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General Assembly Committee Bill No. 6544
January Session, 2019
LCO No. 5516
Referred to Committee on PUBLIC HEALTH
Introduced by:
(PH)
AN ACT PROHIBITING DIRECT-TO-CONSUMER GENETIC TES TING
COMPANIES FROM SHARI NG GENETIC DATA WITH HEALTH
CARRIERS OR LIFE INSURANCE COMPANIES.
Be it enacted by the Senate and House of Representatives in General
Assembly convened:
Section 1. (NEW) (Effective October 1, 2019) (a) As used in this 1
section: 2
(1) "Direct-to-consumer genetic testing company" means a company 3
that sells a genetic test directly to the consumer without requiring the 4
involvement of any health care provider; 5
(2) "Health carrier" means an insurance company, health care center, 6
hospital service corporation, medical service corporation, fraternal 7
benefit society or other entity that delivers, issues for delivery, renews, 8
amends or continues a health care plan in this state; and 9
(3) "Life insurance company" means a company engaged in writing 10
policies or annuities the premiums on which are charged wholly or 11
chiefly on the basis of tables purporting to represent the mortality of 12
insured lives or of annuitants. 13
Committee Bill No. 6544
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(b) No direct-to-consumer genetic testing company shall share any 14
personally identifiable genetic data or other personally identifiable 15
information concerning a person with any health carrier or life 16
insurance company. 17
(c) Any direct-to-consumer genetic testing company that violates 18
any provision of subsection (b) of this section shall be subject to a civil 19
penalty of not more than one thousand dollars per violation. 20
This act shall take effect as follows and shall amend the following
sections:
Section 1 October 1, 2019 New section
Statement of Purpose:
To require direct-to-consumer genetic testing companies to keep
consumer genetic data confidential.
[Proposed deletions are enclosed in brackets. Proposed additions are indicated by underline,
except that when the entire text of a bill or resolution or a section of a bill or resolution is new, it is
not underlined.]
Co-Sponsors: REP. ARESIMOWICZ, 30th Dist.
H.B. 6544