Alabama 2024 Regular Session

Alabama Senate Bill SB256

Introduced
3/21/24  
Introduced
3/21/24  
Report Pass
4/4/24  
Refer
3/21/24  

Caption

Newborn Screening Panel, procedure for addition of conditions to panel, further provided for

Impact

This legislation directly impacts health protocols regarding newborn screening in Alabama, which currently does not encompass all conditions recommended at the national level. By ensuring that newborns are screened for more conditions that may affect their health, the state aims to catch and address potential health issues earlier in life. This move is a significant enhancement to public health initiatives aimed at reducing infant morbidity and mortality rates from heritable diseases.

Summary

SB256, known as the Zachary Thomas Newborn Screening Act, mandates the addition of conditions from the Recommended Uniform Screening Panel (RUSP) to Alabama's Newborn Screening Panel. The act will require the Alabama State Board of Health to adopt rules for the inclusion of RUSP conditions and sets a timeline for the actual implementation of these screenings. If any new condition is approved by the RUSP, it must be added to the state's panel within 36 months. If the conditions are not added within this timeframe, the Board must inform the State Health Officer in writing, including the reasons for the delay.

Contention

Debate surrounding SB256 may revolve around funding and resource availability, as the act stipulates that the new condition testing is contingent on the availability of funding. There may be concerns regarding the state's capability to expand its newborn screening program without adequate financial resources and trained personnel. Additionally, some stakeholders might raise questions about parental rights in deciding which tests to administer to their newborns, especially regarding potential conflicts with personal or religious beliefs.

Companion Bills

No companion bills found.

Previously Filed As

AL HB77

Newborn Screening Panel, procedure for addition of conditions to panel, further provided for

AL HB1782

Newborn screening requirements; federal Recommended Uniform Screening Panel, evaluation, report.

AL HB927

Newborn screening program; include those conditions listed on the Recommended Uniform Screening Panel within three years after listing.

AL HCR33

Requests a study concerning potential inclusion in the state's newborn screening panel of all disorders listed on the federal Recommended Uniform Screening Panel

AL HB200

Provides relative to newborn screening for certain genetic conditions (EN SEE FISC NOTE GF EX See Note)

AL HCR34

Provides for the potential addition of mucopolysaccharidosis type I and Pompe disease to the state's newborn screening panel

AL SCR16

Requests the La. Department of Health to add Spinal Muscular Atrophy (SMA) to the state's newborn screening panel.

AL SB2900

Newborn screening program; revise certain provisions of.

AL AB206

The procedure for adding federal newborn screening recommendations to the state-required newborn screenings, granting rule-making authority, and providing an exemption from emergency rule procedures. (FE)

AL SB145

The procedure for adding federal newborn screening recommendations to the state-required newborn screenings, granting rule-making authority, and providing an exemption from emergency rule procedures. (FE)

Similar Bills

No similar bills found.