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Florida Senate - 2025 CS for SB 524 By the Appropriations Committee on Health and Human Services; and Senator Harrell 603-03443-25 2025524c1 1 A bill to be entitled 2 An act relating to newborn screenings; amending s. 3 383.14, F.S.; subject to legislative appropriation and 4 beginning on a specified date, requiring that the 5 Department of Healths rules require that newborns be 6 screened for Duchenne muscular dystrophy at the 7 appropriate age; providing an effective date. 8 9 Be It Enacted by the Legislature of the State of Florida: 10 11 Section 1.Paragraph (a) of subsection (2) of section 12 383.14, Florida Statutes, is amended to read: 13 383.14Screening for metabolic disorders, other hereditary 14 and congenital disorders, and environmental risk factors. 15 (2)RULES. 16 (a)After consultation with the Genetics and Newborn 17 Screening Advisory Council, the department shall adopt and 18 enforce rules requiring that every newborn in this state shall: 19 1.Before becoming 1 week of age, have a blood specimen 20 collected for newborn screenings; 21 2.Be tested for any condition included on the federal 22 Recommended Uniform Screening Panel which the council advises 23 the department should be included under the states screening 24 program. After the council recommends that a condition be 25 included, the department shall submit a legislative budget 26 request to seek an appropriation to add testing of the condition 27 to the newborn screening program. The department shall expand 28 statewide screening of newborns to include screening for such 29 conditions within 18 months after the council renders such 30 advice, if a test approved by the United States Food and Drug 31 Administration or a test offered by an alternative vendor is 32 available. If such a test is not available within 18 months 33 after the council makes its recommendation, the department shall 34 implement such screening as soon as a test offered by the United 35 States Food and Drug Administration or by an alternative vendor 36 is available; and 37 3.At the appropriate age, be tested for such other 38 metabolic diseases and hereditary or congenital disorders as the 39 department may deem necessary. Subject to legislative 40 appropriation, beginning January 1, 2027, the rules must require 41 that newborns be screened for Duchenne muscular dystrophy at the 42 appropriate age. 43 Section 2.This act shall take effect July 1, 2025.
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