Second Regular Session
Seventy-fourth General Assembly
STATE OF COLORADO
REENGROSSED
This Version Includes All Amendments
Adopted in the House of Introduction
LLS NO. 24-0065.02 Brita Darling x2241
SENATE BILL 24-042
Senate Committees House Committees
Health & Human Services
Appropriations
A BILL FOR AN ACT
C
ONCERNING THE CREATION OF THE ARIE P. TAYLOR SICKLE CELL101
DISEASE OUTREACH PROGRAM TO PROVIDE SUPPORT TO102
INDIVIDUALS LIVING WITH SICKLE CELL DISEASE , AND, IN
103
CONNECTION THEREWITH , MAKING AN APPROPRIATION .104
Bill Summary
(Note: This summary applies to this bill as introduced and does
not reflect any amendments that may be subsequently adopted. If this bill
passes third reading in the house of introduction, a bill summary that
applies to the reengrossed version of this bill will be available at
http://leg.colorado.gov
.)
The bill creates the Arie P. Taylor sickle cell disease outreach
program (outreach program) in the department of public health and
environment (department). To implement the outreach program, the bill
SENATE
3rd Reading Unamended
April 17, 2024
SENATE
Amended 2nd Reading
April 16, 2024
SENATE SPONSORSHIP
Buckner and Fields, Coleman, Exum, Bridges, Cutter, Ginal, Gonzales, Hinrichsen,
Kolker, Marchman, Mullica, Priola, Roberts, Rodriguez, Winter F., Zenzinger
HOUSE SPONSORSHIP
English and Bacon, Herod
Shading denotes HOUSE amendment. Double underlining denotes SENATE amendment.
Capital letters or bold & italic numbers indicate new material to be added to existing law.
Dashes through the words or numbers indicate deletions from existing law. requires the department, subject to available appropriations, to contract
with one or more community-based nonprofit organizations (outreach
organizations) to provide outreach and support services in the community
to individuals living with sickle cell disease and their families.
The department shall contract with a third-party entity
(administrator) to solicit applicants and administer the outreach program.
On or before January 1, 2025, the department shall select one or more
outreach organizations to implement the outreach program and shall give
priority to community organizations with experience in providing services
and support to the sickle cell community and that meet other criteria in
the bill.
The outreach program may include informal counseling and health
guidance, direction and support to individuals and their families in
locating and accessing services in the community, outreach concerning
activities and programs available to individuals and families living with
sickle cell disease, peer support and referrals, advocacy regarding the
interests of the sickle cell disease community, referrals for screening, and
other services and support identified by the department.
The department shall approve the services provided through a
contract and may consult with the university of Colorado school of
medicine's sickle-cell anemia treatment and research center to identify
needed services and supports.
