Louisiana 2021 Regular Session

Louisiana Senate Bill SCR66

Introduced
5/24/21  
Refer
5/25/21  
Report Pass
6/2/21  
Passed
6/9/21  
Passed
6/9/21  
Engrossed
6/9/21  

Caption

Requests the Department of Health to provide for equitable access to transformative therapies for sickle cell disease.

Impact

The resolution calls upon the Louisiana Department of Health to collaborate with other state agencies to systematically identify and remove obstacles that currently hinder access to treatment for sickle cell patients. This includes addressing logistical and financial challenges that families may face, such as missing work or childcare issues. By focusing on equitable access to healthcare, SCR66 strives to improve the quality of life for sickle cell patients and reduce the burden of this chronic condition.

Summary

Senate Concurrent Resolution No. 66 (SCR66) urges the Louisiana Department of Health to address regulatory barriers that impede patient access to transformative therapies for sickle cell disease. This resolution acknowledges the historical challenges faced by sickle cell patients, noting that the majority of these patients are supported by state Medicaid programs. SCR66 aims to ensure equitable access to potentially curative therapies that are emerging due to advancements in medical research, particularly genetic therapies that have been recognized by the Food and Drug Administration (FDA).

Sentiment

The overall sentiment regarding SCR66 appears to be positive, reflecting a collective understanding of the necessity to enhance healthcare access for marginalized patient communities. Legislators supporting the resolution likely recognize the importance of addressing health disparities and are motivated by a commitment to equitable healthcare outcomes. The unanimous support suggested by the voting history indicates a strong bipartisan consensus on the need for this initiative.

Contention

While SCR66 promotes beneficial policy changes, points of contention may arise related to the implementation of these recommendations, particularly in terms of how effectively the Louisiana Department of Health can navigate existing bureaucratic structures and engage with healthcare providers. Additionally, discussions about the availability and funding of new therapies could lead to debates about resource allocation within the Medicaid program and the potential impact on broader healthcare services.

Companion Bills

No companion bills found.

Previously Filed As

LA HCR76

Expresses support for equitable access to transformative therapies for sickle cell disease

LA HCR86

Expressing support for equitable access to transformative therapies for sickle cell disease.

LA SR134

Requests the Louisiana Department of Health to conduct a comprehensive review of current sickle cell disease legislation.

LA HR275

Requests that the Louisiana Department of Health review sickle cell disease legislation

LA HR514

Expressing support for the designation of June 19, 2023, as "World Sickle Cell Awareness Day" in order to increase public alertness across the United States and global community about sickle cell disease, the continued need for empirical research, early detection screenings for sickle cell trait carriers, novel effective treatments leading to a cure, and preventative care programs with respect to complications from sickle cell anemia and conditions related to sickle cell disease.

LA SR131

Requests the Louisiana Department of Health to meet certain benchmarks toward establishing the Sickle Cell Disease Registry.

LA HCR92

Requests study by Louisiana Department of Health to consider Medicaid coverage of gene therapy

LA SR292

A resolution expressing support for the designation of June 19, 2025, as "World Sickle Cell Awareness Day" in order to increase public awareness across the United States and global community about sickle cell disease and the continued need for empirical research, early detection screenings, novel effective treatments leading to a cure, and preventative care programs with respect to complications from sickle cell anemia and conditions relating to sickle cell disease.

LA SR255

A resolution expressing support for the designation of June 19, 2023, as "World Sickle Cell Awareness Day" in order to increase public awareness across the United States and global community about sickle cell disease and the continued need for empirical research, early detection screenings, novel effective treatments leading to a cure, and preventative care programs with respect to complications from sickle cell anemia and conditions relating to sickle cell disease.

LA SR738

A resolution expressing support for the designation of June 19, 2024, as "World Sickle Cell Awareness Day" in order to increase public awareness across the United States and global community about sickle cell disease and the continued need for empirical research, early detection screenings, novel effective treatments leading to a cure, and preventative care programs with respect to complications from sickle cell anemia and conditions relating to sickle cell disease.

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