As Amended by House Committee
Session of 2025
HOUSE BILL No. 2307
By Committee on Health and Human Services
Requested by Representative Howell on behalf of Kansans for Life
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AN ACT concerning health and healthcare; relating to prenatally and
postnatally diagnosed conditions; transferring the power to authorize
and oversee certain activities regarding prenatal and postnatal
diagnosed conditions awareness programs from the department of
health and environment to the Kansas council on developmental
disabilities; amending K.S.A. 65-1,259 and repealing the existing
section.
Be it enacted by the Legislature of the State of Kansas:
New Section 1. (a) Authorization and oversight of prenatally and
postnatally diagnosed conditions awareness programs are hereby
transferred from the department of health and environment to the Kansas
council on developmental disabilities. The powers, duties and functions of
the department of health and environment related to prenatally and
postnatally diagnosed conditions awareness programs as provided in
K.S.A. 65-1,259, and amendments thereto, are hereby transferred and
imposed upon the Kansas council on developmental disabilities.
(b) Whenever the department of health and environment, the
secretary of health and environment, or words of like effect, are referred to
or designated by statute, contract or other document, and such reference or
designation is in regard to any function, power or duty related to prenatally
and postnatally diagnosed conditions awareness programs as provided in
K.S.A. 65-1,259, and amendments thereto, such reference or designation
shall be deemed to apply to the Kansas council on developmental
disabilities.
(c) All rules and regulations, orders and directives of the secretary of
health and environment related to prenatally and postnatally diagnosed
conditions awareness programs that are in effect pursuant to K.S.A. 65-
1,259, and amendments thereto on the effective date of this act shall
continue to be effective and shall be deemed to be rules and regulations,
orders and directives of the chairperson of the Kansas council on
developmental disabilities until amended, revoked or nullified pursuant to
law.
Sec. 2. K.S.A. 65-1,259 is hereby amended to read as follows: 65-
1,259. (a) The secretary of the department of health and environment may
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Kansas council on developmental disabilities shall authorize and oversee
certain activities, including the awarding of grants, contracts or
cooperative agreements to eligible entities to:
(1) Collect, synthesize and disseminate current evidence-based
information relating to Down syndrome or other prenatally or postnatally
diagnosed conditions; and
(2) coordinate the provision of, and access to, new or existing
supportive services for women and the spouses of such women who
receive a positive diagnosis of Down syndrome or other prenatally or
postnatally diagnosed conditions for their child, including, but not limited
to:
(A) The establishment of a resource telephone hotline or website
accessible to women and the spouses of such women who receive a
positive diagnosis of Down syndrome or other prenatally or postnatally
diagnosed conditions for their child;
(B) the development of outreach programs to new and expecting
parents to provide them with up-to-date information on the range of
outcomes for individuals living with the diagnosed condition, including
physical, developmental, educational and psychosocial outcomes;
(C) the development of local peer support programs to effectively
serve women and the spouses of such women who receive a positive
diagnosis of Down syndrome or other prenatally or postnatally diagnosed
conditions for their child;
(D) the establishment of a network of local registries of families
willing to adopt newborns with Down syndrome or other prenatally or
postnatally diagnosed conditions, and links to adoption agencies willing to
place babies with Down syndrome or other prenatally or postnatally
diagnosed conditions with families willing to adopt; and
(E) the establishment of awareness and education programs for health
care providers who provide, interpret or inform parents of the results of
prenatal tests for Down syndrome or other prenatally or postnatally
diagnosed conditions to patients.
(b) A grantee under this section shall make the following available to
health care providers of parents who receive a prenatal or postnatal
diagnosis for their child:
(1) Up-to-date, evidence-based, written information concerning the
range of outcomes for individuals living with the diagnosed condition,
including physical, developmental, educational and psychosocial
outcomes; and
(2) contact information regarding support services, including
information hotlines and websites specific to Down syndrome or other
prenatally or postnatally diagnosed conditions, resource centers or
clearinghouses, local peer support groups and other education and support
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programs.
(c) Information provided under this subsection shall be culturally and
linguistically appropriate as needed by women and the spouses of such
women who receive a positive diagnosis for Down syndrome or other
prenatally or postnatally diagnosed conditions for their child, and
approved by the secretary Kansas council on developmental disabilities.
(d) In distributing funds under this section, the secretary Kansas
council on developmental disabilities shall place an emphasis on funding
partnerships between health care professional groups and disability
advocacy organizations.
(e) On or before January 12, 2015 11, 2027, the secretary Kansas
council on developmental disabilities shall prepare and submit a report to
the governor and the legislature on the grants, contracts and cooperative
agreements made under this section and the effectiveness of the programs
supported by such grants, contracts and cooperative agreements.
(f) As used in this section:
(1) "Down syndrome" means a chromosomal disorder caused by an
error in cell division that results in the presence of an extra whole or
partial copy of chromosome 21.
(2) "Eligible entity" means the state, or any political subdivision
thereof, or any other entity with appropriate expertise in prenatally and
postnatally diagnosed conditions, as determined by the secretary Kansas
council on developmental disabilities.
(3) "Health care provider" shall have the same meaning means the
same as that term is defined in K.S.A. 40-3401, and amendments thereto.
(4) "Postnatally diagnosed condition" means any health condition
identified during the 12-month period beginning at birth.
(5) "Prenatally diagnosed condition" means any fetal health condition
identified by prenatal genetic testing or prenatal screening procedures.
(6) "Prenatal test" means diagnostic or screening tests offered to
pregnant women seeking routine prenatal care that are administered on a
required or recommended basis by a health care provider based on medical
history, family background, ethnic background, previous test results or
other risk factors.
(7) "Secretary" means the secretary of the department of health and
environment.
(g) (1) There is hereby established in the state treasury the prenatally
and postnatally diagnosed conditions awareness programs fund. All
moneys credited to the prenatally and postnatally diagnosed conditions
awareness programs fund shall be expended only for prenatally and
postnatally diagnosed conditions awareness programs. All expenditures
from the prenatally and postnatally diagnosed conditions awareness
programs fund shall be made in accordance with appropriation acts upon
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warrants of the director of accounts and reports issued pursuant to
vouchers approved by the chairperson of the Kansas council on
developmental disabilities.
(2) On July 1, 2025, the director of accounts and reports shall
transfer $25,000 from the state general fund to the the prenatally and
postnatally diagnosed conditions awareness programs fund.
Sec. 3. K.S.A. 65-1,259 is hereby repealed.
Sec. 4. This act shall take effect and be in force from and after its
publication in the statute book.
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