2025 -- H 5625 ======== LC001991 ======== S T A T E O F R H O D E I S L A N D IN GENERAL ASSEMBLY JANUARY SESSION, A.D. 2025 ____________ A N A C T RELATING TO INSURANCE -- ACCIDENT AND SICKNESS INSURANCE POLICIES Introduced By: Representative Matthew S. Dawson Date Introduced: February 26, 2025 Referred To: House Health & Human Services It is enacted by the General Assembly as follows: SECTION 1. Section 27-18-90 of the General Laws in Chapter 27-18 entitled "Accident 1 and Sickness Insurance Policies" is hereby amended to read as follows: 2 27-18-90. Mandatory coverage for treatment of pediatric autoimmune 3 neuropsychiatric disorders associated with streptococcal infections and pediatric acute onset 4 neuropsychiatric syndrome. [Expires December 31, 2025.] Mandatory coverage for treatment 5 of pediatric autoimmune neuropsychiatric disorders associated with streptococcal infections 6 and pediatric acute onset neuropsychiatric syndrome. 7 (a) Every group health insurance contract, or every group hospital or medical expense 8 insurance policy, plan, or group policy delivered, issued for delivery, or renewed in this state, by 9 any health insurance carrier, on or after January 1, 2023, shall provide coverage for treatment of 10 pediatric autoimmune neuropsychiatric disorders associated with streptococcal infections and 11 pediatric acute onset neuropsychiatric syndrome, including, but not limited to, the use of 12 intravenous immunoglobin therapy. 13 (b) For billing and diagnosis purposes, pediatric autoimmune neuropsychiatric disorders 14 associated with streptococcal infections and pediatric acute onset neuropsychiatric syndrome shall 15 be coded as autoimmune encephalitis until the American Medical Association and the Centers for 16 Medicare and Medicaid Services create and assign a specific code for pediatric autoimmune 17 neuropsychiatric disorders associated with streptococcal infections and pediatric acute onset 18 neuropsychiatric syndrome. Thereafter, pediatric autoimmune neuropsychiatric disorders 19 LC001991 - Page 2 of 6 associated with streptococcal infections and pediatric acute onset neuropsychiatric syndrome may 1 be coded as autoimmune encephalitis, pediatric autoimmune neuropsychiatric disorders associated 2 with streptococcal infections, or pediatric acute onset neuropsychiatric syndrome. 3 (c) The healthcare benefits outlined in this section apply only to services delivered within 4 the state of Rhode Island; provided, that all health insurance carriers shall be required to provide 5 coverage for those benefits mandated by this section outside of the state of Rhode Island where it 6 can be established through a pre-authorization process that the required services are not available 7 in the state of Rhode Island from a provider in the health insurance carrier’s network. 8 (d) Each health insurance carrier shall collect and provide to the office of the health 9 insurance commissioner, in a form and frequency acceptable to the commissioner, information and 10 data reflecting the costs and the savings of adding the benefit coverage provided in this section. On 11 or before January 1, 2025, the office of the health insurance commissioner shall report to the general 12 assembly a cost-benefit analysis of the implementation of the benefit coverage provided in this 13 section. The intent of this cost-benefit analysis is to determine if adding the benefit coverage 14 provided in this section produces a net savings to health insurance carriers and to policy holders. 15 (e) This section shall sunset and be repealed effective December 31, 2025. 16 SECTION 2. Section 27-19-82 of the General Laws in Chapter 27-19 entitled "Nonprofit 17 Hospital Service Corporations" is hereby amended to read as follows: 18 27-19-82. Mandatory coverage for treatment of pediatric autoimmune 19 neuropsychiatric disorders associated with streptococcal infections and pediatric acute onset 20 neuropsychiatric syndrome. [Expires December 31, 2025.] Mandatory coverage for treatment 21 of pediatric autoimmune neuropsychiatric disorders associated with streptococcal infections 22 and pediatric acute onset neuropsychiatric syndrome. 23 (a) Every group health insurance contract, or every group hospital or medical expense 24 insurance policy, plan, or group policy delivered, issued for delivery, or renewed in this state, by 25 any health insurance carrier, on or after January 1, 2023, shall provide coverage for treatment of 26 pediatric autoimmune neuropsychiatric disorders associated with streptococcal infections and 27 pediatric acute onset neuropsychiatric syndrome, including, but not limited to, the use of 28 intravenous immunoglobin therapy. 29 (b) For billing and diagnosis purposes, pediatric autoimmune neuropsychiatric disorders 30 associated with streptococcal infections and pediatric acute onset neuropsychiatric syndrome shall 31 be coded as autoimmune encephalitis until the American Medical Association and the Centers for 32 Medicare & Medicaid Services create and assign a specific code for pediatric autoimmune 33 neuropsychiatric disorders associated with streptococcal infections and pediatric acute onset 34 LC001991 - Page 3 of 6 neuropsychiatric syndrome. Thereafter, pediatric autoimmune neuropsychiatric disorders 1 associated with streptococcal infections and pediatric acute onset neuropsychiatric syndrome may 2 be coded as autoimmune encephalitis, pediatric autoimmune neuropsychiatric disorders associated 3 with streptococcal infections, or pediatric acute onset neuropsychiatric syndrome. 4 (c) The healthcare benefits outlined in this section apply only to services delivered within 5 the state of Rhode Island; provided, that all health insurance carriers shall be required to provide 6 coverage for those benefits mandated by this section outside of the state of Rhode Island where it 7 can be established through a pre-authorization process that the required services are not available 8 in the state of Rhode Island from a provider in the health insurance carrier’s network. 