GREEN SHEET REDIGEST
HB 200 2023 Regular Session LaFleur
CHILDREN/NEWBORNS. Provides relative to newborn screening for certain genetic
conditions.
DIGEST
HB 200 Reengrossed 2023 Regular Session LaFleur
Present law provides that a physician or person attending to the care of a newborn child shall
cause the child to be tested for a list of genetic conditions approved by LDH as specifically
enumerated in present law. Proposed law removes the specific list of conditions provided in
present law and instead requires LDH to promulgate a list of genetic or other congenital
conditions in administrative rule for which a newborn child should be tested.
Present law allows the parent of a newborn child to object to testing their child for any
genetic condition listed in present law. Proposed law allows the parent or guardian of a
newborn child to object to testing his child for any genetic or other congenital condition
promulgated by LDH in accordance with proposed law.
Present law provides that the tests required in present law shall be subject to funding for
laboratory test, follow-up, and treatment. Proposed law requires the laboratory established
by LDH, in accordance with present law, to provide testing for each condition promulgated
by LDH in accordance with proposed law. Proposed law further provides that the testing,
services, and facilities required in proposed law shall be subject to available funding.
Present law requires LDH to add to the genetic conditions tested in present law after
consultation with medical geneticists from each of the state's medical schools and in
accordance with rules adopted in present law. Proposed law removes the consultation
requirement and instead requires the list to be reviewed by the state health officer, in
consultation with departmental genetic disease advisory subject matter experts, to determine
whether additional conditions should be recommended to the LDH secretary.
Proposed law provides that LDH shall provide an annual report to the legislature, beginning
March 1, 2024, of any condition added to the list and the department's review and
determination on the condition.
Proposed law further provides that, after adding a genetic or other congenital condition to the
list, LDH shall request a legislative appropriation for any funding necessary for conducting
the test and providing the services required in accordance with proposed law.
Effective upon signature of governor or lapse of time for gubernatorial action.
(Amends R.S. 40:1081.2(A)(1) and (5) and (B))
Summary of Amendments Adopted by Senate
Committee Amendments Proposed by Senate Committee on Health and Welfare to
the reengrossed bill
1. Clarify that the required newborn testing shall be for genetic and other
congenital conditions.
2. Remove the requirement that a condition be recommended by the Genetic
Diseases Program Advisory Committee prior to being added to testing list.
3. Remove the requirement for the testing list to be reviewed at least annually
by the committee for recommended updates.
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Prepared by Brandi Cannon. 4. Remove the requirement for LDH to report on conditions not adopted 3 years
after recommendation.
5. Require the list of conditions to be reviewed at least annually by the state
health officer for recommended updates.
6. Require LDH to report annually to the legislature.
7. Make technical changes.
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Prepared by Brandi Cannon.