EXPLANATION: CAPITALS INDICATE MAT TER ADDED TO EXISTIN G LAW. [Brackets] indicate matter deleted from existing law. *sb0868* SENATE BILL 868 J1 2lr2038 CF HB 1020 By: Senator Lee Introduced and read first time: February 7, 2022 Assigned to: Finance A BILL ENTITLED AN ACT concerning 1 Developmental Disabilities Administration – Self–Directed Services 2 (Self–Direction Act of 2022) 3 FOR the purpose of requiring the Developmental Disabilities Administration to establish 4 and provide training materials to coordinators of communi ty services on 5 self–directed services; requiring coordinators of community services to educate a 6 certain recipient on self–directed services at certain times; providing for the services 7 and manner of delivering services that the Administration provides to a recipient 8 who receives self–directed services; requiring that home– and community–based 9 services waiver recipients receive support broker services; requiring the 10 Administration to submit a certain waiver application for a certain purpose by a 11 certain date; requiring the Administration to leverage certain federal funding for a 12 certain purpose; and generally relating to Developmental Disabilities 13 Administration services. 14 BY repealing and reenacting, with amendments, 15 Article – Health – General 16 Section 7–101 17 Annotated Code of Maryland 18 (2019 Replacement Volume and 2021 Supplement) 19 BY adding to 20 Article – Health – General 21 Section 7–408 through 7–410 22 Annotated Code of Maryland 23 (2019 Replacement Volume and 2021 Supplement) 24 SECTION 1. BE IT ENACTED BY THE GENERAL ASSEMBLY OF MARYLAND, 25 That the Laws of Maryland read as follows: 26 Article – Health – General 27 2 SENATE BILL 868 7–101. 1 (a) In this title the following words have the meanings indicated. 2 (b) “Administration” means the Developmental Disabilities Administration. 3 (c) (1) “Admission” means the process by which an individual with an 4 intellectual disability is accepted as a resident in a State residential center. 5 (2) “Admission” includes the physical act of the individual entering the 6 facility. 7 (d) (1) “Alternative living unit” means a residence that: 8 (i) Provides residential services for individuals who, because of 9 developmental disability, require specialized living arrangements; 10 (ii) Admits not more than 3 individuals; and 11 (iii) Provides 10 or more hours of supervision per unit, per week. 12 (2) “Alternative living unit” does not include a residence that is owned or 13 rented by: 14 (i) 1 or more of its residents; or 15 (ii) A person who: 16 1. Is an agent for any of the residents; but 17 2. Is not a provider of residential supervision. 18 (e) “Claim” has the meaning stated in § 2–601 of this article. 19 (f) “Deputy Secretary” means the Deputy Secretary for Developmental 20 Disabilities. 21 (g) “Developmental disability” means a severe chronic disability of an individual 22 that: 23 (1) Is attributable to a physical or mental impairment, other than the sole 24 diagnosis of mental illness, or to a combination of mental and physical impairments; 25 (2) Is manifested before the individual attains the age of 22; 26 (3) Is likely to continue indefinitely; 27 SENATE BILL 868 3 (4) Results in an inability to live independently without external support 1 or continuing and regular assistance; and 2 (5) Reflects the need for a combination and sequence of special, 3 interdisciplinary, or generic care, treatment, or other services that are individually planned 4 and coordinated for the individual. 