Connecticut Senate Bill SB00285

Connecticut 2014 Regular Session

• Introduced: 2/26/14
• Refer: 2/26/14

Caption

An Act Concerning Newborn Screening For Krabbe Disease.

Impact

The implementation of SB00285 is anticipated to have a significant impact on public health practices in the state. By requiring newborns to be screened for Krabbe disease along with existing metabolic screenings, the bill aims to facilitate earlier diagnosis and treatment. This proactive approach is expected to reduce long-term health complications associated with late detection of Krabbe disease, thus potentially lowering healthcare costs and alleviating the strain on both families and public health systems due to untreated cases.

Summary

SB00285, introduced in the General Assembly, focuses on enhancing newborn screening procedures specifically for Krabbe disease, a severe genetic disorder that affects the nervous system. This bill mandates that every infant born within the state undergoes screening for Krabbe disease as part of the broader spectrum of metabolic disease testing that hospitals currently conduct. The legislation seeks to ensure early detection and intervention to improve health outcomes for newborns who may be affected by this illness.

Contention

Despite the apparent benefits, SB00285 may face controversy related to its financial implications. Some stakeholders may express concerns over the costs of implementing additional screening processes in hospitals. There are likely discussions regarding the allocation of resources, especially whether the proposed screening would lead to an increased financial burden on healthcare institutions or families. Additionally, there may be debates about informed consent and parental rights regarding mandatory testing.