LCO No. 2229 1 of 9 General Assembly Raised Bill No. 416 January Session, 2021 LCO No. 2229 Referred to Committee on PUBLIC HEALTH Introduced by: (PH) AN ACT CONCERNING VA RIOUS REVISIONS TO THE DEPARTMENT OF DEVELOPMENTAL SER VICES STATUTES. Be it enacted by the Senate and House of Representatives in General Assembly convened: Section 1. Subsection (c) of section 17a-247b of the general statutes is 1 repealed and the following is substituted in lieu thereof (Effective from 2 passage): 3 (c) The department shall make information in the registry available 4 only to: (1) Authorized agencies, for the purpose of protective service 5 determinations; (2) employers who employ employees to provide 6 services to an individual who receives services or funding from the 7 department; (3) the [Departments of Children and Families, Mental 8 Health and Addiction Services, and Social Services] Department of 9 Administrative Services, for the purpose of determining whether an 10 applicant for employment with the Departments of Children and 11 Families, Developmental Services, Mental Health and Addiction 12 Services and Social Services appears on the registry; or (4) charitable 13 organizations that recruit volunteers to support programs for persons 14 with intellectual disability or autism spectrum disorder, upon 15 Raised Bill No. 416 LCO No. 2229 2 of 9 application to and approval by the commissioner, for purposes of 16 conducting background checks on such volunteers. 17 Sec. 2. Subsection (f) of section 17a-238 of the general statutes is 18 repealed and the following is substituted in lieu thereof (Effective from 19 passage): 20 (f) The Commissioner of Developmental Services shall require the 21 attending physician of any person placed or treated in a residential 22 facility under the direction of the commissioner to obtain informed 23 written consent from the following persons prior to authorizing any 24 [surgical procedure or any] medical treatment or surgical procedure, 25 excluding routine medical treatment which is necessary to maintain the 26 general health of the person or to prevent the spread of any 27 communicable disease: (1) The person if such person is eighteen years 28 of age or over or is legally emancipated and competent to give such 29 consent; (2) the parent of a person under eighteen years of age who is 30 not legally emancipated; or (3) the legal representative of a person of 31 any age who is adjudicated unable to make informed decisions about 32 matters relating to such person's medical care. The person whose 33 consent is required shall be informed of the nature and consequences of 34 the particular medical treatment or surgical procedure, the reasonable 35 risks, benefits and purpose of such medical treatment or surgical 36 procedure and any alternative medical treatment or surgical 37 [procedures] procedure which [are] is available. The consent of any 38 person or of any parent or legal representative of any person may be 39 withdrawn at any time prior to the commencement of the medical 40 treatment or surgical procedure. The regional or training school director 41 having custody and control of a person living in a residential facility 42 may authorize necessary [surgery] medical treatment or surgical 43 procedure for such person where, in the opinion of the person's 44 attending physician, the [surgery] medical treatment or surgical 45 procedure is of an emergency nature and there is insufficient time to 46 obtain the required written consent provided for in this section. The 47 attending physician shall prepare a report describing the nature of the 48 emergency which necessitated such [surgery] medical treatment or 49 Raised Bill No. 416 LCO No. 2229 3 of 9 surgical procedure and shall file a copy of such report in the patient's 50 record. 51 Sec. 3. Section 46a-11c of the general statutes is repealed and the 52 following is substituted in lieu thereof (Effective from passage): 53 (a) The commissioner, upon receiving a report that a person with 54 intellectual disability allegedly is being or has been abused or neglected, 55 shall make an initial determination whether such person has intellectual 56 disability, shall determine if the report warrants investigation and shall 57 cause, in cases that so warrant, a prompt, thorough evaluation to be 58 made to determine whether the person has intellectual disability and 59 has been abused or neglected. For the purposes of sections 46a-11a to 60 46a-11g, inclusive, the determination of intellectual disability may be 61 made by means of a review of records and shall not require the 62 commissioner to conduct a full psychological examination of the person. 