Prior to the expiration of a contract, the outreach organization, in
conjunction with the administrator, shall prepare and submit a written
report to the department describing the impact of the outreach program
provided under the contract, and the department shall provide the report
to certain committees of the general assembly.
The bill repeals the outreach program after 5 years.
Be it enacted by the General Assembly of the State of Colorado:1
SECTION 1. In Colorado Revised Statutes, add 25-1.5-121 as2
follows:3
25-1.5-121. Arie P. Taylor sickle cell disease outreach program4
- contracts - administration - report - legislative declaration -5
definitions - repeal. (1) T
HE GENERAL ASSEMBLY FINDS AND DECLARES6
THAT:7
(a) S
ICKLE-CELL ANEMIA IS A GENETIC DISORDER OF THE8
HEMOGLOBIN IN RED BLOOD CELLS THAT CAUSES RED BLOOD CELLS THAT9
042-2- CARRY OXYGEN TO STICK TOGETHER AFTER THE OXYGEN IS RELEASED ,1
CAUSING BLOCKAGES IN THE SMALL BLOOD VESSELS ;2
(b) T
HE MAIN SYMPTOMS OF SICKLE -CELL ANEMIA ARE ANEMIA3
AND EPISODES OF SEVERE PAIN CAUSED BY THE BLOCKAGES IN THE SMALL4
BLOOD VESSELS; OVER TIME, PEOPLE WITH SICKLE-CELL ANEMIA ARE5
INCREASINGLY AT RISK OF OTHER HEALTH COMPLICATIONS , AND THE6
DISORDER DAMAGES THEIR ORGANS ;7
(c) A
CCORDING TO THE 2022-23 "COLORADO SICKLE CELL STATE8
A
CTION PLAN" PREPARED BY THE COLORADO SICKLE CELL TREATMENT9
AND RESEARCH CENTER AT THE UNIVERSITY OF COLORADO SCHOOL OF10
MEDICINE, APPROXIMATELY FOUR HUNDRED FIFTY PEOPLE IN COLORADO11
ARE LIVING WITH SICKLE-CELL ANEMIA, ALTHOUGH THIS NUMBER LIKELY12
UNDERCOUNTS THE POPULATION LIVING WITH SICKLE CELL DISEASE ;13
(d) D
UE TO THE EFFECTS OF SICKLE CELL DISEASE , INCLUDING14
EPISODES OF DEBILITATING PAIN , MANY INDIVIDUALS LIVING WITH15
SICKLE-CELL ANEMIA AND THEIR FAMILIES NEED SERVICES AND SUPPORT16
IN THE COMMUNITY TO MANAGE THEIR HEALTH CONDITION AND DAILY17
LIVES;18
(e) A
RIE PARKS TAYLOR WAS THE FIRST AFRICAN AMERICAN19
WOMAN TO SERVE AS A WOMEN IN THE AIR FORCE, "WAF", CLASSROOM20
INSTRUCTOR AND OFFICER; TO BE ELECTED TO SERVE IN THE HOUSE OF21
REPRESENTATIVES OF THE COLORADO GENERAL ASSEMBLY ; TO SERVE AS22
THE CLERK AND RECORDER FOR THE CITY AND COUNTY OF DENVER OR23
ANY COUNTY IN COLORADO; AND TO SERVE AS THE CHIEF CLERK OF THE24
D
ENVER ELECTION COMMISSION ;25
(f) P
ASSIONATE ABOUT THE CONCERNS OF INDIVIDUALS LIVING26
WITH SICKLE-CELL ANEMIA, DURING HER TIME IN THE GENERAL ASSEMBLY27
042
-3- REPRESENTATIVE TAYLOR SPONSORED LEGISLATION THAT CREATED THE1
SICKLE-CELL ANEMIA TREATMENT AND RESEARCH CENTER AT THE2
UNIVERSITY OF COLORADO SCHOOL OF MEDICINE , WHICH PROVIDES3
SUPPORT AND TREATMENT FOR INDIVIDUALS WITH SICKLE CELL DISEASE4
AND CONDUCTS RESEARCH RELATING TO SICKLE CELL DISEASE ; AND5
(g) C
REATING AN OUTREACH PROGRAM BY PARTNERING WITH ONE6
OR MORE COMMUNITY -BASED NONPROFIT ORGANIZATIONS TO ENHANCE7
SERVICES AND SUPPORT IN THE COMMUNITY FOR INDIVI DUALS WITH SICKLE8
CELL DISEASE AND THEIR FAMILIES WILL HELP ENSURE A BETTER QUALITY9
OF LIFE FOR THESE COLORADANS.10
(2) A
S USED IN THIS SECTION, UNLESS THE CONTEXT OTHERWISE11
