2017 Regular Session ENROLLED
SENATE CONCURRENT RESOL UTION NO. 96
BY SENATOR MILLS
A CONCURRENT RESOL UTION
To recognize and commend The Louisiana Hemophilia Foundation for its work to improve
the quality of life and assist persons affected by rare inherited bleeding disorders, the
absence of clotting proteins in the blood which are often painful and debilitating, and
to designate Tuesday, May 16, 2017, as "Louisiana Hemophilia Foundation Day" at
the legislature.
WHEREAS, it is estimated that of the approximately 20,000 diagnosed cases in the
United States, there are approximately 400 persons in Louisiana diagnosed with hemophilia
along with the estimated one percent of the United States population who have Von
Willebrand's disease which is largely undiagnosed; and
WHEREAS, the Louisiana Hemophilia Foundation was established in 1976 to help
Louisiana residents with hemophilia, Von Willebrand's disease, and other bleeding disorders
lead normal and productive lives and to provide education, advocacy, support services, and
promote research in this rare genetic disorder; and
WHEREAS, the Louisiana Hemophilia Foundation is the state's oldest grassroots
network of individuals and family members with bleeding disorders which advocates for
proper treatment and access to lifesaving medications, educates and empowers people,
ensures quality care for all, and energizes science to find a cure for bleeding disorder; and
WHEREAS, the Louisiana Hemophilia Foundation provides educational scholarships
and provides financial support for patients who seek treatment at the Children's Hospital of
New Orleans and at the Louisiana Center for Bleeding and Clotting Disorders, the only
federally funded centers in the state providing expert care and cutting edge research for
patients suffering from hemophilia which is part of an affiliation of the Tulane University
Hospital and Clinic, the Southeast Veterans Louisiana Health Care System, and the Medical
Center of Louisiana at New Orleans.
Page 1 of 2 SCR NO. 96 ENROLLED
THEREFORE, BE IT RESOLVED that the Legislature of Louisiana does hereby
recognize and commend the Louisiana Hemophilia Foundation for its unwavering dedication
and support of the bleeding disorders community in Louisiana and does hereby designate
Tuesday, May 16, 2017, as "Louisiana Hemophilia Foundation Day" at the legislature.
BE IT FURTHER RESOLVED that a copy of this Resolution be transmitted to the
Louisiana Hemophilia Foundation.
PRESIDENT OF THE SENATE
SPEAKER OF THE HOUSE OF REPRESENTATIVES
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