The Florida Senate
BILL ANALYSIS AND FISCAL IMPACT STATEMENT
(This document is based on the provisions contained in the legislation as of the latest date listed below.)
Prepared By: The Professional Staff of the Appropriations Committee on Health and Human Services
BILL: SB 398
INTRODUCER: Senator Burgess and others
SUBJECT: Awareness Program for Alzheimer’s Disease and Dementia-related Disorders
DATE: March 17, 2025
ANALYST STAFF DIRECTOR REFERENCE ACTION
1. Rao Tuszynski CF Favorable
2. Gerbrandt McKnight AHS Pre-meeting
3. FP
I. Summary:
SB 398 requires the Department of Elderly Affairs (DOEA) to contract for the development and
implementation of the Alzheimer’s Disease Awareness Program. The bill specifies requirements
for the program and conditions for the contracted entity.
The bill requires the Alzheimer’s Disease Advisory Committee to annually evaluate the program
and determine if future funding is needed.
The bill has a significant negative impact on state expenditures. The bill appropriates $1.5
million to the DOEA to implement the bill. See Section V. Fiscal Impact Statement.
The bill takes effect July 1, 2025.
II. Present Situation:
Alzheimer's Disease and Dementia-Related Disorders
Dementia is a general term for an individuals’ decline in memory, language, and problem-
solving capabilities.
1
Common causes of dementia include:
2
• Alzheimer’s disease;
• Cerebrovascular disease;
• Frontotemporal degeneration;
1
Alzheimer’s Association, 2024 Alzheimer’s Disease Facts and Figures, available at:
https://www.alz.org/getmedia/76e51bb6-c003-4d84-8019-e0779d8c4e8d/alzheimers-facts-and-figures.pdf (last visited
2/17/25).
2
Alzheimer’s Association, 2024 Alzheimer’s Disease Facts and Figures, available at:
https://www.alz.org/getmedia/76e51bb6-c003-4d84-8019-e0779d8c4e8d/alzheimers-facts-and-figures.pdf (last visited
2/17/25).
REVISED: BILL: SB 398 Page 2
• Hippocampal sclerosis;
• Lewy body disease;
• Mixed pathologies; and
• Parkinson’s Disease.
Alzheimer’s disease is the most common type of dementia and is considered a progressive
disease, which means symptoms worsen with time.
3
Alzheimer’s disease causes damage to the
brain’s neurons, which can lead to decreased cognitive functioning and an increased need for
assistance in performing daily tasks.
4
Individuals with Alzheimer’s disease may develop changes
in their mood or engage in behaviors that could be dangerous, such as wandering from a safe
location and being unable to retrace their steps back to safety.
5
Due to the damage to the brain’s
neurons, individuals lose the ability to engage in bodily functions such as walking or swallowing
and require continual care.
6
On average, individuals live with Alzheimer’s disease four to eight
years after a diagnosis.
7
However, the lifespan of an individual with Alzheimer’s disease is
contingent on factors such as age and co-occurring health conditions. Some individuals have
lived over twenty years after receiving an Alzheimer’s disease diagnosis.
8
It is estimated that there are more than six million Americans that currently live with
Alzheimer’s disease.
9
Research predicts that by 2060, there will be an expected 13 million
individuals living with Alzheimer’s disease nationwide.
10
There are an estimated 580,000 Floridians over the age of 65 that are living with Alzheimer’s
disease.
11
Due to Florida’s high population of individuals over the age of 65 (21% of Florida’s
population), this number is expected to grow in the coming years.
12
The Department of Elderly Affairs
The Department of Elderly Affairs (DOEA) is charged with administering programs and services
for elders across the state of Florida, including services for those affected by Alzheimer’s
3
U.S. Department of Health and Human Services National Health Statistics Reports, Diagnosed Dementia in Adults Age 65
and Older: United States, 2022, available at: https://www.cdc.gov/nchs/fastats/alzheimers.htm (last visited 2/17/25) and
Alzheimer’s Association, 2024 Alzheimer’s Disease Facts and Figures, available at: https://www.alz.org/getmedia/76e51bb6-
c003-4d84-8019-e0779d8c4e8d/alzheimers-facts-and-figures.pdf (last visited 2/17/25).
4
Alzheimer’s Association, 2024 Alzheimer’s Disease Facts and Figures, available at:
https://www.alz.org/getmedia/76e51bb6-c003-4d84-8019-e0779d8c4e8d/alzheimers-facts-and-figures.pdf (last visited
2/17/25).
