LCO No. 4246 1 of 5 General Assembly Raised Bill No. 6912 January Session, 2025 LCO No. 4246 Referred to Committee on AGING Introduced by: (AGE) AN ACT ESTABLISHING AN ALZHEIMER'S DISEASE AND DEMENTIA ADVISORY COUNCIL. Be it enacted by the Senate and House of Representatives in General Assembly convened: Section 1. (NEW) (Effective October 1, 2025) (a) There is established, 1 within the Department of Aging and Disability Services, an Alzheimer's 2 Disease and Dementia Advisory Council. The advisory council shall: 3 (1) Examine (A) the needs of persons living with Alzheimer's disease 4 or dementia in the state, (B) the services available to such persons and 5 their family caregivers, and (C) the ability of health care providers and 6 institutions to meet the needs of such persons; and 7 (2) Develop a State Alzheimer's Plan, which shall make findings and 8 recommendations regarding: 9 (A) State residents living with Alzheimer's disease and dementia and 10 their service needs, including, but not limited to, (i) the state's role in 11 providing or facilitating long-term care, family caregiver support and 12 assistance to persons with early-stage and early-onset Alzheimer's 13 disease or dementia, (ii) state policies regarding persons living with 14 Raised Bill No. 6912 LCO No. 4246 2 of 5 Alzheimer's disease or dementia, and (iii) the fiscal impact of 15 Alzheimer's disease and dementia on publicly funded health care 16 programs; 17 (B) Existing resources, services and capacity relating to the diagnosis 18 and care of persons living with Alzheimer's disease or dementia, 19 including, but not limited to, (i) the type, cost and availability of 20 dementia care services, (ii) the availability of health care providers who 21 can provide Alzheimer's disease or dementia-related services, 22 including, but not limited to, neurologists, geriatricians and direct care 23 workers, (iii) dementia-specific training requirements for public and 24 private employees who interact with persons living with Alzheimer's 25 disease or dementia, including, but not limited to, long-term care 26 providers, case managers, adult protective services employees and law 27 enforcement personnel and other first responders, (iv) home and 28 community-based services, including, but not limited to, respite care 29 services, (v) quality care measures for home and community-based 30 services and residential care facilities, and (vi) state-supported 31 Alzheimer's disease and dementia research conducted at higher 32 education institutions located in the state; and 33 (C) Policies and strategies that (i) increase public awareness of 34 Alzheimer's disease and dementia, (ii) educate health care providers to 35 increase early detection and diagnosis of Alzheimer's disease and 36 dementia, (iii) improve health care services for persons living with 37 Alzheimer's disease or dementia, (iv) evaluate the capacity of the health 38 care system in meeting the growing number and needs of persons living 39 with Alzheimer's disease or dementia, (v) increase the number of health 40 care providers available to treat the growing aging population and 41 populations living with Alzheimer's disease or dementia, (vi) improve 42 services provided in the home and community to delay and decrease 43 the need for institutionalized care for persons living with Alzheimer's 44 disease or dementia, (vii) improve long-term care services, including, 45 but not limited to, assisted living services for persons living with 46 Alzheimer's disease or dementia, (viii) assist unpaid Alzheimer's 47 Raised Bill No. 6912 LCO No. 4246 3 of 5 disease and dementia caregivers, (ix) increase and improve research on 48 Alzheimer's disease and dementia, (x) promote activities to maintain 49 and improve brain health, (xi) improve data and information collection 50 relating to Alzheimer's disease and dementia and the public health 51 burdens associated with such diseases, (xii) improve public safety and 52 address the safety-related needs of persons living with Alzheimer's 53 disease or dementia, (xiii) address legal protections for, and legal issues 54 faced by, persons living with Alzheimer's disease or dementia, and (xiv) 55 improve methods through which the state evaluates and adopts policies 56 to assist persons living with Alzheimer's disease or dementia. 57 (b) The advisory council shall consist of the following members: 58 (1) Ten members appointed by the Governor, (A) one of whom shall 59 be a person living with early stage or early onset Alzheimer's disease or 60 dementia, (B) one of whom shall be a family caregiver of a person living 61 with Alzheimer's disease or dementia, (C) one of whom shall represent 62 a municipality that provides services to senior citizens, (D) one of whom 63 shall represent home health care agencies, (E) two of whom shall be 64 health care providers with experience diagnosing and treating 65 Alzheimer's disease, (F) one of whom shall represent a national 66 organization that advocates on behalf of persons living with 67 Alzheimer's disease or dementia, (G) one of whom shall represent the 68 area agencies on aging, established pursuant to section 17a-850 of the 69 general statutes, (H) one of whom shall represent long-term care 70 facilities, and (I) one of whom shall have expertise in aging policy issues; 71 (2) The Commissioner of Aging and Disability Services, or the 72 commissioner's designee; 73 (3) The Commissioner of Public Health, or the commissioner's 74 designee; 75 (4) The Commissioner of Social Services, or the commissioner's 76 designee; and 77 Raised Bill No. 6912 LCO No. 4246 4 of 5 (5) The State Ombudsman, or the State Ombudsman's designee. 78 (c) All initial appointments to the advisory council shall be made not 79 later than January 1, 2026. Advisory council members first appointed 80 pursuant to subparagraphs (A) to (D), inclusive, of subdivision (1) of 81 subsection (b) of this section shall serve for a term of two years. 82 Advisory council members first appointed pursuant to subparagraphs 83 (E) to (I), inclusive, of subdivision (1) of subsection (b) of this section 84 shall serve for a term of three years. Any subsequent advisory council 85 member appointed pursuant to subdivision (1) of subsection (b) of this 86 section shall serve for a term of two years, or until such member's 87 successor is appointed. If the Governor determines that no suitable 88 successor candidate exists to appoint to the advisory council, the 89 Governor may reappoint an existing advisory council member for one 90 two-year term. 91 (d) The Commissioner of Aging and Disability Services, or the 92 commissioner's designee, shall convene the first meeting of the advisory 93 council not later than thirty days after all advisory council members are 94 appointed. At such meeting, the members of the advisory council shall 95 select a chairperson and vice chairperson from among the members of 96 the advisory council. The chairperson and vice chairperson may serve 97 in such roles not more than two consecutive years. The advisory council 98 shall meet not less than once every calendar quarter. 99 (e) The Department of Aging and Disability Services' dementia 100 services coordinator shall serve as administrative staff to the advisory 101 council. 102 (f) Not later than January 1, 2027, the advisory council shall submit a 103 report on the State Alzheimer's Plan to the Governor and, in accordance 104 with the provisions of section 11-4a of the general statutes, the joint 105 standing committees of the General Assembly having cognizance of 106 matters relating to aging, public health and human services regarding 107 the State Alzheimer's Plan. Such report shall include recommendations 108 Raised Bill No. 6912 LCO No. 4246 5 of 5 for the implementation of the State Alzheimer's Plan and identify any 109 barriers to the implementation of such plan. The advisory council shall 110 update the State Alzheimer's plan every four years. 111 This act shall take effect as follows and shall amend the following sections: Section 1 October 1, 2025 New section Statement of Purpose: To establish an Alzheimer's Disease and Dementia Advisory Council. [Proposed deletions are enclosed in brackets. Proposed additions are indicated by underline, except that when the entire text of a bill or resolution or a section of a bill or resolution is new, it is not underlined.]