Cystinuria Awareness Day.
This resolution aims to enhance understanding of Cystinuria among the public and healthcare professionals, thereby facilitating earlier diagnosis and management of the disease. Improved education and screening efforts are seen as necessary steps to potentially limit permanent kidney damage and preserve kidney function for affected individuals. By raising awareness and supporting medical research, the resolution aspires to improve the quality of life for Cystinuria patients, who often face significant health challenges and complications over their lifetimes.
Senate Concurrent Resolution No. 87, introduced by Senator Dahle, aims to recognize and proclaim June 24, 2020, as Cystinuria Awareness Day in California. The resolution seeks to promote awareness of Cystinuria, a rare genetic condition that impedes the body's ability to regulate amino acid concentrations, leading to severe kidney complications. The resolution highlights the impact of Cystinuria on individuals, many of whom begin suffering from chronic cystine stone formation before age 20 and endure debilitating pain and recurrent medical interventions throughout their lives.
While SCR 87 is primarily a statement of recognition rather than a legislative enactment affecting laws directly, it serves as a call to action for increased awareness and research funding for Cystinuria. The economic burden of kidney stones in the U.S. has been highlighted as a significant concern, with lost productivity and treatment costs estimated historically at $5.3 billion. Given this backdrop, the resolution seeks not only to elevate the profile of Cystinuria but also to urge collective action from the people of California and various stakeholders to support ongoing research and patient education efforts, fostering hope for future advancements in treatment and potentially a cure.