5 (h) “External support” means: 6 (1) Periodic monitoring of the circumstances of an individual with respect 7 to: 8 (i) Personal management; 9 (ii) Household management; and 10 (iii) The use of community resources; and 11 (2) Rendering appropriate advice or assistance that may be needed. 12 (i) “Fee–for–service” means a method for payment that requires a person to 13 submit a claim for payment to the Department for each service performed. 14 (j) “Group home” means a residence that: 15 (1) Provides residential services for individuals who, because of 16 developmental disability, require specialized living arrangements; 17 (2) Admits at least 4 but not more than 8 individuals; and 18 (3) Provides 10 or more hours of supervision per home, per week. 19 (k) “Habilitation” means a process by which a provider of services enables an 20 individual to acquire and maintain life skills to cope more effectively with the demands of 21 the individual’s own person and environment and to raise the level of the individual’s 22 mental, physical, social, and vocational functioning. 23 (L) (1) “INDIVIDUAL–DIRECTED FAMILY GOOD S AND SERVICES ” MEANS 24 SERVICES, EQUIPMENT, THERAPIES, TRANSPORTATION , OR SUPPLIES FOR 25 INDIVIDUALS WHO SELF –DIRECT SERVICES THAT : 26 (I) RELATE TO A NEED OR G OAL IDENTIFIED IN TH E 27 PERSON–CENTERED PLAN ; 28 (II) MAINTAIN OR INCREASE INDEPENDENCE ; 29 4 SENATE BILL 868 (III) PROMOTE OPPORTUNITIES FOR COMMUNITY LIVING AND 1 INCLUSION; AND 2 (IV) ARE NOT AVAILABLE UND ER A WAIVER SERVICE OR 3 SERVICES PROVIDED UN DER THE STATE PLAN ESTABLISHE D IN SUBTITLE 3 OF THIS 4 TITLE. 5 6 (2) “INDIVIDUAL–DIRECTED FAMILY GOOD S AND SERVICES ” 7 INCLUDES ANY OTHER G OODS OR SERVICES AUT HORIZED UNDER GUIDAN CE ISSUED 8 BY THE FEDERAL CENTERS FOR MEDICARE AND MEDICAID SERVICES UNDER § 9 1915(C) OF THE SOCIAL SECURITY ACT. 10 [(l)] (M) (1) “Individual support services” means an array of services that are 11 designed to increase or maintain an individual’s ability to live alone or in a family setting. 12 (2) “Individual support services” include: 13 (i) In–home assistance with meals and personal care; 14 (ii) Counseling; 15 (iii) Physical, occupational, or other therapies; 16 (iv) Architectural modification; and 17 (v) Any other services that the Administration considers 18 appropriate to meet the individual’s needs. 19 (3) “Individual support services” does not include full day or residential 20 services. 21 [(m)] (N) “Intellectual disability” means a developmental disability that is 22 evidenced by significantly subaverage intellectual functioning and impairment in the 23 adaptive behavior of an individual. 24 [(n)] (O) “Knowingly” has the meaning stated in § 2–601 of this article. 25 [(o)] (P) “Live independently” means: 26 (1) For adults: 27 (i) Managing personal care, such as clothing and medication; 28 (ii) Managing a household, such as menu planning, food preparation 29 and shopping, essential care of the premises, and budgeting; and 30 SENATE BILL 868 5 (iii) Using community resources, such as commercial establishments, 1 transportation, and services of public agencies; or 2 (2) For minors, functioning in normal settings without the need for 3 supervision or assistance other than supervision or assistance that is age appropriate. 4 [(p)] (Q) “Meaningful day services” means employment supports or home– and 5 community–based supports, other than residential services, that assist an individual in 6 developing and maintaining skills, interests, and personalized connections that may create 7 opportunities for paid employment, increased independence, or meaningful relationships 8 with other individuals in the community. 