1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 83rd OREGON LEGISLATIVE ASSEMBLY--2025 Regular Session House Bill 2940 Sponsored by Representative NELSON; Senators FREDERICK, MANNING JR, WOODS (Presession filed.) SUMMARY The following summary is not prepared by the sponsors of the measure and is not a part of the body thereof subject to consideration by the Legislative Assembly. It is an editor’s brief statement of the essential features of the measure as introduced.The statement includes a measure digest written in compliance with applicable readability standards. Digest: Creates a task force to create a protocol for assessing and treating persons with inher- ited blood disorders.Tells the task force to submit a report. (Flesch Readability Score: 65.5). Establishes the Task Force on Hemoglobinopathies and Sickle Cell Disease. Requires the task force to develop and establish a statewide protocol for assessing and treating individuals with hemoglobinopathies. Directs the task force to submit a report to the interim committees of the Legislative Assembly related to health care no later than December 15, 2026. Takes effect on the 91st day following adjournment sine die. A BILL FOR AN ACT Relating to hemoglobinopathies; and prescribing an effective date. Be It Enacted by the People of the State of Oregon: SECTION 1. (1) The Task Force on Hemoglobinopathies and Sickle Cell Disease is estab- lished. (2) The Governor shall appoint at least 11 but not more than 15 members to serve on the task force. Members on the task force must be individuals who represent: (a) Local or national community-based organizations with experience providing direct support services to individuals with hemoglobinopathies in Oregon; (b) Interest or support groups that work with individuals with hemoglobinopathies; (c) Community-based organizations that advocate for individuals with hemoglobinopathies; (d) Health care consumers; (e) Clinical health care providers with knowledge and experience caring for and treating individuals with hemoglobinopathies, including hematologists, emergency physicians and pri- mary care physicians; (f) Pediatric clinics that provide care to or treat children with hemoglobinopathies; (g) Academic institutions involved with hemoglobinopathy research or providing care to or treating individuals with hemoglobinopathies; and (h) Hospitals that provide care to or treat individuals with hemoglobinopathies. (3) In appointing members under subsection (2) of this section, the Governor shall take into consideration the geographic, demographic and cultural diversity of this state. (4) The task force shall develop and establish a statewide protocol for assessing and treating individuals with hemoglobinopathies, including sickle cell disease. (5) A majority of the members of the task force constitutes a quorum for the transaction ofbusiness. (6) Official action by the task force requires the approval of a majority of the members of the task force. NOTE:Matter in boldfaced type in an amended section is new; matter [italic and bracketed] is existing law to be omitted. New sections are in boldfaced type. LC 3771 HB2940 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 (7) The task force shall elect one of its members to serve as chairperson. (8) If there is a vacancy for any cause that reduces the number of members of the task force to less than 11 members, the Governor shall make an appointment to become imme- diatelyeffective. (9) The task force shall meet at times and places specified by the call of the chairperson or of a majority of the members of the task force. (10) The task force may adopt rules necessary for the operation of the task force. (11) The task force shall submit a report in the manner provided in ORS 192.245, and may include recommendations for legislation, to the interim committees of the Legislative As- sembly related to health care no later than December 15, 2026. (12) The Oregon Health Authority shall provide staff support to the task force. (13) Members of the task force are not entitled to compensation or reimbursement for expenses and serve as volunteers on the task force. (14) All agencies of state government, as defined in ORS 174.111, are directed to assist the task force in the performance of the duties of the task force and, to the extent permitted by laws relating to confidentiality, to furnish information and advice the members of the task force consider necessary to perform their duties. SECTION 2. Section 1 of this 2025 Act is repealed on December 31, 2026. SECTION 3.This 2025 Act takes effect on the 91st day after the date on which the 2025 regular session of the Eighty-third Legislative Assembly adjourns sine die. [2]