CS/HB 115 2024
CODING: Words stricken are deletions; words underlined are additions.
hb0115-01-c1
Page 1 of 4
F L O R I D A H O U S E O F R E P R E S E N T A T I V E S
A bill to be entitled 1
An act relating to a progressive supranuclear palsy 2
and other neurodegenerative diseases policy workgroup; 3
providing a short title; creating s. 381.991, F.S.; 4
requiring the State Surgeon General to establish a 5
progressive supranuclear palsy and other 6
neurodegenerative diseases policy workgroup; providing 7
for duties, membership, and meetings of the workgroup; 8
requiring the State Surgeon General to submit annual 9
reports and a final report by a specified date to the 10
Governor and the Legislature; providing an effective 11
date. 12
13
Be It Enacted by the Legislature of the State of Florida: 14
15
Section 1. This act may be cited as the "Justo R. Cortes 16
Progressive Supranuclear Palsy Act." 17
Section 2. Section 381.991, Florida Statutes, is created 18
to read: 19
381.991 Progressive supranuclear palsy and other 20
neurodegenerative diseases policy workgroup. — 21
(1) The State Surgeon General shall establish a 22
progressive supranucl ear palsy and other neurodegenerative 23
diseases policy workgroup. 24
(2) The workgroup shall: 25
CS/HB 115 2024
CODING: Words stricken are deletions; words underlined are additions.
hb0115-01-c1
Page 2 of 4
F L O R I D A H O U S E O F R E P R E S E N T A T I V E S
(a) Identify the aggregate number of people in the state 26
diagnosed with progressive supranuclear palsy and other 27
neurodegenerative diseases annually. 28
(b) Identify how data is collected regarding diagnoses of 29
progressive supranuclear palsy and other neurodegenerative 30
diseases and adverse health outcomes associated with such 31
conditions. 32
(c) Identify how progressive supranuclear palsy and other 33
neurodegenerative diseases impact the lives of people in the 34
state. 35
(d) Identify the standard of care for the surveillance, 36
detection, and treatment of progressive supranuclear palsy and 37
other neurodegenerative diseases. 38
(e) Identify emerging treatments, therapies, and r esearch 39
relating to progressive supranuclear palsy and other 40
neurodegenerative diseases. 41
(f) Develop a risk surveillance system to help health care 42
providers identify patients who may be at a higher risk of 43
developing progressive supranuclear palsy and o ther 44
neurodegenerative diseases. 45
(g) Develop policy recommendations to help improve patient 46
awareness of progressive supranuclear palsy and other 47
neurodegenerative diseases. 48
(h) Develop policy recommendations to help improve 49
surveillance and detection of patients who may be at a higher 50
CS/HB 115 2024
CODING: Words stricken are deletions; words underlined are additions.
hb0115-01-c1
Page 3 of 4
F L O R I D A H O U S E O F R E P R E S E N T A T I V E S
risk of being diagnosed with progressive supranuclear palsy and 51
other neurodegenerative diseases in licensed health care 52
facilities, including hospitals, nursing homes, assisted living 53
facilities, residential treatment fa cilities, and ambulatory 54
surgical centers. 55
(i) Develop policy recommendations relating to guidelines 56
that affect the standard of care for patients with progressive 57
supranuclear palsy and other neurodegenerative diseases. 58
(j) Develop policy recommendations relating to providing 59
patients and their families with written notice of increased 60
risks of being diagnosed with progressive supranuclear palsy and 61
other neurodegenerative diseases. 62
(3)(a) The workgroup shall be compos ed of health care 63
providers, family members or caretakers of patients who have 64
been diagnosed with progressive supranuclear palsy and other 65
neurodegenerative diseases, advocates, and other interested 66
parties and associations. 67
(b) The President of the Sen ate and the Speaker of the 68
House of Representatives shall each appoint two members to the 69
workgroup. 70
(c) Members of the workgroup shall serve without 71
compensation. 72
(d) The State Surgeon General shall appoint the chair of 73
the workgroup. 74
(e) The chair of the workgroup may create subcommittees to 75
CS/HB 115 2024
CODING: Words stricken are deletions; words underlined are additions.
hb0115-01-c1
Page 4 of 4
F L O R I D A H O U S E O F R E P R E S E N T A T I V E S
help conduct research, schedule speakers on important subjects, 76
and draft reports and policy recommendations. 77
(f) Meetings of the workgroup may be held through 78
teleconference or other electronic means. 79
(4)(a) The State Surgeon General shall submit an annual 80
report detailing his or her findings and providing 81
recommendations to the Governor, the President of the Senate, 82
and the Speaker of the House of Representatives. 83
(b) The State Surgeon General shall submi t a final report 84
detailing his or her findings and providing recommendations to 85
the Governor, the President of the Senate, and the Speaker of 86
the House of Representatives by January 4, 2026. 87
Section 3. This act shall take effect July 1, 2024. 88