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1 HOUSE RESOLUTION
2 WHEREAS, Prader-Willi syndrome is a complex genetic
3 disorder that occurs in approximately 1 out of every 15,000
4 births and the most commonly known genetic cause of
5 life-threatening obesity; and
6 WHEREAS, Prader-Willi syndrome affects males and females
7 with equal frequency and affects all races and ethnicities;
8 and
9 WHEREAS, Prader-Willi syndrome causes an extreme and
10 insatiable appetite, often resulting in morbid obesity, which
11 is the major cause of death for individuals with the syndrome;
12 and
13 WHEREAS, Prader-Willi syndrome also causes cognitive and
14 learning disabilities as well as behavioral difficulties, such
15 as obsessive-compulsive disorder and struggles with
16 controlling emotions; and
17 WHEREAS, The hunger, metabolic, and behavioral
18 characteristics of Prader-Willi syndrome force affected
19 individuals to require constant and lifelong supervision in a
20 controlled environment; and
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1 WHEREAS, Studies have shown that there is a high morbidity
2 and mortality rate for individuals with Prader-Willi syndrome;
3 and
4 WHEREAS, There is no known cure for Prader-Willi syndrome;
5 and
6 WHEREAS, Early diagnosis of Prader-Willi syndrome allows
7 families to access treatment, intervention services, and
8 support from health professionals, advocacy organizations, and
9 other families who are dealing with the syndrome; and
10 WHEREAS, Recently discovered treatments, such as human
11 growth hormone, are improving the quality of life for
12 individuals with the syndrome and offer new hope to families,
13 but many difficult symptoms associated with Prader-Willi
14 syndrome remain untreated; and
15 WHEREAS, Increased research into Prader-Willi syndrome can
16 lead to a better understanding of the disorder, more effective
17 treatments, and an eventual cure for Prader-Willi syndrome;
18 and
19 WHEREAS, Increased research into Prader-Willi syndrome is
20 likely to improve our understanding of common public health
21 concerns, including childhood obesity and mental health; and
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1 WHEREAS, Advocacy organizations have designated May as
2 National Prader-Willi Syndrome Awareness Month; therefore, be
3 it
4 RESOLVED, BY THE HOUSE OF REPRESENTATIVES OF THE ONE
5 HUNDRED FOURTH GENERAL ASSEMBLY OF THE STATE OF ILLINOIS, that
6 we declare May 2025 as Prader-Willi Syndrome Awareness Month
7 in the State of Illinois; and be it further
8 RESOLVED, That we express our support for raising
9 awareness and educating the public about Prader-Willi Syndrome
10 and increasing research and funding into the causes and
11 treatments of the disease.
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