Req. No. 5885 Page 1 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 STATE OF OKLAHOMA 1st Session of the 59th Legislature (2023) HOUSE BILL 2747 By: Miller AS INTRODUCED An Act relating to Alzheimer's and dementia disease; repealing 63 O.S. 2021, Sections 1-879.2, and 1- 879.3, which relate to Alzheimer's Research Advisory Council and Duties and Development and Enhancement of Core Neuropathy Laboratory ; creating the Alzheimer's Disease and Related Dementia Infrastructure Act; defining terms; creating the Office of Alzheimer's Disease and Related Dementia Res ource Coordination; creating rules; creating a fund; creating a committee for awards; providing for codification; and providing an effective date. BE IT ENACTED BY THE PEOPLE OF THE STATE OF OKLAHOMA: SECTION 1. REPEALER 63 O.S. 2021, Sections 1-879.2, and 1-879.3, are hereby repealed. SECTION 2. NEW LAW A new section of law to be codified in the Oklahoma Statutes as Section 1-879.5 of Title 63, unless there is created a duplication in numbering, r eads as follows: This act shall be known and may be cited as the "Alzheimer's Disease and Related Dementia Infrastructure Act". Req. No. 5885 Page 2 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 SECTION 3. NEW LAW A new section of law to be codified in the Oklahoma Statutes as Section 1-879.6 of Title 63, unless there is created a duplication in numbering, reads as follows: The purpose of this act is to develop a coordinated state structure and state and community response to dementia that meets the growing need for dementia -specific services, resea rch and community education, and caregiver support. SECTION 4. NEW LAW A new section of law to be codified in the Oklahoma Statutes as Section 1-879.7 of Title 63, unless there is created a duplication in numbering, reads as follows : As used in this act: 1. "Alzheimer's and Related Dementia State Plan" means a plan developed by the state in conjunction with stakeholders for meeting the needs of individuals with Alzheimer's disease and related dementia or diagnosis and their caregivers; 2. "Caregiver" means any person other than a paid provider who provides care for a person with dementia; and 3. "Dementia" means a degenerative disease of the central nervous system characterized especially by premature cognitive deterioration. This includes Alzheimer's disease and related dementia and diagnoses which are similarly marked by irreversible deterioration of intellectua l faculties with concomitant emotional disturbance resulting from organic brain disorder, such as: a. Chronic Traumatic Encephalopathy, Req. No. 5885 Page 3 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 b. Creutzfeldt-Jakob Syndrome, c. Frontotemporal dementias , d. Huntington's disease, e. Korsakoff's Syndrome, f. Lewy-body disease, g. Parkinson's disease, h. Progressive supranuclear palsy , i. Vascular dementia, or j. any other neurocogniti ve brain disorder that results in the irreversible deterioration of intellectual faculties. SECTION 5. NEW LAW A new section of law to be codified in the Oklahoma Statutes as Section 1-879.8 of Title 63, unless there is created a du plication in numbering, reads as follows: A. In the State Department of Health, there i s hereby created an Office of Alzheimer's Disease and Related Dementia Resource Coordination to provide statewide coordination, service system development, and information on education, support, and other available services. The Office shall provide the following: 1. Initiate the development of systems which coordinate the delivery of programs and services; 2. Facilitate the coordination and integration of research, program development, planning, and quality assurance; Req. No. 5885 Page 4 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 3. Identify potential users of services and gaps in the service delivery system and expand methods and resources to enhance statewide services; 4. Serve as a resource for education, research, and train ing and provide information on available services; 5. Provide technical assistance for the applic ation of relevant federal and state grants; 6. Provide technical assistance for state and local initiatives to serve individuals, families, and caregivers; 7. Work with relevant State Department of Health staff to recommend public policy concerning Alzhe imer's disease and related dementia to state policymakers; 8. Facilitate the coordination of A lzheimer's State Plan re- write every four (4) years, stakeholde r involvement in the re -write, amendments to the Alzheimer 's State Plan during the re -write interim period, and any progress reports, updates, and other communication regarding the Alzheimer 's State Plan; 9. Submit an annual report that details Alzheimer 's State Plan implementation progress, information on service delivery system developments and gaps , research updates, and resources, outreach, and information to The Advancement of Wellness A dvisory Council as defined in Section 1-103a.1 of Title 63 of the Oklahoma Statutes, for review and approval. Upon approval the annual report shall be provided to the Secretary of Health and Human Services, the Off ice Req. No. 5885 Page 5 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 of the Governor, the Oklahoma State Legislature, and made publicly available on the State Department o f Health's website; and 10. Facilitate the coordination and integration of educational initiatives for health care providers on the importance and value of early detection and timely diagnosis of cognitive impairment, validated cognitive assessment tools, and increasing understanding and awareness of early warning signs of Alzheimer 's disease and other types of dementia and how to reduce the risk of cognit ive decline. B. The Office of Alzheimer's Disease and Related Dementia Resource Coordination shall ma intain on staff at least one (1) dementia services manager. The dementia services manager shall be a full-time, permanent employee and shall be responsibl e for the staffing and operational details of the Office of Alzheimer's Disease and Related Dementia Resource Coordination. SECTION 6. NEW LAW A new section of law to be codif ied in the Oklahoma Statutes as Section 1-879.9 of Title 63, unless there is created a duplication in numbering, reads as follows: There is hereby established a fund known as the Alzheimer 's Disease and Related Dementia Research Fund, hereafter referred to as "the Research Fund". The Research Fund shall be administered by the State Department of Health 's Office of Alzheimer's Disease and Related Dementia Resou rce Coordination. Req. No. 5885 Page 6 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 A. The awards shall be made through an awards committee of seven (7) members, c oordinated by the dementia services manager consisting of three (3) representatives from the scientific and medical communities, t hree (3) members of the gene ral public, and the dementia services manager. B. The awards shall be given annually to selected applicants residing and performing research in the state of Oklahoma in order to support research into the causes of Alzheimer 's disease and related disorders, methods of treatment, ways that families can cope with the stresses of the disease, and the impa ct of the disease on Oklahoma. C. Information on the awardee, project, and dollars awarded shall be included in the annual rep ort as defined in paragraph 9 of Section 5 of this act. SECTION 7. NEW LAW A new section of law to be cod ified in the Oklahoma Statutes as Section 1-879.10 of Title 63, unless there is created a duplication in numbering, reads as follows: A. There is hereby esta blished a fund known as the Dementia Caregiver Support Group and Education Program Development Fun d, hereafter referred to as the "Dementia Support and Education Development Fund". B. The Dementia Support and Education Development Fund shall be administered by the State Department of Health's Office of Alzheimer's Disease and Related Dementia Resource Coordination. The Req. No. 5885 Page 7 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 awards shall be made through an awards committee of five (5) members, facilitated by the dementia services manager consisting of representatives from the Alzheimer's Disease and Related Dementia State Plan writing committee. C. The awards shall be given annually to non-profit applicants residing in the state of Oklahoma in areas of the state meeting the Census Bureau classifica tion of rural in order to support community efforts to establish Alzheimer 's disease and related dementia caregiver support group and evidence-based community education programs. D. The Office of Alzheimer's Disease and Related Dementia Resource Coordination shall include information on the awardee(s), project(s), and dollars awarded in the annual report as define d in paragraph 9 of Section 5 of this act. E. The fund shall sunset five (5) years from the enactment of this language. SECTION 8. This act shall become effective November 1, 2023. 59-1-5885 TJ 01/18/23