103RD GENERAL ASSEMBLY State of Illinois 2023 and 2024 HB4261 Introduced , by Rep. Kevin John Olickal SYNOPSIS AS INTRODUCED: 20 ILCS 105/4.04 from Ch. 23, par. 6104.04 Amends the Illinois Act on Aging. Provides that all records containing resident, participant, and complainant information collected by the Long Term Care Ombudsman Program are confidential and shall not be disclosed outside of the program without a lawful subpoena or the permission of the State Ombudsman. Permits the State Ombudsman, at his or her discretion, to disclose resident or participant information if it is in the best interest of the resident or participant. Requires the Department on Aging to establish procedures for the disclosure of program records by the State Ombudsman. Provides that the procedures shall prohibit disclosure of a resident's identity in case records unless the resident gives consent. LRB103 35291 KTG 65325 b A BILL FOR 103RD GENERAL ASSEMBLY State of Illinois 2023 and 2024 HB4261 Introduced , by Rep. Kevin John Olickal SYNOPSIS AS INTRODUCED: 20 ILCS 105/4.04 from Ch. 23, par. 6104.04 20 ILCS 105/4.04 from Ch. 23, par. 6104.04 Amends the Illinois Act on Aging. Provides that all records containing resident, participant, and complainant information collected by the Long Term Care Ombudsman Program are confidential and shall not be disclosed outside of the program without a lawful subpoena or the permission of the State Ombudsman. Permits the State Ombudsman, at his or her discretion, to disclose resident or participant information if it is in the best interest of the resident or participant. Requires the Department on Aging to establish procedures for the disclosure of program records by the State Ombudsman. Provides that the procedures shall prohibit disclosure of a resident's identity in case records unless the resident gives consent. LRB103 35291 KTG 65325 b LRB103 35291 KTG 65325 b A BILL FOR 103RD GENERAL ASSEMBLY State of Illinois 2023 and 2024 HB4261 Introduced , by Rep. Kevin John Olickal SYNOPSIS AS INTRODUCED: 20 ILCS 105/4.04 from Ch. 23, par. 6104.04 20 ILCS 105/4.04 from Ch. 23, par. 6104.04 20 ILCS 105/4.04 from Ch. 23, par. 6104.04 Amends the Illinois Act on Aging. Provides that all records containing resident, participant, and complainant information collected by the Long Term Care Ombudsman Program are confidential and shall not be disclosed outside of the program without a lawful subpoena or the permission of the State Ombudsman. Permits the State Ombudsman, at his or her discretion, to disclose resident or participant information if it is in the best interest of the resident or participant. Requires the Department on Aging to establish procedures for the disclosure of program records by the State Ombudsman. Provides that the procedures shall prohibit disclosure of a resident's identity in case records unless the resident gives consent. LRB103 35291 KTG 65325 b LRB103 35291 KTG 65325 b LRB103 35291 KTG 65325 b A BILL FOR HB4261LRB103 35291 KTG 65325 b HB4261 LRB103 35291 KTG 65325 b HB4261 LRB103 35291 KTG 65325 b 1 AN ACT concerning State government. 2 Be it enacted by the People of the State of Illinois, 3 represented in the General Assembly: 4 Section 5. The Illinois Act on the Aging is amended by 5 changing Section 4.04 as follows: 6 (20 ILCS 105/4.04) (from Ch. 23, par. 6104.04) 7 (Text of Section after amendment by P.A. 103-329) 8 Sec. 4.04. Long Term Care Ombudsman Program. The purpose 9 of the Long Term Care Ombudsman Program is to ensure that older 10 persons and persons with disabilities receive quality 11 services. This is accomplished by providing advocacy services 12 for residents of long term care facilities and participants 13 receiving home care and community-based care. Managed care is 14 increasingly becoming the vehicle for delivering health and 15 long-term services and supports to seniors and persons with 16 disabilities, including dual eligible participants. The 17 additional ombudsman authority will allow advocacy services to 18 be provided to Illinois participants for the first time and 19 will produce a cost savings for the State of Illinois by 20 supporting the rebalancing efforts of the Patient Protection 21 and Affordable Care Act. 22 (a) Long Term Care Ombudsman Program. The Department shall 23 establish a Long Term Care Ombudsman Program, through the 103RD GENERAL ASSEMBLY State of Illinois 2023 and 2024 HB4261 Introduced , by Rep. Kevin John Olickal SYNOPSIS AS INTRODUCED: 