by Prader-Willi syndrome; and be it further
Resolved, That the Senate recognizes the commitment of parents, families, researchers, health professionals, and others dedicated to finding an effective treatment and eventual cure for Prader-Willi syndrome and hereby proclaims the month of May as Prader-Willi Syndrome Awareness Month; and be it further
Resolved, That the Secretary of the Senate transmit copies of this resolution to the author for appropriate distribution.