SLS 16RS-2005 ORIGINAL 2016 Regular Session SENATE RESOLUTION NO. 104 BY SENATOR MILLS SENATE. Designates the month of May 2016 as Cystic Fibrosis Awareness Month in Louisiana. 1 A RESOLUTION 2 To designate the month of May 2016 as Cystic Fibrosis Awareness Month in Louisiana. 3 WHEREAS, cystic fibrosis, known as CF, affects cells that produce mucus, 4 perspiration and digestive juices in the human body; and 5 WHEREAS, these normally thin, slippery fluids are rendered thick and sticky and 6 rather than acting as lubricants the cells affected by CF plug tubes, ducts and passageways, 7 especially in the lungs and pancreas; and 8 WHEREAS, CF affects roughly seventy thousand people around the world and thirty 9 thousand of those adults and children live in the United States; and 10 WHEREAS, advances in treatment and improvements leading to earlier detection of 11 this disease have led to people living longer with CF and increasing the population suffering 12 from this debilitating condition; and 13 WHEREAS, throughout the world, more than half of those living with CF are 14 children and one thousand new cases of this disabling condition are diagnosed each year; and 15 WHEREAS, CF is a genetic defect and in order for a child to have CF, both parents 16 must carry the defective gene, which is recessive, and pass those flawed genes on to the child 17 in order for the disease to manifest in the child; and 18 WHEREAS, CF causes progressive damage to the respiratory system and chronic Page 1 of 3 SR NO. 104 SLS 16RS-2005 ORIGINAL 1 digestive system problems are among the most common manifestations of CF; and 2 WHEREAS, respiratory damage is caused by mucus build-up in the lungs, bacterial 3 infections and eventually leads to permanent lung damage, including the formation of scar 4 tissue or fibrosis which impedes the ability of the lungs to inflate and deflate; and 5 WHEREAS, CF affects a specific protein called cystic fibrosis trans-membrane 6 regulator that controls the normal movement of sodium chloride, as well as water, in and out 7 of cells throughout the body; and 8 WHEREAS, the affect of CF on the pancreas causes the ducts to become blocked, 9 causing fibrosis of the pancreas which causes reduced absorption of fat and vitamins and can 10 result in "cystic fibrosis-related diabetes"; and 11 WHEREAS, almost half of all those affected with CF today are over eighteen years 12 of age; and 13 WHEREAS, infant blood screening to detect genetic defects is the most reliable and 14 least costly method to identify persons likely to have CF; and 15 WHEREAS, early diagnosis of CF permits early treatment and enhances the life 16 expectancy as well as improving the quality of life of those living with CF; and 17 WHEREAS, the average life expectancy of those with CF has been steadily 18 increasing since the 1950s and is currently nearly forty years; and 19 WHEREAS, a critical component of treating patients with CF includes access to 20 innovative treatments which can effect both longevity and quality of life; and 21 WHEREAS, improving both length and quality of life for people with CF begins 22 with both earlier diagnosis and a greater awareness of the disease and its consequences. 23 THEREFORE, BE IT RESOLVED that the Senate of the Legislature of Louisiana 24 does hereby designate the month of May 2016 as Cystic Fibrosis Awareness Month in 25 Louisiana. 26 BE IT FURTHER RESOLVED that a copy of this Resolution be transmitted to the 27 Cystic Fibrosis Foundation of Louisiana. Page 2 of 3 SR NO. 104 SLS 16RS-2005 ORIGINAL The original instrument and the following digest, which constitutes no part of the legislative instrument, were prepared by Mary Dozier O'Brien. DIGEST SR 104 Original 2016 Regular Session Mills Designates the month of May 2016 as Cystic Fibrosis Awareness Month in Louisiana. Page 3 of 3