Texas House Bill HR586

Texas 2013 - 83rd Regular

Caption

Recognizing February 28, 2013, as Rare Disease Day.

Impact

This resolution serves as an important affirmation of the significance of rare diseases as a public health concern. By designating a day specifically for rare diseases, HR586 aims to mobilize public and professional attention towards these conditions, encouraging participation in awareness activities and advocating for increased research funding. This could potentially impact state public health initiatives and garner support for future legislation aimed at addressing the needs of those with rare diseases.

Summary

House Resolution 586 recognizes February 28, 2013, as Rare Disease Day in Texas. The resolution highlights the challenges faced by individuals and families affected by rare diseases, which are defined as conditions impacting fewer than 200,000 people. With nearly 7,000 such diseases affecting around 30 million Americans, the resolution emphasizes the urgent need for greater awareness and support in this area. It draws attention to the lack of available treatments for many rare diseases and the consequent hardships endured by patients and their families in terms of diagnosis, treatment options, and healthcare reimbursement.

Sentiment

The general sentiment surrounding HR586 is positive, reflecting a collective agreement on the necessity of raising awareness about rare diseases. The resolution resonates particularly with families and advocates for rare disease patients who often feel marginalized and isolated. Supporters view this as a crucial step in not only acknowledging the challenges these patients face but also in promoting further research into effective treatments.

Contention

While HR586 is primarily a resolution focused on awareness, it underscores the need for actions that go beyond recognition. There can be contentions regarding the adequacy of state-level support and funding for research on rare diseases. Advocates might raise concerns about whether mere acknowledgment of Rare Disease Day will translate into tangible actions and support for the healthcare systems servicing these patients.