5
Id.
6
Id.
7
Id.
8
Id.
9
U.S. Department of Health and Human Services, National Plan to Address Alzheimer’s Disease: 2024 Update, available at:
https://aspe.hhs.gov/collaborations-committees-advisory-groups/napa/napa-documents/napa-national-plan (last visited
2/17/25).
10
Id.
11
Florida Department of Elderly Affairs, Alzheimer’s Disease Advisory Committee Annual Report (2023), available at:
https://elderaffairs.org/programs-services/bureau-of-elder-rights/alzheimers-disease-initiative/ (last visited 2/17/25).
12
Id. BILL: SB 398 Page 3
disease.
13
The DOEA contracts with Area Agencies on Aging
14
that are required to ensure
prevention, early intervention, and long-term care services to the elderly population in Florida.
15
There are currently eleven Area Agencies on Aging across the state, which operate as Aging and
Disability Resource Centers (ADRCs).
16
The ADRCs provide residents with information about
state, federal, and local programs and benefits.
17
Alzheimer’s Disease Initiative
In 1985, the Legislature established the Alzheimer’s Disease Initiative (ADI), intended to
provide services for individuals and families that have been affected by Alzheimer’s disease.
18
The Dementia Director, appointed by the Secretary of Elderly Affairs, is responsible for
providing support to memory disorder clinics throughout the state, facilitating coordination for
services between a variety of providers, and monitoring data on the impact of Alzheimer’s
disease in Florida.
19
Services for Individuals and Families affected by Alzheimer’s Disease
Memory disorder clinics throughout the state provide diagnostic and therapeutic settings for
individuals with Alzheimer’s disease. These settings allow for the research of Alzheimer’s
disease and training of professionals that care for individuals with Alzheimer's disease.
20
Respite care provides temporary relief for caregivers and may be provided in conjunction with a
memory disorder clinic.
21
Respite options for caregivers of individuals with Alzheimer’s disease
may include:
22
• In-home care.
• Facility-based care.
• Specialized adult day care.
• Emergency respite care.
• Extended care for up to 30 days.
Other supportive services for caregivers may include:
23
• Case management.
13
Chapter 430, F.S.; Florida Department of Elderly Affairs, About Us, available at: https://elderaffairs.org/ (last visited
2/14/25).
14
Florida law defines an “area agency on aging” as a public or nonprivate private agency or office designated by the DOEA
to coordinate and administer the DOEA’s programs and to provide, through contracting agencies, services within a planning
and service area. Area Agencies on Aging serve as both the advocate and the visible focal point in its planning and service
area to foster the development of comprehensive and coordinated service systems to serve older individuals.
15
Section 20.41, F.S.
16
Florida Department of Elderly Affairs, About Us, available at: https://elderaffairs.org/ (last visited 2/14/25).
17
Id.
18
Florida Department of Elderly Affairs, Alzheimer’s Disease Initiative (ADI), available at: https://elderaffairs.org/programs-
services/bureau-of-elder-rights/alzheimers-disease-initiative/ (last visited 2/17/25); Ch. 85-145, L.O.F.
19
Section 430.5015, F.S.
20
Section 430.502, F.S.
21
Section 430.502, F.S.
22
Florida Department of Elderly Affairs, Alzheimer’s Disease Initiative (ADI), available at: https://elderaffairs.org/programs-
services/bureau-of-elder-rights/alzheimers-disease-initiative/ (last visited 2/17/25).
23
Id. BILL: SB 398 Page 4
• Specialized medical equipment and supplies.
• Caregiver counseling and support groups.
• Caregiver training and relief.
Alzheimer’s Disease Advisory Committee
The Alzheimer’s Disease Advisory Committee (committee) is composed of stakeholders,
including Ph.D. researchers, caregivers of persons with Alzheimer's disease, medical
professionals, and legislative representatives.
24
Each year, the committee submits a report that
details the current state-funded efforts in Alzheimer’s disease research and provides
recommendations for improving Alzheimer’s disease policy.
25
The committee makes various recommendations surrounding policy, research, clinical care,
institutional care, and home and community-based services for Alzheimer’s disease policy.
26
In
2023, one of the committee’s recommendations identified a need for improving the distribution
of information on Alzheimer’s disease research findings.
27
Alzheimer’s Disease and Related Dementias Resource Guide
The DOEA is required to provide public education on Alzheimer’s disease and related forms of
dementia.
28
The DOEA compiles information for the public and publishes the Alzheimer’s
Disease and Related Dementias Resource Guide.