20 ILCS 105/4.04 from Ch. 23, par. 6104.04 20 ILCS 105/4.04 from Ch. 23, par. 6104.04 20 ILCS 105/4.04 from Ch. 23, par. 6104.04 Amends the Illinois Act on Aging. Provides that all records containing resident, participant, and complainant information collected by the Long Term Care Ombudsman Program are confidential and shall not be disclosed outside of the program without a lawful subpoena or the permission of the State Ombudsman. Permits the State Ombudsman, at his or her discretion, to disclose resident or participant information if it is in the best interest of the resident or participant. Requires the Department on Aging to establish procedures for the disclosure of program records by the State Ombudsman. Provides that the procedures shall prohibit disclosure of a resident's identity in case records unless the resident gives consent. LRB103 35291 KTG 65325 b LRB103 35291 KTG 65325 b LRB103 35291 KTG 65325 b A BILL FOR 20 ILCS 105/4.04 from Ch. 23, par. 6104.04 LRB103 35291 KTG 65325 b HB4261 LRB103 35291 KTG 65325 b HB4261- 2 -LRB103 35291 KTG 65325 b HB4261 - 2 - LRB103 35291 KTG 65325 b HB4261 - 2 - LRB103 35291 KTG 65325 b 1 Office of State Long Term Care Ombudsman ("the Office"), in 2 accordance with the provisions of the Older Americans Act of 3 1965, as now or hereafter amended. The Long Term Care 4 Ombudsman Program is authorized, subject to sufficient 5 appropriations, to advocate on behalf of older persons and 6 persons with disabilities residing in their own homes or 7 community-based settings, relating to matters which may 8 adversely affect the health, safety, welfare, or rights of 9 such individuals. 10 (b) Definitions. As used in this Section, unless the 11 context requires otherwise: 12 (1) "Access" means the right to: 13 (i) Enter any long term care facility or assisted 14 living or shared housing establishment or supportive 15 living facility; 16 (ii) Communicate privately and without restriction 17 with any resident, regardless of age, who consents to 18 the communication; 19 (iii) Seek consent to communicate privately and 20 without restriction with any participant or resident, 21 regardless of age; 22 (iv) Inspect and copy the clinical and other 23 records of a participant or resident, regardless of 24 age, with the express written consent of the 25 participant or resident; 26 (v) Observe all areas of the long term care HB4261 - 2 - LRB103 35291 KTG 65325 b HB4261- 3 -LRB103 35291 KTG 65325 b HB4261 - 3 - LRB103 35291 KTG 65325 b HB4261 - 3 - LRB103 35291 KTG 65325 b 1 facility or supportive living facilities, assisted 2 living or shared housing establishment except the 3 living area of any resident who protests the 4 observation; and 5 (vi) Subject to permission of the participant or 6 resident requesting services or his or her 7 representative, enter a home or community-based 8 setting. 9 (2) "Long Term Care Facility" means (i) any facility 10 as defined by Section 1-113 of the Nursing Home Care Act, 11 as now or hereafter amended; (ii) any skilled nursing 12 facility or a nursing facility which meets the 13 requirements of Section 1819(a), (b), (c), and (d) or 14 Section 1919(a), (b), (c), and (d) of the Social Security 15 Act, as now or hereafter amended (42 U.S.C. 1395i-3(a), 16 (b), (c), and (d) and 42 U.S.C. 1396r(a), (b), (c), and 17 (d)); (iii) any facility as defined by Section 1-113 of 18 the ID/DD Community Care Act, as now or hereafter amended; 19 (iv) any facility as defined by Section 1-113 of MC/DD 20 Act, as now or hereafter amended; and (v) any facility 21 licensed under Section 4-105 or 4-201 of the Specialized 22 Mental Health Rehabilitation Act of 2013, as now or 23 hereafter amended. 24 (2.5) "Assisted living establishment" and "shared 25 housing establishment" have the meanings given those terms 26 in Section 10 of the Assisted Living and Shared Housing HB4261 - 3 - LRB103 35291 KTG 65325 b HB4261- 4 -LRB103 35291 KTG 65325 b HB4261 - 4 - LRB103 35291 KTG 65325 b HB4261 - 4 - LRB103 35291 KTG 65325 b 1 Act. 2 (2.7) "Supportive living facility" means a facility 3 established under Section 5-5.01a of the Illinois Public 4 Aid Code. 5 (2.8) "Community-based setting" means any place of 6 abode other than an individual's private home. 7 (3) "State Long Term Care Ombudsman" means any person 8 employed by the Department to fulfill the requirements of 9 the Office of State Long Term Care Ombudsman as required 10 under the Older Americans Act of 1965, as now or hereafter 11 amended, and Departmental policy. 