Us Congress House Bill HR692

Us Congress 2023-2024 Regular Session

• Introduced: 9/18/23
• Refer: 9/18/23
• Refer: 9/22/23

Caption

Expressing support for the designation of September 2023 as "Sickle Cell Disease Awareness Month" in order to educate communities across the United States about sickle cell disease and the need for research, early detection methods, effective treatments, and preventative care programs with respect to complications from sickle cell disease and conditions related to sickle cell disease.

Impact

The bill highlights that sickle cell disease affects an estimated 100,000 individuals in the U.S., with significant health implications including chronic pain and increased healthcare costs. It calls for better access to innovative treatments, emphasizing the need for equitable healthcare resources among different racial and economic groups. This legislative effort aims to reduce barriers that prevent access to effective therapies including emerging genetic technologies.

Summary

HR692 expresses support for designating September 2023 as 'Sickle Cell Disease Awareness Month'. The resolution aims to educate communities in the United States about sickle cell disease (SCD), its impact, and the importance of research into effective treatments and preventive care. The resolution acknowledges the significance of awareness programs in helping to improve understanding and support for those affected by SCD.

Contention

While the resolution seeks to raise awareness and support research efforts, it does not outline specific legislative changes or funding mechanisms. Some community advocates may view the emphasis on awareness as insufficient without concrete actions to increase funding for research and treatments. Additionally, the challenges surrounding healthcare equity and access for marginalized groups may evoke discussion regarding the effectiveness of the proposed initiatives.