Pennsylvania 2023-2024 Regular Session

Pennsylvania House Bill HR464

Introduced
6/4/24  
Refer
6/4/24  

Caption

Designating the month of July 2024 as "MECP2 Duplication Syndrome Awareness Month" in Pennsylvania.

Impact

The passage of HR464 will not amend existing laws but will provide a significant statement of solidarity and awareness effort at the state level. It brings attention to medical conditions that often remain under-recognized and highlighted by a designated month to foster community support and encourage advocacy work. The resolution emphasizes the importance of collaboration among healthcare providers, families, and advocacy groups to promote greater understanding and resources for individuals affected by MECP2 Duplication Syndrome.

Summary

House Resolution 464 (HR464) aims to designate the month of July 2024 as 'MECP2 Duplication Syndrome Awareness Month' in Pennsylvania. This resolution is intended to raise awareness about MECP2 Duplication Syndrome, a rare genetic disorder that affects individuals, particularly females. By establishing a month dedicated to awareness, the resolution seeks to educate the public and foster understanding of the challenges faced by those impacted by this condition and their families.

Sentiment

The sentiment surrounding HR464 appears to be overwhelmingly positive. Members of the legislature expressed unanimous support during the voting process, indicating a shared commitment to enhancing awareness of MECP2 Duplication Syndrome. The general consensus among supporters is that such resolutions help to elevate critical health issues and demonstrate the state’s commitment to its residents and the challenges they face regarding rare diseases.

Contention

Although HR464 does not present notable points of contention during discussions or voting, it reflects the ongoing challenges faced by rare disease communities in gaining attention and support. Resolutions like HR464 typically serve as a rallying point for advocacy efforts, but they may also compel the state and healthcare systems to consider further actions, such as funding for research or support services for individuals with rare genetic disorders.

Companion Bills

No companion bills found.

Previously Filed As

PA J00945

Memorializing Governor Kathy Hochul to proclaim July 2025 as MECP2 Duplication Syndrome Awareness Month in the State of New York

PA HR177

Recognizing the month of October 2023 as "Rett Syndrome Awareness Month" in Pennsylvania.

PA SR296

Designating the month of May 2024 as "Ehlers-Danlos Syndrome Awareness Month" in Pennsylvania.

PA SR123

Designating the month of May 2023 as "Ehlers-Danlos Syndrome Awareness Month" in Pennsylvania.

PA SR230

Designating the month of February 2024 as "Turner Syndrome Awareness Month" in Pennsylvania.

PA SR29

Designating the month of February 2023 as "Turner Syndrome Awareness Month" in Pennsylvania.

PA HR448

Designating the month of May 2024 as "Preeclampsia Awareness Month" in Pennsylvania.

PA SJR254

Ehlers-Danlos Syndromes Awareness Month; designating as May 2025 & each succeeding year thereafter.

PA HR158

Designating the month of May 2025 as "Preeclampsia Awareness Month" in Pennsylvania.

PA HR349

Recognizing the month of April 2024 as "Retinal Blindness Awareness Month" in Pennsylvania.

Similar Bills

No similar bills found.