12 (3.1) "Ombudsman" means any designated representative 13 of the State Long Term Care Ombudsman Program; provided 14 that the representative, whether he is paid for or 15 volunteers his ombudsman services, shall be qualified and 16 designated by the Office to perform the duties of an 17 ombudsman as specified by the Department in rules and in 18 accordance with the provisions of the Older Americans Act 19 of 1965, as now or hereafter amended. 20 (4) "Participant" means an older person aged 60 or 21 over or an adult with a disability aged 18 through 59 who 22 is eligible for services under any of the following: 23 (i) A medical assistance waiver administered by 24 the State. 25 (ii) A managed care organization providing care 26 coordination and other services to seniors and persons HB4261 - 4 - LRB103 35291 KTG 65325 b HB4261- 5 -LRB103 35291 KTG 65325 b HB4261 - 5 - LRB103 35291 KTG 65325 b HB4261 - 5 - LRB103 35291 KTG 65325 b 1 with disabilities. 2 (5) "Resident" means an older person aged 60 or over 3 or an adult with a disability aged 18 through 59 who 4 resides in a long-term care facility. 5 (c) Ombudsman; rules. The Office of State Long Term Care 6 Ombudsman shall be composed of at least one full-time 7 ombudsman and shall include a system of designated regional 8 long term care ombudsman programs. Each regional program shall 9 be designated by the State Long Term Care Ombudsman as a 10 subdivision of the Office and any representative of a regional 11 program shall be treated as a representative of the Office. 12 The Department, in consultation with the Office, shall 13 promulgate administrative rules in accordance with the 14 provisions of the Older Americans Act of 1965, as now or 15 hereafter amended, to establish the responsibilities of the 16 Department and the Office of State Long Term Care Ombudsman 17 and the designated regional Ombudsman programs. The 18 administrative rules shall include the responsibility of the 19 Office and designated regional programs to investigate and 20 resolve complaints made by or on behalf of residents of long 21 term care facilities, supportive living facilities, and 22 assisted living and shared housing establishments, and 23 participants residing in their own homes or community-based 24 settings, including the option to serve residents and 25 participants under the age of 60, relating to actions, 26 inaction, or decisions of providers, or their representatives, HB4261 - 5 - LRB103 35291 KTG 65325 b HB4261- 6 -LRB103 35291 KTG 65325 b HB4261 - 6 - LRB103 35291 KTG 65325 b HB4261 - 6 - LRB103 35291 KTG 65325 b 1 of such facilities and establishments, of public agencies, or 2 of social services agencies, which may adversely affect the 3 health, safety, welfare, or rights of such residents and 4 participants. The Office and designated regional programs may 5 represent all residents and participants, but are not required 6 by this Act to represent persons under 60 years of age, except 7 to the extent required by federal law. When necessary and 8 appropriate, representatives of the Office shall refer 9 complaints to the appropriate regulatory State agency. The 10 Department, in consultation with the Office, shall cooperate 11 with the Department of Human Services and other State agencies 12 in providing information and training to designated regional 13 long term care ombudsman programs about the appropriate 14 assessment and treatment (including information about 15 appropriate supportive services, treatment options, and 16 assessment of rehabilitation potential) of the participants 17 they serve. 18 The State Long Term Care Ombudsman and all other 19 ombudsmen, as defined in paragraph (3.1) of subsection (b) 20 must submit to background checks under the Health Care Worker 21 Background Check Act and receive training, as prescribed by 22 the Illinois Department on Aging, before visiting facilities, 23 private homes, or community-based settings. The training must 24 include information specific to assisted living 25 establishments, supportive living facilities, shared housing 26 establishments, private homes, and community-based settings HB4261 - 6 - LRB103 35291 KTG 65325 b HB4261- 7 -LRB103 35291 KTG 65325 b HB4261 - 7 - LRB103 35291 KTG 65325 b HB4261 - 7 - LRB103 35291 KTG 65325 b 1 and to the rights of residents and participants guaranteed 2 under the corresponding Acts and administrative rules. 