2016 Regular Session ENROLLED SENATE CONCURRENT RESOL UTION NO. 119 BY SENATOR CORTEZ A CONCURRENT RESOL UTION To recognize May 2016 as "Amyotrophic Lateral Sclerosis Awareness Month" and to memorialize the Congress of the United States to enact legislation to provide additional funding for research for the treatment and cure of Amyotrophic Lateral Sclerosis. WHEREAS, Amyotrophic Lateral Sclerosis, or ALS, is more commonly known as Lou Gehrig's disease; and WHEREAS, ALS is a fatal neurodegenerative disease characterized by degeneration of cell bodies of the lower motor neurons in the gray matter of the anterior horns of the spinal cord; and WHEREAS, the initial symptom of ALS is usually weakness of the skeletal muscles, especially those of the extremities; and WHEREAS, as ALS progresses, the patient typically experiences difficulty in swallowing, talking, and breathing; and WHEREAS, ALS eventually causes muscles to atrophy and the patient becomes a functional quadriplegic; and WHEREAS, ALS does not affect the mental capacity of the patient, such that the patient remains alert and aware of surroundings and aware of the loss of motor functions and the inevitable outcome of continued deterioration and death; and WHEREAS, on average, patients diagnosed with ALS survive only two to five years from the time of diagnosis; and WHEREAS, despite the catastrophic consequences of a diagnosis of ALS, the disease currently has no known cause, means of protection, or cure; and WHEREAS, research indicates that military veterans are at a sixty percent greater risk of developing ALS than those who have not served in the military; and Page 1 of 2 SCR NO. 119 ENROLLED WHEREAS, the United States Department of Veterans Affairs has promulgated regulations to establish a presumption of service connection for ALS thereby presuming that the development of ALS was incurred or aggravated by a veteran's service in the military; and WHEREAS, a national ALS registry, administered by the Centers for Disease Control and Prevention, is currently identifying cases of ALS in the United States and may become the largest ALS research project ever undertaken; and WHEREAS, Amyotrophic Lateral Sclerosis Awareness Month increases the awareness of the circumstances of living with ALS and acknowledges the terrible impact this disease has, not only on the patient receiving such a diagnosis, but also on his family and community; and WHEREAS, Amyotrophic Lateral Sclerosis Awareness Month also increases awareness of research being done to eradicate this dire disease. THEREFORE, BE IT RESOLVED that the Legislature of Louisiana does hereby recognize May 2016 as "Amyotrophic Lateral Sclerosis Awareness Month". BE IT FURTHER RESOLVED that the Legislature of Louisiana does hereby memorialize the Congress of the United States to enact legislation to provide additional funding for research for the treatment and cure of Amyotrophic Lateral Sclerosis. BE IT FURTHER RESOLVED that a copy of this Resolution be transmitted to the secretary of the United States Senate, the clerk of the United States House of Representatives, and to each member of the Louisiana delegation to the United States Congress. PRESIDENT OF THE SENATE SPEAKER OF THE HOUSE OF REPRESENTATIVES Page 2 of 2