9 (R) “PERSON–CENTERED” MEANS THAT A PLAN FO R SERVICES: 10 (1) REFLECTS WHAT IS IMPO RTANT TO THE INDIVID UAL AND FOR THE 11 INDIVIDUAL’S HEALTH AND WELFARE; AND 12 (2) IS DEVELOPED WITH INP UT FROM THE INDIVIDU AL OR THE 13 INDIVIDUAL’S REPRESENTATIVE , IF APPLICABLE. 14 [(q)] (S) “Provider” means an individual who is licensed or certified under 15 Subtitle 9 of this title and provides services to: 16 (1) A recipient; or 17 (2) An individual with a developmental disability who receives funding for 18 services from a source other than the Administration. 19 [(r)] (T) “Recipient” means an individual who receives services funded by the 20 Administration under this title. 21 [(s)] (U) “Release” means a permanent, temporary, absolute, or conditional 22 release of an individual from a State residential center. 23 [(t)] (V) “Residential services” means individualized support and services that 24 assist an individual in developing and maintaining skills in living in the community. 25 (W) (1) “SELF–DIRECTED SERVICES ” MEANS WAIVER PROGRAM 26 SERVICES: 27 (I) FOR WHICH PARTICIPANT S OR THEIR REPRESENT ATIVES 28 HAVE DECISION–MAKING AUTHORITY OVE R AND TAKE DIRECT RE SPONSIBILITY FOR 29 MANAGEMENT OF T HE SERVICES WITH THE ASSISTANCE OF AVAILA BLE SUPPORTS ; 30 AND 31 6 SENATE BILL 868 (II) THAT ARE PROVIDED IN A MANNER THAT FURTHE RS THE 1 RIGHT OF INDIVIDUALS WITH DISABILITIES , REGARDLESS OF THE PH YSICAL OR 2 INTELLECTUAL CAPACIT Y OF THE INDIVIDUALS , TO MAKE CHOICES ABOU T AND 3 DIRECT ALL ASPECTS OF THEIR LIVES, INCLUDING THROUGH CO NTROL OVER 4 RECEIPT OF, AND FUNDING FOR , SUPPORT SERVICES . 5 (2) “SELF–DIRECTED SERVICES ” INCLUDES SERVICES TH AT: 6 (I) PROVIDE AN INDIVIDUAL WITH: 7 1. THE DECISION–MAKING EMPLOYER AUTH ORITY TO 8 RECRUIT, HIRE, TRAIN, AND SUPERVISE THE IN DIVIDUALS WHO FURNIS H THE 9 INDIVIDUAL’S SERVICES; AND 10 2. THE BUDGET AUTHORITY OVER HOW FUNDS IN A 11 BUDGET ARE SPENT ; 12 (II) MAXIMIZE THE OPPORTUN ITIES OF AN INDIVIDU AL TO LIVE 13 AS INDEPENDENTLY AS POSSIBLE IN T HE MOST INCLUSIVE CO MMUNITY–BASED 14 SETTING OF THE INDIV IDUAL’S CHOICE; 15 (III) EMPOWER AN INDIVIDUAL TO EXERCISE CHOICE A ND 16 CONTROL OVER NEEDED LONG–TERM SERVICES AND SU PPORTS; AND 17 (IV) HELP TO MAINTAIN AND IMPROVE HEALTH AND Q UALITY OF 18 LIFE IN THE INDIVIDUAL’S COMMUNITY . 19 [(u)] (X) “Services” means residential, day, or other services that provide for 20 evaluation, diagnosis, treatment, care, supervision, assistance, or attention to individuals 21 with developmental disability and that promote habilitation of these individuals. 22 [(v)] (Y) “Services coordination” means a service that consists of the following 3 23 major functions that are designed to assist an individual in obtaining the needed services 24 and programs that the individual desires in order to gain as much control over the 25 individual’s own life as possible: 26 (1) Planning services; 27 (2) Coordinating services; and 28 (3) Monitoring service delivery to the individual. 29 [(w)] (Z) “State residential center” means a licensed facility operated by the 30 SENATE BILL 868 7 State that provides residential and habilitation services to individuals with an intellectual 1 disability who are at least 18 years old and meet the criteria set forth in § 7–502 of this 2 title. 