REQUIRES, "OUTREACH PROGRAM " MEANS THE ARIE P. TAYLOR SICKLE
12
CELL DISEASE OUTREACH PROGRAM CREATED IN SUBSECTION (3) OF THIS13
SECTION.14
(3) THERE IS CREATED IN THE DEPARTMENT THE ARIE P.15
T
AYLOR SICKLE CELL DISEASE OUTREACH PROGRAM . THE PURPOSE OF THE16
OUTREACH PROGRAM IS TO PROVIDE SERVICES AND SUPPORT IN THE17
COMMUNITY TO INDIVIDUALS LIVING WITH SICKLE CELL DISEASE AND18
THEIR FAMILIES.19
20
(4) (a) T
HE DEPARTMENT
SHALL SOLICIT APPLICATIONS FROM21
COMMUNITY-BASED NONPROFIT ORGANIZATIONS THAT ARE CAPABLE OF22
IMPLEMENTING THE OUTREACH PROGRAM . 23
(b) (I) O
N OR BEFORE
JANUARY 1, 2025, THE DEPARTMENT SHALL24
CONTRACT WITH ONE OR MORE COMMUNITY -BASED NONPROFIT25
ORGANIZATIONS TO PROVIDE COMMUNITY -BASED SERVICES AND26
SUPPORT TO INDIVIDUALS LIVING WITH SICKLE CELL DISEASE AND THEIR27
042
-4- FAMILIES.1
(II) T
HE GENERAL ASSEMBLY SHALL APPROPRIATE TWO HUNDRED
2
THOUSAND DOLLARS FOR THE OUTREACH PROGRAM , WHICH AMOUNT3
SHALL INCLUDE ADMINISTRATIVE COSTS NOT TO EXCEED EIGHT PERCENT .4
(c) T
HE DEPARTMENT SHALL DETERMINE THE INITIAL TERM OF A5
CONTRACT, NOT TO EXCEED TWO YEARS , AND SHALL APPROVE THE6
SERVICES AND SUPPORT TO BE INCLUDED IN A CONTRACT .7
(d) I
N AWARDING A CONTRACT , THE DEPARTMENT SHALL GIVE8
PRIORITY TO A COMMUNITY-BASED NONPROFIT ORGANIZATION THAT :9
(I) H
AS A MINIMUM OF TEN YEARS ' EXPERIENCE IN PROVIDING10
SERVICES AND SUPPORT IN COLORADO TO INDIVIDUALS LIVING WITH11
SICKLE CELL DISEASE AND THEIR FAMILIES, SPECIFICALLY IN THE DENVER12
METROPOLITAN AREA OR COLORADO SPRINGS, WHICH AREAS OF THE13
STATE HAVE THE HIGHEST NUMBER OF INDIVIDUALS LIVING WITH SICKLE14
CELL DISEASE IN COLORADO;15
(II) H
AS EXPERIENCE PROVIDING THE SERVICES AND SUPPORT16
DESCRIBED IN SUBSECTION (5)(a) OF THIS SECTION; AND17
(III) I
S ENGAGED IN FUNDRAISING FOR AND RAISING AWARENESS18
OF THE NEEDS OF INDIVIDUALS LIVING WITH SICKLE CELL DISEASE AND19
THEIR FAMILIES AND MAINTAINS A NETWORK OF PERSONS ABLE TO20
PROVIDE PEER ASSISTANCE AND RESOURCES TO THOSE INDIVIDUALS .21
(5) (a) D
EPENDING UPON
THE NEEDS TO BE ADDRESSED22
THROUGH A CONTRACT, THE COMMUNITY-BASED SERVICES AND SUPPORT23
PROVIDED THROUGH THE OUTREACH PROGRAM MAY INCLUDE THE24
FOLLOWING SERVICES AND SUPPORT PROVIDED BY A COMMUNITY -BASED25
NONPROFIT ORGANIZATION OR BY COMMUNITY HEALTH WORKERS OR26
SOCIAL WORKERS EMPLOYED BY THE COMMUNITY -BASED NONPROFIT27
042
-5- ORGANIZATION:1
(I) C
ULTURALLY APPROPRIATE HEALTH EDUCATION AND2
INFORMATION CONCERNING SICKLE CELL DISEASE AND LIVING WITH SICKLE3
CELL DISEASE;4
(II) I
NFORMAL COUNSELING AND GUIDANCE ON HEALTH5
BEHAVIORS;6
(III) D
IRECTION AND SUPPORT TO INDIVIDUALS AND THEIR7
FAMILIES IN LOCATING AND ACCESSING SERVICES IN THE COMMUNITY TO8
ADDRESS THEIR NEEDS, INCLUDING NONMEDICAL NEEDS SUCH AS HOUSING ,9
FOOD, EDUCATION, TRANSPORTATION, EMPLOYMENT, LEGAL SERVICES,10
AND OTHER SUPPORT;11
(IV) O
UTREACH TO THE SICKLE CELL DISEASE COMMUNITY12
CONCERNING ACTIVITIES AND PROGRAMS AVAILABLE TO INDIVIDUALS13
LIVING WITH THE EFFECTS OF SICKLE CELL DISEASE AND THEIR FAMILIES ;14
