Us Congress 2023-2024 Regular Session

Us Congress Senate Bill SR636

Caption

A resolution designating February 29, 2024, as "Rare Disease Day".

Impact

The resolution is symbolic in nature but it carries important implications for the awareness of health issues related to rare diseases. By designating a specific day for recognition, the bill seeks to encourage both public and medical community engagement in addressing the various challenges these patients face such as diagnosis delays and treatment availability. Additionally, it reinforces the need for ongoing research and innovation in the field of rare diseases, aligning with broader public health objectives.

Summary

SR636 is a resolution introduced in the Senate designating February 29, 2024, as 'Rare Disease Day'. This resolution highlights the significance of raising awareness about rare diseases and the challenges faced by individuals affected by these conditions. With a definition that encompasses diseases affecting fewer than 200,000 people in the U.S., the bill acknowledges that over 30 million Americans live with one or more of the identified rare diseases. Given this context, the resolution aims to promote understanding, accurate diagnosis, and effective research support in the realm of rare diseases.

Contention

While the resolution does not contain provisions that could lead to significant legislative conflict, it underscores existing concerns around healthcare accessibility and the necessity for expanded research funding. Critics may point out that without financial backing or direct policy changes, such resolutions serve more as public relations efforts rather than conduits for meaningful change. Nonetheless, the collective recognition may inspire stakeholders in the healthcare and pharmaceutical industries to elevate their focus on rare diseases, which often lack the attention they need.

Companion Bills

No companion bills found.

Previously Filed As

US SR104

A resolution designating February 27, 2025, as "Rare Disease Day".

US SR84

A resolution designating February 28, 2023, as "Rare Disease Day".

US HR1036

Expressing support for the designation of February 29, 2024, as "Rare Disease Day".

US HR181

Expressing support for the designation of February 28, 2023, as "Rare Disease Day".

US SR560

A resolution designating February 2024 as "American Heart Month".

US HR1307

Expressing support for the designation of June 20, 2024, as "World FSHD Day".

US SR635

A resolution designating the first week of April 2024 as "National Asbestos Awareness Week".

US SR590

A resolution designating March 15, 2024, as "Long COVID Awareness Day".

US SR561

A resolution designating February 16, 2024, as "National Elizabeth Peratrovich Day".

US SR794

A resolution designating September 25, 2024, as "National Ataxia Awareness Day", and raising awareness of ataxia, ataxia research, and the search for a cure.

Similar Bills

No similar bills found.