SSHB200 4300 3422
HOUSE SUMMARY OF SENATE AMENDMENTS
HB 200 2023 Regular Session LaFleur
CHILDREN/NEWBORNS: Provides relative to newborn screening for certain genetic
conditions
Synopsis of Senate Amendments
1.Requires newborn testing for genetic and other congenital conditions.
2 Removes the requirement for a condition to be recommended by the Genetic
Diseases Program Advisory Committee prior to being added to the testing list.
3.Removes the requirement for the testing list to be reviewed at least annually by
the committee for recommended updates.
4.Removes the requirement for La. Dept. of Health (LDH) to report on conditions
not adopted within 3 years post-recommendation.
5.Requires the list of conditions to be reviewed at least annually by the state
health officer for recommended updates.
6.Requires LDH to seek legislative appropriation for the funding of tests.
7.Requires LDH to report to the legislature annually.
Digest of Bill as Finally Passed by Senate
Present law provides that a physician or person attending to the care of a newborn child shall
cause the child to be tested for a list of genetic conditions approved by LDH as specifically
enumerated in present law.
Proposed law removes the specific list of conditions provided in present law and instead
requires LDH to promulgate a list of genetic or other congenital conditions in administrative
rule for which a newborn child should be tested.
Present law allows the parent of a newborn child to object to testing their child for any
genetic condition listed in present law.
Proposed law allows the parent or guardian of a newborn child to object to testing his child
for any genetic or other congenital condition promulgated by LDH in accordance with
proposed law.
Present law provides that the tests required in present law shall be subject to funding for
laboratory test, follow-up, and treatment.
Proposed law requires the laboratory established by LDH, in accordance with present law,
to provide testing for each condition promulgated by LDH in accordance with proposed law.
Proposed law further provides that the testing, services, and facilities required in proposed
law shall be subject to available funding.
Present law requires LDH to add to the genetic conditions tested in present law after
consultation with medical geneticists from each of the state's medical schools and in
accordance with rules adopted in present law.
Proposed law removes the consultation requirement and instead requires the list to be
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reviewed by the state health officer, in consultation with departmental genetic disease
advisory subject matter experts, to determine whether additional conditions should be
recommended to the LDH secretary.
Proposed law provides that LDH shall provide an annual report to the legislature, beginning
March 1, 2024, of any condition added to the list and the department's review and
determination on the condition.
Proposed law further provides that, after adding a genetic or other congenital condition to the
list, LDH shall request a legislative appropriation for any funding necessary for conducting
the test and providing the services required in accordance with proposed law.
Effective upon signature of governor or lapse of time for gubernatorial action.
(Amends R.S. 40:1081.2(A)(1) and (5) and (B))
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