(V) P
EER SUPPORT SERVICES AND REFERRALS FOR INDIVIDUALS15
AND FAMILIES LIVING WITH SICKLE CELL DISEASE IN THE LOCAL16
COMMUNITY;17
(VI) A
DVOCACY REGARDING THE INTERESTS OF THE SICKLE CELL18
DISEASE COMMUNITY THROUGH PARTNERSHIPS WITH THE GENERAL19
PUBLIC, STATE AND LOCAL GOVERNMENT ENTITIES , HEALTH-CARE20
PROVIDERS, AND OTHER COMMUNITY -BASED ORGANIZATIONS;21
(VII) R
EFERRALS FOR SICKLE-CELL ANEMIA SCREENING; AND22
(VIII) A
NY OTHER SERVICES AND SUPPORT AS DETERMINED BY THE23
DEPARTMENT.24
(b) I
N DETERMINING THE SERVICES AND SUPPORT INCLUDED IN A25
CONTRACT, THE DEPARTMENT MAY CONSULT WITH THE SICKLE -CELL26
ANEMIA TREATMENT AND RESEARCH CENTER , CREATED IN SECTION27
042
-6- 23-21-203, TO IDENTIFY THE COMMUNITY-BASED SERVICES AND SUPPORT1
THAT IS LIKELY TO HAVE THE GREATEST IMPACT ON THE INDIVIDUALS AND2
FAMILIES SERVED THROUGH THE OUTREACH PROGRAM GIVEN THE AMOUNT3
AND DURATION OF THE CONTRACT .4
(6) (a) P
RIOR TO THE EXPIRATION OF A CONTRACT , A5
COMMUNITY-BASED NONPROFIT ORGANIZATION IMPLEMENTING THE6
OUTREACH PROGRAM SHALL PREPARE AND SUBMIT
A WRITTEN REPORT TO7
THE DEPARTMENT DESCRIBING :8
(I) T
HE TYPE AND AMOUNT OF SERVICES AND SUPPORT PROVIDED9
TO THE COMMUNITY PURSUANT TO THE OUTREACH PROGRAM ;10
(II) T
HE NUMBER OF INDIVIDUALS AND FAMILIES IMPACTED11
THROUGH THE SERVICES AND SUPPORT ;12
(III) T
HE CHARACTERISTICS OF THE INDIVIDUALS RECEIVING13
SERVICES AND SUPPORT, INCLUDING WHETHER THE SERVICES OR SUPPORT14
WAS PROVIDED TO ADULTS OR CHILDREN WITH SICKLE CELL DISEASE OR15
THEIR FAMILY MEMBERS , BUT EXCLUDING PERSONALLY IDENTIFYING16
INFORMATION REGARDING THE INDIVIDUALS ; AND17
(IV) T
HE LOCATION WHERE THE SERVICES AND SUPPORT WAS18
PROVIDED.19
(b) T
HE DEPARTMENT SHALL PROVIDE THE REPORT TO THE HOUSE20
OF REPRESENTATIVES
HEALTH AND HUMAN SERVICES COMMITTEE AND21
THE SENATE HEALTH AND HUMAN SERVICES COMMITTEE , OR THEIR22
SUCCESSOR COMMITTEES . THE DEPARTMENT MAY INCLUDE WITH THE23
REPORT INFORMATION KNOWN TO THE DEPARTMENT CONCERNING THE24
OUTCOMES OF THE SERVICES AND SUPPORT PROVIDED , AS WELL AS OTHER25
RELEVANT INFORMATION CONCERNING THE IMPACT OF THE OUTREACH26
PROGRAM ON INDIVIDUALS LIVING WITH SICKLE CELL DISEASE AND THEIR27
042
-7- FAMILIES.1
(7) T
HIS SECTION IS REPEALED, EFFECTIVE JULY 1, 2030.2
SECTION 2. Appropriation. For the 2024-25 state fiscal year,
3
$200,000 is appropriated to the department of public health and4
environment for use by the office of health equity and environmental5
justice. This appropriation is from the general fund and is based on an6
assumption that the office will require an additional 0.1 FTE. To7
implement this act, the office may use this appropriation for the Arie P.8
Taylor sickle cell disease outreach program.9
SECTION 3. Safety clause. The general assembly finds,10
determines, and declares that this act is necessary for the immediate11
preservation of the public peace, health, or safety or for appropriations for12
the support and maintenance of the departments of the state and state13
institutions.14
042
-8-