3 (c-5) Consumer Choice Information Reports. The Office 4 shall: 5 (1) In collaboration with the Attorney General, create 6 a Consumer Choice Information Report form to be completed 7 by all licensed long term care facilities to aid 8 Illinoisans and their families in making informed choices 9 about long term care. The Office shall create a Consumer 10 Choice Information Report for each type of licensed long 11 term care facility. The Office shall collaborate with the 12 Attorney General and the Department of Human Services to 13 create a Consumer Choice Information Report form for 14 facilities licensed under the ID/DD Community Care Act or 15 the MC/DD Act. 16 (2) Develop a database of Consumer Choice Information 17 Reports completed by licensed long term care facilities 18 that includes information in the following consumer 19 categories: 20 (A) Medical Care, Services, and Treatment. 21 (B) Special Services and Amenities. 22 (C) Staffing. 23 (D) Facility Statistics and Resident Demographics. 24 (E) Ownership and Administration. 25 (F) Safety and Security. 26 (G) Meals and Nutrition. HB4261 - 7 - LRB103 35291 KTG 65325 b HB4261- 8 -LRB103 35291 KTG 65325 b HB4261 - 8 - LRB103 35291 KTG 65325 b HB4261 - 8 - LRB103 35291 KTG 65325 b 1 (H) Rooms, Furnishings, and Equipment. 2 (I) Family, Volunteer, and Visitation Provisions. 3 (3) Make this information accessible to the public, 4 including on the Internet by means of a hyperlink on the 5 Office's World Wide Web home page. Information about 6 facilities licensed under the ID/DD Community Care Act or 7 the MC/DD Act shall be made accessible to the public by the 8 Department of Human Services, including on the Internet by 9 means of a hyperlink on the Department of Human Services' 10 "For Customers" website. 11 (4) Have the authority, with the Attorney General, to 12 verify that information provided by a facility is 13 accurate. 14 (5) Request a new report from any licensed facility 15 whenever it deems necessary. 16 (6) Include in the Office's Consumer Choice 17 Information Report for each type of licensed long term 18 care facility additional information on each licensed long 19 term care facility in the State of Illinois, including 20 information regarding each facility's compliance with the 21 relevant State and federal statutes, rules, and standards; 22 customer satisfaction surveys; and information generated 23 from quality measures developed by the Centers for 24 Medicare and Medicaid Services. 25 (d) Access and visitation rights. 26 (1) In accordance with subparagraphs (A) and (E) of HB4261 - 8 - LRB103 35291 KTG 65325 b HB4261- 9 -LRB103 35291 KTG 65325 b HB4261 - 9 - LRB103 35291 KTG 65325 b HB4261 - 9 - LRB103 35291 KTG 65325 b 1 paragraph (3) of subsection (c) of Section 1819 and 2 subparagraphs (A) and (E) of paragraph (3) of subsection 3 (c) of Section 1919 of the Social Security Act, as now or 4 hereafter amended (42 U.S.C. 1395i-3 (c)(3)(A) and (E) and 5 42 U.S.C. 1396r (c)(3)(A) and (E)), and Section 712 of the 6 Older Americans Act of 1965, as now or hereafter amended 7 (42 U.S.C. 3058f), a long term care facility, supportive 8 living facility, assisted living establishment, and shared 9 housing establishment must: 10 (i) permit immediate access to any resident, 11 regardless of age, by a designated ombudsman; 12 (ii) permit representatives of the Office, with 13 the permission of the resident, the resident's legal 14 representative, or the resident's legal guardian, to 15 examine and copy a resident's clinical and other 16 records, regardless of the age of the resident, and if 17 a resident is unable to consent to such review, and has 18 no legal guardian, permit representatives of the 19 Office appropriate access, as defined by the 20 Department, in consultation with the Office, in 21 administrative rules, to the resident's records; and 22 (iii) permit a representative of the Program to 23 communicate privately and without restriction with any 24 participant who consents to the communication 25 regardless of the consent of, or withholding of 26 consent by, a legal guardian or an agent named in a HB4261 - 9 - LRB103 35291 KTG 65325 b HB4261- 10 -LRB103 35291 KTG 65325 b HB4261 - 10 - LRB103 35291 KTG 65325 b HB4261 - 10 - LRB103 35291 KTG 65325 b 1 power of attorney executed by the participant. 