ENROLLED
ACT No. 608
2024 Regular Session
HOUSE BILL NO. 330
BY REPRESENTATIVE PHELPS
1 AN ACT
2 To amend and reenact R.S. 40:1125.1(A) and (B)(1), relative to the Louisiana Sickle Cell
3 Commission; to provide for the membership of the commission; to specifically limit
4 the membership of the commission; and to provide for related matters.
5 Be it enacted by the Legislature of Louisiana:
6 Section 1. R.S. 40:1125.1(A) and (B)(1) are hereby amended and reenacted to read
7 as follows:
8 ยง1125.1. Louisiana Sickle Cell Commission
9 A. There shall be established within the Louisiana Department of Health a
10 commission designated the "Louisiana Sickle Cell Commission", composed of
11 seventeen members as provided in Subsection B of this Section. No organization,
12 entity, or individual shall be a member unless expressly provided for in Subsection
13 B of this Section.
14 B.(1) Thirteen members shall be appointed by the governor, subject to
15 Senate confirmation, as follows:
16 (a) One member from a list of nominees submitted by the Sickle Cell Center
17 of Southern Louisiana, Tulane University School of Medicine, which has provided
18 health care to patients with sickle cell disease since 1979 and houses the only life
19 span clinic, which provides care to patients from birth to death, and a transition
20 clinic, which provides a seamless transition during the high risk death gap period
21 from pediatric to adult care.
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1 (b) One member from a list of nominees submitted by Children's Hospital,
2 New Orleans, which is the only hospital in this state to provide stem cell and gene
3 therapies to patients with sickle cell disease and focuses on sickle cell pediatric
4 hematology.
5 (c) One member from a list of nominees submitted by the Louisiana Primary
6 Care Association.
7 (d) One member from a list of nominees submitted by the Sickle Cell
8 Association of South Louisiana, which has served eleven parishes in south Louisiana
9 since 1974 and has the historical and institutional knowledge of patient care within
10 the community.
11 (e) One member from a list of nominees submitted by the Northeast
12 Louisiana Sickle Cell Anemia Technical Resource Foundation, Inc, which has served
13 northeast Louisiana since 1979 and has the historical and institutional knowledge of
14 patient care within the community.
15 (f) One member from a list of nominees submitted by the Sickle Cell Disease
16 Association of America, Inc., Northwest Louisiana Chapter, which has served
17 northwest Louisiana since 1974 and has the historical and institutional knowledge
18 of patient care within the community.
19 (g) One member from a list of nominees submitted by the Sickle Cell
20 Anemia Research Foundation, Alexandria, which has served twelve parishes in
21 central Louisiana since 1974 and has the historical and institutional knowledge of
22 patient care within the community.
23 (h) One member from a list of nominees submitted by Southwest Louisiana
24 Sickle Cell Anemia, Inc., which has served southwest Louisiana and has the
25 historical and institutional knowledge of patient care within the community.
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1 (i) Five members from a list of nominees submitted by the Louisiana
2 Department of Health; two of whom shall be persons diagnosed with sickle cell
3 disease, one of whom shall be a parent of a person diagnosed with sickle cell disease,
4 and two of whom shall be medical professionals who provide treatment and care to
5 patients diagnosed with sickle cell disease.
6 * * *
SPEAKER OF THE HOUSE OF REPRESENTATIVES
PRESIDENT OF THE SENATE
GOVERNOR OF THE STATE OF LOUISIANA
APPROVED:
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