63 Any delay in making such determination of intellectual disability shall 64 not delay the investigation of abuse or neglect or recommendation of 65 provision of protective services. The evaluation shall include a visit to 66 the named person with intellectual disability and consultation with 67 those individuals having knowledge of the facts of the particular case. 68 All state, local and private agencies shall have a duty to cooperate with 69 any investigation conducted by the Department of Developmental 70 Services under this section, including the release of complete records of 71 the named person for review, inspection and copying, except where the 72 person with intellectual disability refuses to permit such records to be 73 released. The commissioner shall have subpoena powers to compel any 74 information related to such investigation. All records of the named 75 person shall be kept confidential by said department. Upon completion 76 of the evaluation of each case, written findings shall be prepared which 77 shall include a determination of whether abuse or neglect has occurred 78 and recommendations as to whether protective services are needed. The 79 commissioner, except in cases where the legal representative is the 80 alleged or substantiated perpetrator of abuse or neglect or is residing 81 with the alleged or substantiated perpetrator, shall notify the legal 82 representative, if any, of the person with intellectual disability if a report 83 Raised Bill No. 416 LCO No. 2229 4 of 9 of abuse or neglect is made which the commissioner determines 84 warrants investigation. The commissioner, except in cases where the 85 legal representative is the alleged or substantiated perpetrator of abuse 86 or neglect or is residing with the alleged or substantiated perpetrator, 87 shall provide the legal representative who the commissioner determines 88 is entitled to such information with further information upon request. 89 The person filing the report of abuse or neglect shall be notified of the 90 findings upon such person's request. 91 (b) The commissioner, upon receiving a report that a person who 92 receives services from the Department of Social Services' Division of 93 Autism Spectrum Disorder Services, allegedly is being or has been 94 abused or neglected, shall make an initial determination whether such 95 person receives funding or services from said division, shall determine 96 if the report warrants investigation and shall cause, in cases that so 97 warrant, a prompt, thorough evaluation, as described in subsection (b) 98 of section 17a-247f, to be made by the Department of Developmental 99 Services to determine whether the person has been abused or neglected. 100 (c) In cases where there is a death of a person with intellectual 101 disability for whom the Department of Developmental Services has 102 direct or oversight responsibility for medical care, and there is 103 reasonable cause to suspect or believe that such death may be due to 104 abuse or neglect, the commissioner shall conduct an investigation to 105 determine whether abuse or neglect occurred, except as may be 106 otherwise required by court order. The commissioner shall establish 107 protocols for conducting such investigations. 108 (d) The commissioner shall maintain an electronic copy of the reports 109 received of alleged abuse or neglect and all evaluation reports. 110 (e) Neither the original report of alleged abuse or neglect nor the 111 evaluation report of the investigator which includes findings and 112 recommendations shall be deemed a public record for purposes of 113 section 1-210. The original report of alleged abuse or neglect or the 114 evaluation report of the investigator shall not be provided to a legal 115 Raised Bill No. 416 LCO No. 2229 5 of 9 representative who is the alleged or substantiated perpetrator of abuse 116 or neglect or is residing with the alleged or substantiated perpetrator. 117 The name of the person making the original report shall not be disclosed 118 to any person unless the person making the original report consents to 119 such disclosure or unless a judicial proceeding results therefrom. 