3 (AA) “SUPPORT BROKER ” MEANS A PERSON WHO A DVOCATES ON BEHALF OF 4 AND AS DIRECTED BY A N INDIVIDUAL WHO USE S SELF–DIRECTED SERVICES , 5 INCLUDING BY ASSISTI NG THE INDIVIDUAL OR THE INDIVIDUAL’S FAMILY OR OTHER 6 REPRESENTATIVE WITH : 7 (1) MAKING INFORMED DECIS IONS IN ARRANGING FO R, DIRECTING, 8 AND MANAGING SERVICE S THE INDIVIDUAL RECEIVES ; 9 (2) ACCESSING AND MANAGIN G IDENTIFIED SUPPORT S AND 10 SERVICES BEST SUITED FOR THE INDIVIDUAL ; AND 11 (3) PERFORMING OTHER TASK S AS ASSIGNED BY THE INDIVIDUAL. 12 [(x)] (BB) “Support services” means supports that assist an individual to maintain 13 or improve the individual’s functional abilities, enhance interactions, or engage in 14 meaningful relationships in the home or community. 15 [(y)] (CC) “Treatment” means any education, training, professional care or 16 attention, or other program that is given to an individual with developmental disability. 17 [(z)] (DD) “Vocational services” means a service that provides job training and 18 placement, supported employment and training in acceptable work behaviors, and 19 vocationally–related social and other skills. 20 [(aa)] (EE) “Waiver program” means each Medicaid Home – and 21 Community–Based Services Waiver funding program submitted by the Department and 22 approved by the federal Centers for Medicare and Medicaid Services in accordance with § 23 1915(c) of the Social Security Act that is overseen and administered by the Administration. 24 [(bb)] (FF) “Waiver program services” means services funded by the 25 Administration in accordance with a waiver program, including: 26 (1) Meaningful day services; 27 (2) Residential services; and 28 (3) Support services. 29 7–408. 30 8 SENATE BILL 868 (A) THE ADMINISTRATION , IN CONSULTATION WITH STAKEHOLDERS , 1 SHALL ESTABLISH AND PROVIDE TRAINING MAT ERIALS TO COORDINATO RS OF 2 COMMUNITY SERVICES O N SELF–DIRECTED SERVICES , INCLUDING TRAINING 3 MATERIALS ON SELF –DIRECTED SERVICES PO LICIES AND RESOURCES . 4 (B) AS PART OF THE PROCES S OF DEVELOPING A PE RSON–CENTERED PLAN 5 OF SERVICE FOR A REC IPIENT, A COORDINATOR OF COM MUNITY SERVICES SHAL L 6 EDUCATE THE RECIPIEN T ON THE AVAILABILIT Y OF SELF–DIRECTED SERVICES : 7 (1) WHEN THE INDIVIDUAL B EGINS RECEIVING SERV ICES FROM A 8 COORDINATOR OF COMMU NITY SERVICES; AND 9 (2) AT LEAST ONCE EACH YE AR THAT THE INDIVIDU AL IS RECEIVING 10 SERVICES FROM A COOR DINATOR OF COMMUNITY SERVICES. 11 (C) A COORDINATOR OF COMMU NITY SERVICES SHALL REPORT TO THE 12 ADMINISTRATION , IN THE FORM AND MANN ER REQUIRED BY THE ADMINISTRATION , 13 THAT THE COORDINATOR OFFERED SELF –DIRECTED SERVICES TO AN INDIVIDUAL 14 IN ACCORDANCE WITH T HIS SECTION. 15 7–409. 16 (A) THE ADMINISTRATION SHALL PROVIDE TO A RECIPIE NT WHO RECE IVES 17 SELF–DIRECTED SERVICES : 18 (1) INDIVIDUAL–DIRECTED FAMILY GOOD S AND SERVICES IN AN 19 AMOUNT BASED ON THE RECIPIENT’S NEEDS AND INCLUDED IN THE RECIPIENT ’S 20 PERSON–CENTERED PLAN OF SER VICE AS CALCULATED O N AN ANNUAL BASIS ; 21 (2) ACCESS TO THE RECIPIE NT’S PLAN OF SERVICE AND BUDGETS 22 FOR THE PLAN OF SERV ICE THROUGH THE DEPARTMENT ’S LONG TERM SERVICES 23 AND SUPPORTS SOFTWARE SYS TEM; 24 (3) UP TO 40 HOURS OF SUPPORT BRO KER SERVICES EACH MO NTH, 25 AS NEEDED BY THE RECIPIENT ; 26 (4) AN OPTION FOR A FAMIL Y MEMBER OR LEGAL GUARDIAN OF TH E 27 RECIPIENT TO PROVIDE SERVICES FOR THE REC IPIENT, IF: 28 (I) THE RECIPIENT OR AN I NDIVIDUAL AUTHORIZED TO MAKE 29 CARE DECISIONS ON BE HALF OF THE RECIPIEN T CHOOSES THE FAMILY MEMBER TO 30 PROVIDE THE SERVICES ; AND 31 SENATE BILL 868 9 (II) THE RECIPIENT ALS O HIRES A SUPPORT BR OKER; 1 (5) REIMBURSEMENT PAID ON A PER–MILE BASIS FOR 2 TRANSPORTATION PROVI DED TO