HLS 23RS-1578 ORIGINAL 2023 Regular Session HOUSE RESOLUTION NO. 97 BY REPRESENTATIVE WHEAT SPECIAL DAY/WEEK/MONTH: Recognizes May 17, 2023, as Diffuse Midline Glioma/Diffuse Intrinsic Pontine Glioma (DMG/DIPG) Awareness Day in Louisiana 1 A RESOLUTION 2To recognize May 17, 2023, as Diffuse Midline Glioma/Diffuse Intrinsic Pontine Glioma 3 (DMG/DIPG) Awareness Day in Louisiana. 4 WHEREAS, diffuse midline glioma (DMG), also referred to as diffuse intrinsic 5pontine glioma (DIPG), is an aggressive brain tumor that attacks the brainstem and slowly 6destroys all vital functions, even as cognitive function remains intact, rendering the affected 7person a prisoner in his or her own body; it is regarded by the medical community as the 8deadliest form of childhood cancer; and 9 WHEREAS, diffuse midline glioma typically affects children who are between the 10ages of five and nine; tragically, while the medical community has been aware of diffuse 11midline glioma for four decades, they have been unable to develop any treatment, making 12the disease inoperable, incurable, and fatal; and 13 WHEREAS, diffuse midline glioma accounts for 10-20% of all brain tumors in 14young children, and individuals diagnosed with the disease face a median overall survival 15rate of only eight to twelve months; and 16 WHEREAS, Kallie Dickens, daughter of Hayley and Justin Dickens and sister of 17Kora Dickens, was diagnosed with diffuse midline glioma in June 2021; she endured 18unimaginable treatment regimens with grace, optimism, and a perpetual smile on her 19beautiful face; she tragically lost her battle in May 2022, eleven months after being 20diagnosed; and Page 1 of 2 HLS 23RS-1578 ORIGINAL HR NO. 97 1 WHEREAS, Kallie's family carries the bright light of her memory through "Keeping 2A Light for Kallie", a charitable organization that supports pediatric cancer families both 3financially and emotionally; and 4 WHEREAS, it most fitting to recognize May 17, 2023, as Diffuse Midline 5Glioma/Diffuse Intrinsic Pontine Glioma (DMG/DIPG) Awareness Day in Louisiana to 6carry on the light of Kallie and all others who have passed as a result of this terrible disease. 7 THEREFORE, BE IT RESOLVED that the House of Representatives of the 8Legislature of Louisiana does hereby recognize May 17, 2023, as Diffuse Midline 9Glioma/Diffuse Intrinsic Pontine Glioma (DMG/DIPG) Awareness Day in Louisiana and 10does hereby extend sincerest wishes that all Louisianians offer their support in hopes that 11we may one day find a cure to this and other terrible childhood diseases. DIGEST The digest printed below was prepared by House Legislative Services. It constitutes no part of the legislative instrument. The keyword, one-liner, abstract, and digest do not constitute part of the law or proof or indicia of legislative intent. [R.S. 1:13(B) and 24:177(E)] HR 97 Original 2023 Regular Session Wheat Recognizes May 17, 2023, as Diffuse Midline Glioma/Diffuse Intrinsic Pontine Glioma (DMG/DIPG) Awareness Day in La. Page 2 of 2