120 Sec. 4. Section 17a-217a of the general statutes is repealed and the 121 following is substituted in lieu thereof (Effective from passage): 122 (a) There shall be a Camp Harkness Advisory Committee to advise 123 the Commissioner of Developmental Services with respect to issues 124 concerning the health and safety of persons who attend and utilize the 125 facilities at Camp Harkness. The advisory committee shall be composed 126 of twelve members as follows: (1) Six members appointed by the 127 Governor, one of whom shall be the director of Camp Harkness, who 128 shall serve ex officio, one of whom shall represent [the Southeastern 129 Connecticut Association for Developmental Disabilities] a mental health 130 organization that uses the camp, one of whom shall represent the 131 Southbury Training School, one of whom shall represent [the] The Arc 132 of [New London County] Eastern Connecticut, one of whom shall be a 133 person who uses the camp on a residential basis and one of whom shall 134 be a relative or guardian of a person who uses the camp; and (2) six 135 members appointed by the General Assembly, one of whom shall be a 136 relative or guardian of a person who uses the camp, who shall be 137 appointed by the president pro tempore of the Senate; one of whom 138 shall be a [member of the Family Support Council established pursuant 139 to section 17a-219c and represent persons who use the camp on a day 140 basis] special education director, who shall be appointed by the speaker 141 of the House of Representatives; one of whom shall represent the board 142 of selectmen of the town of Waterford, who shall be appointed by the 143 majority leader of the House of Representatives; one of whom shall 144 represent a private nonprofit corporation that is: (A) Tax exempt under 145 Section 501(c)(3) of the Internal Revenue Code of 1986, or any 146 subsequent internal revenue code of the United States, as amended from 147 time to time, and (B) established to promote and support Camp 148 Harkness and its camping programs, who shall be appointed by the 149 Raised Bill No. 416 LCO No. 2229 6 of 9 majority leader of the Senate; one of whom shall represent the 150 Connecticut Institute for the Blind and the Oak Hill School, who shall 151 be appointed by the minority leader of the House of Representatives; 152 and one of whom shall represent [the United Cerebral Palsy 153 Association] Sunrise Northeast, Inc., who shall be appointed by the 154 minority leader of the Senate. 155 (b) The advisory committee shall promote communication regarding 156 camp services and develop recommendations for the commissioner 157 regarding the use of Camp Harkness. 158 Sec. 5. Section 45a-681 of the general statutes is repealed and the 159 following is substituted in lieu thereof (Effective from passage): 160 (a) The court shall review each guardianship at least every three years 161 and shall either continue, modify or terminate the order for 162 guardianship. Pursuant to such review: 163 (1) The court shall receive and review written evidence as to the 164 condition of the protected person. Except as provided in subdivision (2) 165 of this subsection, the guardian and a Department of Developmental 166 Services professional or, if requested by the protected person or by the 167 court, an assessment team appointed by the Commissioner of 168 Developmental Services or the commissioner's designee shall each 169 submit a written report to the court not later than forty-five days after 170 the court's request for such report. 171 (2) In the case of a protected person who is functioning adaptively 172 and intellectually within the severe or profound range of intellectual 173 disability, as determined by the Department of Developmental Services, 174 the court shall receive and review written reports as to the condition of 175 the protected person only from the guardian, except that the court may 176 require a Department of Developmental Services professional or 177 assessment team to submit a written report as to the condition of the 178 protected person. 179 (3) The Department of Developmental Services professional or 180 Raised Bill No. 416 LCO No. 2229 7 of 9 assessment team shall personally observe or examine the protected 181 person within the forty-five-day period preceding the date it submits 182 any report under subdivision (4) of this subsection. 183 (4) Each written report shall be submitted to the court not later than 184 forty-five days after the court's request for such report. On receipt of a 185 written report from the guardian or a Department of Developmental 186 Services professional or assessment team, the court shall provide a copy 187 of the report to the attorney for the protected person. 188 (5) The written report or testimony by the Department of 189 Developmental Services professional or assessment team shall not be 190 required for the court's review of guardianship pursuant to this section 191 if the protected person has been determined ineligible for services of the 192 Department of Developmental Services by the commissioner or his or 193 her designee, provided such denial of eligibility is based on the 194 determination that the individual does not have intellectual disability as 195 defined in section 1-1g. A copy of the eligibility determination letter 196 indicating that the basis of ineligibility is the absence of intellectual 197 disability, as defined in section 1-1g, shall be provided to the court in 198 lieu of a report by the assessment team and no further assessment by the 199 team shall be required. 