THE RECIPIENT BY AN INDIVIDUAL WHO IS NOT 3 EMPLOYED BY THE INDI VIDUAL, IF THE TRANSPORTATIO N IS RELATED TO THE 4 RECIPIENT’S PERSON–CENTERED PLAN OF SER VICE; 5 (6) A BUDGET FOR SELF –DIRECTED SERVICES TH AT PROVIDES 6 SUBSTANTIALLY SIMILA R SERVICES AS THOSE PROVIDED TO A RECIPI ENT WHO 7 DOES NOT SELF –DIRECT SERVICES , INCLUDING FUNDING FO R MANAGERIAL OR 8 DIRECT SUPPORT POSIT IONS; 9 (7) AN OPTION FOR A RECIP IENT WHO HAS A DEMONSTRAT ED NEED 10 FOR OVERNIGHT SUPPOR TS TO DIRECT AND CHO OSE THE PROVIDER OF THE 11 OVERNIGHT SUPPORTS , INCLUDING WHETHER TO USE FUNDING IN THE R ECIPIENT’S 12 BUDGET FOR SELF –DIRECTED SERVICES AL LOCATED FOR PERSONAL SUPPORT 13 SERVICES FOR OVERNIG HT SUPPORTS; 14 (8) THE CHOICE OF A VENDO R TO PROVIDE FISCAL MANAGEMENT 15 SERVICES FROM AT LEA ST THREE OPTIONS ; 16 (9) THE OPTION TO EMPLOY A REPRESENTATIVE , SUPPORT BROKER , 17 OR TEAM OF INDIVIDUA LS TO SUPPORT THE RE CIPIENT IN DIRECTING SERVICES; 18 AND 19 (10) TRAINING FOR A REPRESENTATIVE , SUPPORT BROKER , OR TEAM 20 OF INDIVIDUALS ON SE LF–DIRECTED SERVICES . 21 (B) SUBJECT TO SUBSECTION (A)(3) OF THIS SECTION , THE 22 ADMINISTRATION SHALL PROVIDE TO A RECIPIE NT OF SELF–DIRECTED SERVICES 23 ANY SUPPORT BROKER S ERVICES THAT ARE : 24 (1) AUTHORIZED UNDER GUID ANCE ISSUED BY THE CENTERS FOR 25 MEDICARE AND MEDICAID SERVICES IN § 1915(C) OF THE SOCIAL SECURITY ACT; 26 AND 27 (2) SELECTED BY THE RECIP IENT. 28 (C) THE ADMINISTRATION MAY NO T ESTABLISH A LIMIT ON: 29 (1) THE DOLLAR AMOUNT OF INDIVIDUAL–DIRECTED FAMILY GOOD S 30 AND SERVICES PROVIDE D TO A RECIPIENT; OR 31 10 SENATE BILL 868 (2) THE NUMBER OF HOURS O F OVERNIGHT SUPPORTS PROVIDED TO 1 A RECIPIENT WHO RECE IVES SELF–DIRECTED SERVICES . 2 (D) THE STATE MAY NOT REQUIRE A RECIPIENT TO DEMON STRATE 3 COMPETENCY BEFORE TH E ADMINISTRATION AUTHOR IZES THE RECIPIENT T O 4 RECEIVE SELF–DIRECT SERVICES . 5 7–410. 6 (A) THE ADMINISTRATION SHALL PROVIDE UP TO 40 HOURS OF SUPPORT 7 BROKER SERVICES EACH MONTH TO A RECIPIENT OF WAIVER SERVICES . 8 (B) SUBJECT TO SUBSECTION (A) OF THIS SECTION, THE ADMINISTRATION 9 SHALL PROVIDE TO A R ECIPIENT OF WAIVER S ERVICES ANY SUPPORT BROKER 10 SERVICES THAT ARE AU THORIZED UNDER GUIDA NCE ISSUED BY THE CENTERS FOR 11 MEDICARE AND MEDICAID SERVICES UNDER § 1915(C) OF THE SOCIAL SECURITY 12 ACT. 13 SECTION 2. AND BE IT FURTHER ENACTED, That on or before January 1, 2023, 14 the Developmental Disabilities Administration shall submit to the Centers for Medicare 15 and Medicaid Services an amendment to the Community Pathways Waiver that includes 16 the overnight supports requirements established under Section 1 of this Act. 17 SECTION 3. AND BE IT FURTHER ENACTED, That on or before January 1 each 18 year, beginning in 2023 and ending in 2026, the Developmental Disabilities Administration 19 shall report to the General Assembly, in accordance with § 2–1257 of the State Government 20 Article, on the progress in implementing the requirements established under Section 1 of 21 this Act and the recommendations outlined in the Self–Directed Advocacy Network of 22 Maryland’s “Recommendations to Summary Study Workgroup House Bill 318 of 2021”. 23 SECTION 4. AND BE IT FURTHER ENACTED, That, to the extent authorized by 24 law, the Developmental Disabilities Administration shall leverage federal funding, 25 including funding provided by the Centers for Medicare and Medicaid Services, to pay for 26 the services established under this Act. 27 SECTION 5. AND BE IT FURTHER ENACTED, That this Act shall take effect 28 October 1, 2022. 29