EXPLANATION: CAPITALS INDICATE MATTER ADDE D TO EXISTING LAW .
[Brackets] indicate matter deleted from existing law.
*sb0859*
SENATE BILL 859
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By: Senator Watson
Introduced and read first time: February 7, 2022
Assigned to: Finance
A BILL ENTITLED
AN ACT concerning 1
Public Health – Sickle Cell Disease Registry – Establishment 2
FOR the purpose of requiring the Maryland Department of Health to establish and 3
maintain a registry of individuals diagnosed with sickle cell disease for a certain 4
purpose; requiring the Department to periodically publish information identifying 5
areas with statistically high populations of individuals with sickle cell disease; and 6
generally relating to a sickle cell disease registry. 7
BY adding to 8
Article – Health – General 9
Section 18–508 10
Annotated Code of Maryland 11
(2019 Replacement Volume and 2021 Supplement) 12
SECTION 1. BE IT ENACTED BY THE GENERAL ASSEMBLY OF MARYLAND, 13
That the Laws of Maryland read as follows: 14
Article – Health – General 15
18–508. 16
(A) THE DEPARTMENT S HALL ESTABLISH AND M AINTAIN A REGISTRY O F 17
INDIVIDUALS DIAGNOSE D WITH SICKLE CELL D ISEASE FOR USE AS A SINGLE 18
REPOSITORY OF ACCURA TE, COMPLETE RECORDS TO AID IN PROMOTING THE SITING 19
OF THE FOLLOWING HEA LTH CARE PROVIDERS I N AREAS WITH STATIST ICALLY HIGH 20
POPULATIONS OF INDIVIDU ALS WITH SICKLE CELL DISEASE: 21
(1) HEALTH CARE FACILITIE S THAT PROVIDE INFUS ION THERAPY ; 22
AND 23
2 SENATE BILL 859
(2) HEMATOLOGIST OFFICES . 1
(B) THE SICKLE CELL DISEA SE REGISTRY ESTABLIS HED UNDER 2
SUBSECTION (A) OF THIS SECTION SHAL L INCLUDE: 3
(1) A RECORD OF INDIVIDUAL S IN THE STATE WHO HAVE BEEN 4
DIAGNOSED WITH SICKL E CELL DISEASE; AND 5
(2) ANY OTHER INFORMATION REGARDING INDIVIDUAL S WHO HAVE 6
BEEN DIAGNOSED WITH SICKLE CELL DISEASE THAT THE DEPARTMENT CONSIDERS 7
NECESSARY AND APPROP RIATE FOR INCLUSI ON ON THE REGISTRY . 8
(C) (1) THE DEPARTMENT SHALL ESTA BLISH A PROCESS AND 9
GUIDELINES FOR : 10
(I) OBTAINING INFORMATION REGARDING AN INDIVID UAL 11
DIAGNOSED WITH SICKL E CELL DISEASE FROM HEALTH CARE FACILITI ES FOR USE 12
IN THE REGISTRY; AND 13
(II) ENSURING THAT THE REGISTRY AN D THE PROCESS OF 14
OBTAINING INFORMATIO N FOR THE REGISTRY C OMPLY WITH THE REQUI REMENTS 15
OF § 18–504 OF THIS SUBTITLE , § 13–109 OF THIS ARTICLE , THE HEALTH 16
INSURANCE PORTABILITY AND ACCOUNTABILITY ACT OF 1996, AND ANY OTHER 17
APPLICABLE PRIVA CY LAW. 18
(2) THE DEPARTMENT MAY USE AN Y AVAILABLE SOURCES OF DATA 19
FOR THE REGISTRY OR AS PART OF THE PROCE SS AND GUIDELINES ES TABLISHED 20
UNDER PARAGRAPH (1) OF THIS SUBSECTION , INCLUDING: 21
(I) DATA FROM THE DESIGNA TED HEALTH INFORMATION 22
EXCHANGE IN THE STATE; 23
(II) CENSUS–TRACT LEVEL DATA ; AND 24
(III) INFORMATION COLLECTED FROM VITAL RECORDS . 25
(D) A HEALTH CARE PROVIDER WHO PROVIDES HEALTH CARE TO AN 26
INDIVIDUAL WITH SICK LE CELL DISEASE SHAL L PROVIDE TO THE DEPARTMENT ANY 27
INFORMATION IN THE F ORM AND MANNER REQUIRED BY THE GUIDELINES 28
ESTABLISHED UNDER SU BSECTION (C) OF THIS SECTION. 29
(E) TO THE EXTENT AUTHORI ZED BY LAW , THE DEPARTMENT SHALL 30
PERIODICALLY PUBLISH INFORMATION IDENTIFY ING AREAS WITH STATI STICALLY 31 SENATE BILL 859 3
HIGH POPULATIONS OF INDIVIDUALS WITH S ICKLE CELL DISEASE , WHICH MAY 1
INCLUDE INFORMATION PUBLISHED IN A MAP . 2
SECTION 2. AND BE IT FURTHER ENACTED, That this Act shall take effect 3
October 1, 2022. 4