200 [(5)] (6) Not later than thirty days after the attorney for the protected 201 person receives a copy of a report pursuant to subdivision (4) of this 202 subsection, the protected person's attorney shall (A) meet with the 203 protected person concerning the report, and (B) provide written notice 204 to the court (i) that the protected person's attorney has met with the 205 protected person, and (ii) indicating whether a hearing is requested. 206 Nothing in this section shall prevent the protected person or the 207 protected person's attorney from requesting a hearing at any other time 208 as permitted by law. 209 [(6)] (7) If the protected person is unable to request or obtain an 210 attorney, the court shall appoint an attorney for the protected person. If 211 the protected person is unable to pay for the services of the attorney, the 212 Raised Bill No. 416 LCO No. 2229 8 of 9 reasonable compensation of such attorney shall be established by, and 213 paid from funds appropriated to, the Judicial Department; however, if 214 funds have not been included in the budget of the Judicial Department 215 for such purposes, such compensation shall be established by the 216 Probate Court Administrator and paid from the Probate Court 217 Administration Fund. 218 (b) If the court determines, after receipt of the reports from the 219 Department of Developmental Services professional or assessment team 220 and the guardian, and notice from the attorney for the protected person, 221 that there has been no change in the condition of the protected person 222 since the last preceding review by the court, a hearing on the condition 223 of the protected person shall not be required, but the court, in its 224 discretion, may hold such hearing. If the protected person's attorney, the 225 Department of Developmental Services professional or assessment team 226 or the guardian requests a hearing, the court shall hold a hearing within 227 thirty days of such request. No order expanding or reducing the powers 228 and responsibilities of a guardian shall be issued unless such hearing is 229 held. 230 Sec. 6. Subsection (b) of section 45a-674 of the general statutes is 231 repealed and the following is substituted in lieu thereof (Effective from 232 passage): 233 (b) The written report or testimony by the assessment team shall not 234 be required for a hearing on the appointment of a plenary guardian or 235 limited guardian if the individual has been determined ineligible for 236 services of the Department of Developmental Services by the 237 commissioner or his or her designee, provided such denial of eligibility 238 is based on the determination that the individual does not have 239 intellectual disability as defined in section 1-1g. A copy of the eligibility 240 determination letter indicating that the basis of ineligibility is the 241 absence of intellectual disability, as defined in section 1-1g, shall be 242 provided to the Probate Court in lieu of a report by the assessment team 243 and no further assessment by the team, including any subsequent 244 assessment requested pursuant to subsection (a) of section 45a-681, as 245 Raised Bill No. 416 LCO No. 2229 9 of 9 amended by this act, shall be required. 246 This act shall take effect as follows and shall amend the following sections: Section 1 from passage 17a-247b(c) Sec. 2 from passage 17a-238(f) Sec. 3 from passage 46a-11c Sec. 4 from passage 17a-217a Sec. 5 from passage 45a-681 Sec. 6 from passage 45a-674(b) Statement of Purpose: To (1) make information in the Department of Developmental Services' abuse and neglect registry available to the Department of Administrative Services, (2) allow the Commissioner of Developmental Services or a Department of Developmental Services regional or training school director to consent to emergency medical treatment for an individual under the custody or control of the department, (3) restrict legal representatives of persons with intellectual disabilities from accessing abuse and neglect reports when the legal representative is the alleged perpetrator of such abuse or neglect or is residing with the alleged perpetrator, (4) update the membership of the Camp Harkness Advisory Committee, and (5) excuse the Department of Developmental Services from assessments of individuals in the context of a review of guardianship by the Probate Court where the department has previously determined that such individual does not have intellectual disability. [Proposed deletions are enclosed in brackets. Proposed additions are indicated by underline, except that when the entire text of a bill or resolution or a section of a bill or resolution is new, it is not underlined.]