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1 HOUSE RESOLUTION
2 WHEREAS, The month of September each year is recognized as
3 National Scarring Alopecia Awareness Month to increase
4 knowledge and awareness of scarring alopecia; and
5 WHEREAS, Scarring (cicatricial) alopecia (hair loss) is
6 still not well-known among patients and the public; many
7 patients and the public do not know the difference between
8 non-scarring alopecia and scarring alopecia; scarring alopecia
9 encompasses a group of hair loss disorders that causes
10 inflammation, and the hair follicles are irreversibly
11 destroyed (permanently damaged) and replaced by fibrous
12 tissue; there is no way to regrow the hair that is already lost
13 and permanently damaged; and
14 WHEREAS, Within the alopecia population, the prevalence of
15 scarring alopecia is believed to be approximately 7%, but not
16 enough epidemiological studies have been performed to
17 determine the incidence of scarring (cicatricial) alopecias;
18 clinically, it is defined as one or more patches of permanent
19 alopecia on the scalp; these may remain discrete or coalesce
20 to produce a near total alopecia; within the patches, the skin
21 is bald, smooth, and shiny, and pores are absent because of a
22 complete loss of follicular openings; and
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1 WHEREAS, Scarring hair loss is a traumatizing experience
2 and may negatively impact a hair loss patient's quality of
3 life (QOL); permanent hair loss can be disfiguring and damage
4 an affected individual's self-esteem; currently, there are not
5 any approved Federal Drug Administration (FDA) drugs for
6 scarring (cicatricial) alopecia patients, which often leaves
7 patients feeling defeated and hopeless; and
8 WHEREAS, Bringing awareness to this disease can help those
9 experiencing scarring hair loss remain confident and positive,
10 despite their condition; hair loss often carries a stigma that
11 can only be dispelled with education and knowledge, and for
12 many with this disease, the emotional aspect of living with
13 hair loss can be the greatest challenge; and
14 WHEREAS, National Scarring Alopecia Awareness Month serves
15 as a time to focus on educating hair stylists, medical
16 professionals, undiagnosed patients, and the general
17 population about this traumatic, scarring, and often painful
18 disease; and
19 WHEREAS, National Scarring Alopecia Awareness Month serves
20 as a spark to increase advocacy efforts for scarring alopecia
21 patients and to underscore the importance of understanding
22 this rare disease; therefore, be it
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1 RESOLVED, BY THE HOUSE OF REPRESENTATIVES OF THE ONE
2 HUNDRED THIRD GENERAL ASSEMBLY OF THE STATE OF ILLINOIS, that
3 we recognize the month of September 2024 as being National
4 Scarring Alopecia Awareness Month; and be it further
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