LCO \\PRDFS1\SCOUSERS\FORZANOF\WS\2019SB-00372-R02- SB.docx 1 of 2 General Assembly Substitute Bill No. 372 January Session, 2019 AN ACT CONCERNING TH E PROVISION OF RESOU RCES TO GUARDIANS OF ADULT C HILDREN WITH INTELLECTUAL DISABILITY. Be it enacted by the Senate and House of Representatives in General Assembly convened: Section 1. (NEW) (Effective July 1, 2019) (a) As used in this section, 1 "guardian or family member" means (1) one or more biological or 2 adoptive parents of an adult with intellectual disability, (2) one or 3 more persons to whom legal custody of an adult with intellectual 4 disability was given when the adult with intellectual disability was a 5 minor and in whose home the adult with intellectual disability resides, 6 or (3) any other adult family member of an adult with intellectual 7 disability who resides with and has a primary responsibility for 8 providing continuous care to the adult with intellectual disability. 9 (b) The Commissioner of Social Services, in collaboration with the 10 Commissioner of Developmental Services, shall submit an application 11 for any applicable Medicaid state plan amendment, waiver or waiver 12 amendment, in accordance with the provisions of section 17b-8 of the 13 general statutes, to the Centers for Medicare and Medicaid Services to 14 allow a guardian or family member of an adult with intellectual 15 disability to receive a stipend for providing personal care services to 16 such adult with intellectual disability. Not later than July 1, 2020, or 17 fifteen days after the Commissioner of Social Services receives federal 18 Substitute Bill No. 372 LCO {\\PRDFS1\SCOUSERS\FORZANOF\WS\2019SB-00372- R02-SB.docx } 2 of 2 approval of such application, whichever is earlier, the Commissioner 19 of Developmental Services shall provide a stipend to the guardian or 20 family member of such adult with intellectual disability for the 21 provision of personal care services to such adult with intellectual 22 disability, provided such adult with intellectual disability (1) has 23 complex medical or behavioral needs, as determined pursuant to the 24 Department of Developmental Services' level of need assessment, (2) is 25 at least twenty-one years of age, (3) has an income at or below one 26 hundred per cent of the federal poverty level, and (4) is at risk of 27 institutionalization. The Commissioner of Developmental Services 28 shall provide such stipend in accordance with the fee schedule, as 29 established and amended from time to time by the Commissioner of 30 Social Services pursuant to section 17b-343 of the general statutes, for 31 home health services provided under the Connecticut home-care 32 program for the elderly established pursuant to section 17b-342 of the 33 general statutes. 34 This act shall take effect as follows and shall amend the following sections: Section 1 July 1, 2019 New section PH Joint Favorable Subst.