HB 115 2024
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F L O R I D A H O U S E O F R E P R E S E N T A T I V E S
A bill to be entitled 1
An act relating to a progressive supranuclear palsy 2
and other neurodegenerative diseases policy workgroup; 3
providing a short title; creating s. 408.0622, F.S.; 4
requiring the Secretary of Health Care Administration, 5
in conjunction with the State Surgeon General, to 6
establish a progressive supranuclear palsy and other 7
neurodegenerative diseases policy workgroup; providing 8
for duties, membership, and meetings of the workgroup; 9
requiring the secretary to submit annual reports and a 10
final report by a specified date to the Governor and 11
the Legislature; providing an effective date. 12
13
Be It Enacted by the Legislature of the State of Florida: 14
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Section 1. This act may be cited as the "Justo R. Cortes 16
Progressive Supranuclear Palsy Act." 17
Section 2. Section 408.0622, Florida Statutes, is created 18
to read: 19
408.0622 Progressive supranuclear palsy and other 20
neurodegenerative diseases policy workgroup. — 21
(1) The Secretary of Health Care Administration, in 22
conjunction with the State Surgeon General, shall establish a 23
progressive supranuclear palsy and other neurodegenerative 24
diseases policy workgroup. 25
HB 115 2024
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(2) The workgroup shall: 26
(a) Identify the aggregate number of peo ple in the state 27
diagnosed with progressive supranuclear palsy and other 28
neurodegenerative diseases annually. 29
(b) Identify how data is collected regarding diagnoses of 30
progressive supranuclear palsy and other neurodegenerative 31
diseases and adverse health outcomes associated with such 32
conditions. 33
(c) Identify how progressive supranuclear palsy and other 34
neurodegenerative diseases impact the lives of people in the 35
state. 36
(d) Identify the standard of care for the surveillance, 37
detection, and treatment of progressive supranuclear palsy and 38
other neurodegenerative diseases. 39
(e) Identify emerging treatments, therapies, and research 40
relating to progressive supranuclear palsy and other 41
neurodegenerative diseases. 42
(f) Develop a risk surveillance system to h elp health care 43
providers identify patients who may be at a higher risk of 44
developing progressive supranuclear palsy and other 45
neurodegenerative diseases. 46
(g) Develop policy recommendations to help improve patient 47
awareness of progressive supranuclear pa lsy and other 48
neurodegenerative diseases. 49
(h) Develop policy recommendations to help improve 50
HB 115 2024
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surveillance and detection of patients who may be at a higher 51
risk of being diagnosed with progressive supranuclear palsy and 52
other neurodegenerative diseases in licensed health care 53
facilities, including hospitals, nursing homes, assisted living 54
facilities, residential treatment facilities, and ambulatory 55
surgical centers. 56
(i) Develop policy recommendations relating to guideli nes 57
that affect the standard of care for patients with progressive 58
supranuclear palsy and other neurodegenerative diseases. 59
(j) Develop policy recommendations relating to providing 60
patients and their families with written notice of increased 61
risks of being diagnosed with progressive supranuclear palsy and 62
other neurodegenerative diseases. 63
(3)(a) The workgroup shall be composed of health care 64
providers, family members or caretakers of patients who have 65
been diagnosed with progressive supranuclear palsy a nd other 66
neurodegenerative diseases, advocates, and other interested 67
parties and associations. 68
(b) The President of the Senate and the Speaker of the 69
House of Representatives shall each appoint two members to the 70
workgroup. 71
(c) Members of the workgroup shall serve without 72
compensation. 73
(d) The State Surgeon General shall appoint the chair of 74
the workgroup. 75
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(e) The chair of the workgroup may create subcommittees to 76
help conduct research, schedule speakers on important subjects, 77
and draft reports and policy recommendations. 78
(f) Meetings of the workgroup may be held through 79
teleconference or other electronic means. 80
(4)(a) The Secretary of Health Care Administration shall 81
submit an annual report detailing his or her findings and 82
providing recommendat ions to the Governor, the President of the 83
Senate, and the Speaker of the House of Representatives. 84
(b) The Secretary of Health Care Administration shall 85
submit a final report detailing his or her findings and 86
providing recommendations to the Governor, t he President of the 87
Senate, and the Speaker of the House of Representatives by 88
January 4, 2026. 89
Section 3. This act shall take effect July 1, 2024. 90