HLS 18RS-191 ENGROSSED 2018 Regular Session HOUSE CONCURRENT RESOL UTION NO. 19 BY REPRESENTATIVES FOIL, BAGLEY, CHANEY, COX, HENSGENS, HOFFMANN, HORTON, JACKSON, JOHNSON, LEBAS, POPE, AND STAGNI CHILDREN/NEWBORNS: Requests the La. Department of Health to add Severe Combined Immunodeficiency to the state's newborn screening panel 1 A CONCURRENT RESOL UTION 2To urge and request the Louisiana Department of Health to take such actions as are 3 necessary to add Severe Combined Immunodeficiency to the newborn screening 4 panel of this state. 5 WHEREAS, Severe Combined Immunodeficiency (SCID) is a life threatening 6syndrome in which a person's adaptive immune system is severely impaired; and 7 WHEREAS, persons with SCID are extremely vulnerable to ordinary infections, and 8viruses that are minor for persons without SCID are often deadly for persons who have 9SCID; and 10 WHEREAS, SCID is detectable through genetic testing, and early detection of this 11disorder is vital to ensure the survival of those persons with SCID; and 12 WHEREAS, newborn screening identifies babies with congenital disorders like 13SCID; and 14 WHEREAS, nearly four million newborns are screened annually in the United States 15for numerous diseases, and forty-six states, Puerto Rico, and the District of Columbia 16currently screen for SCID; and 17 WHEREAS, screening for SCID in a newborn child is not included in Louisiana's 18current newborn screening panel. Page 1 of 2 HLS 18RS-191 ENGROSSED HCR NO. 19 1 THEREFORE, BE IT RESOLVED that the Legislature of Louisiana does hereby 2urge and request the Louisiana Department of Health to take such actions as are necessary 3to add Severe Combined Immunodeficiency to the newborn screening panel of this state. 4 BE IT FURTHER RESOLVED that a copy of this Resolution be transmitted to the 5secretary of the Louisiana Department of Health. DIGEST The digest printed below was prepared by House Legislative Services. It constitutes no part of the legislative instrument. The keyword, one-liner, abstract, and digest do not constitute part of the law or proof or indicia of legislative intent. [R.S. 1:13(B) and 24:177(E)] HCR 19 Engrossed 2018 Regular Session Foil Urges and requests that the La. Department of Health add Severe Combined Immunodeficiency screening to the newborn screening panel. Page 2 of 2