103RD GENERAL ASSEMBLY State of Illinois 2023 and 2024 SB3277 Introduced 2/6/2024, by Sen. Tom Bennett SYNOPSIS AS INTRODUCED: New Act20 ILCS 2310/2310-730 new Amends the Department of Public Health Powers and Duties Law of the Civil Administrative Code of Illinois. Directs the Department of Public Health, in conjunction with others, to develop mandatory protocols and best practices for providing the necessary medical guidance for Duchenne muscular dystrophy. Provides that the protocols and best practices developed by the Department shall: (i) be published on a designated and publicly accessible Internet website; (ii) include up-to-date information about Duchenne muscular dystrophy; (iii) reference peer-reviewed scientific research articles; (iv) incorporate guidance and recommendations from the National Institutes of Health and any other persons or entities determined by the Department to have particular expertise in Duchenne muscular dystrophy; and (v) be distributed to physicians, other health care professionals and providers, and persons subject to Duchenne muscular dystrophy. Provides that the Department shall prepare a report of all efforts undertaken by the Department under the Act. Provides that the report under this Act shall be posted on the Department's Internet website and distributed to local health departments and to any other facilities as determined by the Department. LRB103 36743 CES 66853 b A BILL FOR 103RD GENERAL ASSEMBLY State of Illinois 2023 and 2024 SB3277 Introduced 2/6/2024, by Sen. Tom Bennett SYNOPSIS AS INTRODUCED: New Act20 ILCS 2310/2310-730 new New Act 20 ILCS 2310/2310-730 new Amends the Department of Public Health Powers and Duties Law of the Civil Administrative Code of Illinois. Directs the Department of Public Health, in conjunction with others, to develop mandatory protocols and best practices for providing the necessary medical guidance for Duchenne muscular dystrophy. Provides that the protocols and best practices developed by the Department shall: (i) be published on a designated and publicly accessible Internet website; (ii) include up-to-date information about Duchenne muscular dystrophy; (iii) reference peer-reviewed scientific research articles; (iv) incorporate guidance and recommendations from the National Institutes of Health and any other persons or entities determined by the Department to have particular expertise in Duchenne muscular dystrophy; and (v) be distributed to physicians, other health care professionals and providers, and persons subject to Duchenne muscular dystrophy. Provides that the Department shall prepare a report of all efforts undertaken by the Department under the Act. Provides that the report under this Act shall be posted on the Department's Internet website and distributed to local health departments and to any other facilities as determined by the Department. LRB103 36743 CES 66853 b LRB103 36743 CES 66853 b A BILL FOR
103RD GENERAL ASSEMBLY State of Illinois 2023 and 2024 SB3277 Introduced 2/6/2024, by Sen. Tom Bennett SYNOPSIS AS INTRODUCED:
New Act20 ILCS 2310/2310-730 new New Act 20 ILCS 2310/2310-730 new
New Act
20 ILCS 2310/2310-730 new
Amends the Department of Public Health Powers and Duties Law of the Civil Administrative Code of Illinois. Directs the Department of Public Health, in conjunction with others, to develop mandatory protocols and best practices for providing the necessary medical guidance for Duchenne muscular dystrophy. Provides that the protocols and best practices developed by the Department shall: (i) be published on a designated and publicly accessible Internet website; (ii) include up-to-date information about Duchenne muscular dystrophy; (iii) reference peer-reviewed scientific research articles; (iv) incorporate guidance and recommendations from the National Institutes of Health and any other persons or entities determined by the Department to have particular expertise in Duchenne muscular dystrophy; and (v) be distributed to physicians, other health care professionals and providers, and persons subject to Duchenne muscular dystrophy. Provides that the Department shall prepare a report of all efforts undertaken by the Department under the Act. Provides that the report under this Act shall be posted on the Department's Internet website and distributed to local health departments and to any other facilities as determined by the Department.
LRB103 36743 CES 66853 b LRB103 36743 CES 66853 b
LRB103 36743 CES 66853 b
A BILL FOR
SB3277LRB103 36743 CES 66853 b SB3277 LRB103 36743 CES 66853 b
SB3277 LRB103 36743 CES 66853 b
1 AN ACT concerning health.
2 Be it enacted by the People of the State of Illinois,
3 represented in the General Assembly:
4 Section 1. References to Act. This Act may be referred to
5 as the Duchenne Muscular Dystrophy Act.
6 Section 5. The Department of Public Health Powers and
7 Duties Law of the Civil Administrative Code of Illinois is
8 amended by adding Section 2310-730 as follows:
9 (20 ILCS 2310/2310-730 new)
10 Sec. 2310-730. Duchenne Muscular Dystrophy Awareness
11 Program.
12 (a) The Department of Public Health, in conjunction with
13 experts in the field of Duchenne muscular dystrophy, shall
14 develop mandatory protocols and best practices for providing
15 the necessary medical guidance for Duchenne muscular dystrophy
16 in Illinois.
17 (b) To raise awareness about Duchenne muscular dystrophy,
18 the protocols and best practices developed by the Department
19 under subsection (a):
20 (1) shall be published on a designated and publicly
21 accessible webpage;
22 (2) shall include up-to-date information about
103RD GENERAL ASSEMBLY State of Illinois 2023 and 2024 SB3277 Introduced 2/6/2024, by Sen. Tom Bennett SYNOPSIS AS INTRODUCED:
New Act20 ILCS 2310/2310-730 new New Act 20 ILCS 2310/2310-730 new
New Act
20 ILCS 2310/2310-730 new
Amends the Department of Public Health Powers and Duties Law of the Civil Administrative Code of Illinois. Directs the Department of Public Health, in conjunction with others, to develop mandatory protocols and best practices for providing the necessary medical guidance for Duchenne muscular dystrophy. Provides that the protocols and best practices developed by the Department shall: (i) be published on a designated and publicly accessible Internet website; (ii) include up-to-date information about Duchenne muscular dystrophy; (iii) reference peer-reviewed scientific research articles; (iv) incorporate guidance and recommendations from the National Institutes of Health and any other persons or entities determined by the Department to have particular expertise in Duchenne muscular dystrophy; and (v) be distributed to physicians, other health care professionals and providers, and persons subject to Duchenne muscular dystrophy. Provides that the Department shall prepare a report of all efforts undertaken by the Department under the Act. Provides that the report under this Act shall be posted on the Department's Internet website and distributed to local health departments and to any other facilities as determined by the Department.
LRB103 36743 CES 66853 b LRB103 36743 CES 66853 b
LRB103 36743 CES 66853 b
A BILL FOR
New Act
20 ILCS 2310/2310-730 new
LRB103 36743 CES 66853 b
SB3277 LRB103 36743 CES 66853 b
SB3277- 2 -LRB103 36743 CES 66853 b SB3277 - 2 - LRB103 36743 CES 66853 b
SB3277 - 2 - LRB103 36743 CES 66853 b
SB3277 - 2 - LRB103 36743 CES 66853 b