2 (2) Each long term care facility, supportive living 3 facility, assisted living establishment, and shared 4 housing establishment shall display, in multiple, 5 conspicuous public places within the facility accessible 6 to both visitors and residents and in an easily readable 7 format, the address and phone number of the Office of the 8 Long Term Care Ombudsman, in a manner prescribed by the 9 Office. 10 (e) Immunity. An ombudsman or any representative of the 11 Office participating in the good faith performance of his or 12 her official duties shall have immunity from any liability 13 (civil, criminal or otherwise) in any proceedings (civil, 14 criminal or otherwise) brought as a consequence of the 15 performance of his official duties. 16 (f) Business offenses. 17 (1) No person shall: 18 (i) Intentionally prevent, interfere with, or 19 attempt to impede in any way any representative of the 20 Office in the performance of his official duties under 21 this Act and the Older Americans Act of 1965; or 22 (ii) Intentionally retaliate, discriminate 23 against, or effect reprisals against any long term 24 care facility resident or employee for contacting or 25 providing information to any representative of the 26 Office. HB4261 - 10 - LRB103 35291 KTG 65325 b HB4261- 11 -LRB103 35291 KTG 65325 b HB4261 - 11 - LRB103 35291 KTG 65325 b HB4261 - 11 - LRB103 35291 KTG 65325 b 1 (2) A violation of this Section is a business offense, 2 punishable by a fine not to exceed $501. 3 (3) The State Long Term Care Ombudsman shall notify 4 the State's Attorney of the county in which the long term 5 care facility, supportive living facility, or assisted 6 living or shared housing establishment is located, or the 7 Attorney General, of any violations of this Section. 8 (g) Confidentiality of records and identities. All records 9 containing resident, participant, and complainant information 10 collected by the Long Term Care Ombudsman Program are 11 confidential and shall not be disclosed outside of the program 12 without a lawful subpoena or the permission of the State 13 Ombudsman. The State Ombudsman, at his or her discretion, may 14 disclose resident or participant information if it is in the 15 best interest of the resident or participant. The Department 16 shall establish procedures for the disclosure of program 17 records by the State Ombudsman. The or the regional ombudsmen 18 entities of files maintained by the program. The procedures 19 shall provide that the files and records may be disclosed only 20 at the discretion of the State Long Term Care Ombudsman or the 21 person designated by the State Ombudsman to disclose the files 22 and records, and the procedures shall prohibit the disclosure 23 of the identity of any complainant, resident, participant, 24 witness, or employee of a long term care provider in case 25 records unless: 26 (1) the complainant, resident, participant, witness, HB4261 - 11 - LRB103 35291 KTG 65325 b HB4261- 12 -LRB103 35291 KTG 65325 b HB4261 - 12 - LRB103 35291 KTG 65325 b HB4261 - 12 - LRB103 35291 KTG 65325 b 1 or employee of a long term care provider or his or her 2 legal representative consents to the disclosure and the 3 consent is in writing; 4 (2) the complainant, resident, participant, witness, 5 or employee of a long term care provider or the resident or 6 participant's legal representative gives consent orally; 7 and the consent is documented contemporaneously in writing 8 in accordance with such requirements as the Department 9 shall establish; or 10 (3) the disclosure is required by court order. 11 (h) Legal representation. The Attorney General shall 12 provide legal representation to any representative of the 13 Office against whom suit or other legal action is brought in 14 connection with the performance of the representative's 15 official duties, in accordance with the State Employee 16 Indemnification Act. 17 (i) Treatment by prayer and spiritual means. Nothing in 18 this Act shall be construed to authorize or require the 19 medical supervision, regulation or control of remedial care or 20 treatment of any resident in a long term care facility 21 operated exclusively by and for members or adherents of any 22 church or religious denomination the tenets and practices of 23 which include reliance solely upon spiritual means through 24 prayer for healing. 25 (j) The Long Term Care Ombudsman Fund is created as a 26 special fund in the State treasury to receive moneys for the HB4261 - 12 - LRB103 35291 KTG 65325 b HB4261- 13 -LRB103 35291 KTG 65325 b HB4261 - 13 - LRB103 35291 KTG 65325 b HB4261 - 13 - LRB103 35291 KTG 65325 b HB4261 - 13 - LRB103 35291 KTG 65325 b