29
Information provided in the resource guide
includes information such as:
30
• Warning signs of Alzheimer’s;
• Protecting and improving brain health;
• Next steps after an Alzheimer’s diagnosis; and
• Service providers in each area throughout the state.
This information is published online and is available to the public.
31
Effect of Proposed Changes:
Section 1 creates s. 430.5016, F.S., to require the Department of Elderly Affairs to contract for
the development and implementation of the Alzheimer’s Disease Awareness Program. The
program will assist Florida residents that are affected by Alzheimer's disease and dementia-
related disorders with obtaining reputable national research.
At a minimum, the program is required to:
24
Section 430.501, F.S.
25
Id.
26
Florida Department of Elder Affairs, Alzheimer’s Disease Advisory Committee Annual Report (2023), available at:
https://elderaffairs.org/programs-services/bureau-of-elder-rights/alzheimers-disease-initiative/ (last visited 2/17/25).
27
Id.
28
Section 430.5025, F.S.
29
Department of Elder Affairs State Health Improvement Plan, Alzheimer’s Disease and Related Dementias Resource Guide,
available at: https://www.floridahealth.gov/provider-and-partner-resources/research/florida-health-grand-
rounds/SHIPPA9ADRDResourceGuide_final.pdf (last visited 2/17/25).
30
Id.
31
Id. BILL: SB 398 Page 5
• Include a website and other related electronic resources that address:
o The advantages of early detection and diagnosis;
o Methods for reducing risk factors;
o The importance of brain health;
o Scheduling screenings and assessments for Alzheimer’s disease and dementia-related
disorders with a licensed health care provider;
o Healthy aging;
o Recent developments in Alzheimer's research and dementia-related disorders and the
availability of clinical trials;
o Community resources available for those affected by Alzheimer's disease and dementia-
related disorders; and
o Any related topics as deemed appropriate by the DOEA.
• Use the DOEA’s Alzheimer's Disease and Related Dementias Resource Guide as part of the
program materials.
• Promote health care provider education in partnership with the Department of Health to help
improve care for patients with Alzheimer's disease and dementia-related disorders.
• Include print and digital advertising.
• Include a statewide, mobile, in-person outreach program that prioritizes those in underserved
communities and provides information on issues relating to Alzheimer's disease and
dementia-related disorders.
• Provide referrals to the DOEA.
• Provide information regarding available community resources for Alzheimer's disease or
dementia-related disorders.
The bill requires the DOEA to contract for the development and implementation of the program.
The contracted entity must be statewide nonprofit organization must have a history of focusing
on those affected by Alzheimer's disease and dementia-related disorders and have the
organizational capacity to successfully manage a statewide program. The contracted entity is
required to collaborate with other relevant state agencies and private organizations to develop
and implement the program.
The bill requires the Alzheimer’s Disease Advisory Committee to annually evaluate the program
and make recommendations to the DOEA and the Legislature concerning the need for future
funding for the program.
Section 2 appropriates $1.5 million in nonrecurring General Revenue funds to the DOEA to
administer the Alzheimer's Disease Awareness Program for the 2025-2026 fiscal year.
Section 3 provides that the bill takes effect July 1, 2025.
III. Constitutional Issues:
A. Municipality/County Mandates Restrictions:
The bill does not appear to require cities and counties to expend funds or limit their
authority to raise revenue or receive state-shared revenues as specified by Article VII,
s. 18, of the State Constitution. BILL: SB 398 Page 6
B. Public Records/Open Meetings Issues:
None.
C. Trust Funds Restrictions:
None.
D. State Tax or Fee Increases:
None.
E. Other Constitutional Issues:
None Identified.
IV. Fiscal Impact Statement:
A. Tax/Fee Issues:
None.
B. Private Sector Impact:
None.
C. Government Sector Impact:
The bill appropriates $1.5 million in nonrecurring general revenue funds to the
Department of Elderly Affairs to administer the Alzheimer's Disease Awareness Program
for the 2025-2026 fiscal year.
V. Technical Deficiencies:
None.
VI. Related Issues:
None.
VII. Statutes Affected:
This bill creates section 430.5016 of the Florida Statutes.
VIII. Additional Information:
A. Committee Substitute – Statement of Changes:
(Summarizing differences between the Committee Substitute and the prior version of the bill.)
None. BILL: SB 398 Page 7
B. Amendments:
None.
This Senate Bill Analysis does not reflect the intent or official position of the bill’s introducer or the Florida Senate.