9 (d) Each health insurance carrier shall collect and provide to the office of the health 10 insurance commissioner, in a form and frequency acceptable to the commissioner, information and 11 data reflecting the costs and the savings of adding the benefit coverage provided in this section. On 12 or before January 1, 2025, the office of the health insurance commissioner shall report to the general 13 assembly a cost-benefit analysis of the implementation of the benefit coverage provided in this 14 section. The intent of this cost-benefit analysis is to determine if adding the benefit coverage 15 provided in this section produces a net savings to health insurance carriers and to policyholders. 16 (e) This section shall sunset and be repealed effective December 31, 2025. 17 SECTION 3. Section 27-20-78 of the General Laws in Chapter 27-20 entitled "Nonprofit 18 Medical Service Corporations" is hereby amended to read as follows: 19 27-20-78. Mandatory coverage for treatment of pediatric autoimmune 20 neuropsychiatric disorders associated with streptococcal infections and pediatric acute onset 21 neuropsychiatric syndrome. [Expires December 31, 2025.] Mandatory coverage for treatment 22 of pediatric autoimmune neuropsychiatric disorders associated with streptococcal infections 23 and pediatric acute onset neuropsychiatric syndrome. 24 (a) Every group health insurance contract, or every group hospital or medical expense 25 insurance policy, plan, or group policy delivered, issued for delivery, or renewed in this state, by 26 any health insurance carrier, on or after January 1, 2023, shall provide coverage for treatment of 27 pediatric autoimmune neuropsychiatric disorders associated with streptococcal infections and 28 pediatric acute onset neuropsychiatric syndrome, including, but not limited to, the use of 29 intravenous immunoglobin therapy. 30 (b) For billing and diagnosis purposes, pediatric autoimmune neuropsychiatric disorders 31 associated with streptococcal infections and pediatric acute onset neuropsychiatric syndrome shall 32 be coded as autoimmune encephalitis until the American Medical Association and the Centers for 33 Medicare & Medicaid Services create and assign a specific code for pediatric autoimmune 34 LC001991 - Page 4 of 6 neuropsychiatric disorders associated with streptococcal infections and pediatric acute onset 1 neuropsychiatric syndrome. Thereafter, pediatric autoimmune neuropsychiatric disorders 2 associated with streptococcal infections and pediatric acute onset neuropsychiatric syndrome may 3 be coded as autoimmune encephalitis, pediatric autoimmune neuropsychiatric disorders associated 4 with streptococcal infections, or pediatric acute onset neuropsychiatric syndrome. 5 (c) The healthcare benefits outlined in this section apply only to services delivered within 6 the state of Rhode Island; provided, that all health insurance carriers shall be required to provide 7 coverage for those benefits mandated by this section outside of the state of Rhode Island where it 8 can be established through a pre-authorization process that the required services are not available 9 in the state of Rhode Island from a provider in the health insurance carrier’s network. 10 (d) Each health insurance carrier shall collect and provide to the office of the health 11 insurance commissioner, in a form and frequency acceptable to the commissioner, information and 12 data reflecting the costs and the savings of adding the benefit coverage provided in this section. On 13 or before January 1, 2025, the office of the health insurance commissioner shall report to the general 14 assembly a cost-benefit analysis of the implementation of the benefit coverage provided in this 15 section. The intent of this cost-benefit analysis is to determine if adding the benefit coverage 16 provided in this section produces a net savings to health insurance carriers and to policyholders. 17 (e) This section shall sunset and be repealed effective December 31, 2025. 18 SECTION 4. Section 27-41-95 of the General Laws in Chapter 27-41 entitled "Health 19 Maintenance Organizations" is hereby amended to read as follows: 20 27-41-95. Mandatory coverage for treatment of pediatric autoimmune 21 neuropsychiatric disorders associated with streptococcal infections and pediatric acute onset 22 neuropsychiatric syndrome. [Expires December 31, 2025.] Mandatory coverage for treatment 23 of pediatric autoimmune neuropsychiatric disorders associated with streptococcal infections 24 and pediatric acute onset neuropsychiatric syndrome. 25 (a) Every group health insurance contract, or every group hospital or medical expense 26 insurance policy, plan, or group policy delivered, issued for delivery, or renewed in this state, by 27 any health insurance carrier, on or after January 1, 2023, shall provide coverage for treatment of 28 pediatric autoimmune neuropsychiatric disorders associated with streptococcal infections and 29 pediatric acute onset neuropsychiatric syndrome, including, but not limited to, the use of 30 intravenous immunoglobin therapy. 31 (b) For billing and diagnosis purposes, pediatric autoimmune neuropsychiatric disorders 32 associated with streptococcal infections and pediatric acute onset neuropsychiatric syndrome shall 33 be coded as autoimmune encephalitis until the American Medical Association and the Centers for 34 LC001991 - Page 5 of 6 Medicare & Medicaid Services create and assign a specific code for pediatric autoimmune 1 neuropsychiatric disorders associated with streptococcal infections and pediatric acute onset 2 neuropsychiatric syndrome. Thereafter, pediatric autoimmune neuropsychiatric disorders 3 associated with streptococcal infections and pediatric acute onset neuropsychiatric syndrome may 4 be coded as autoimmune encephalitis, pediatric autoimmune neuropsychiatric disorders associated 5 with streptococcal infections, or pediatric acute onset neuropsychiatric syndrome. 6 (c) The healthcare benefits outlined in this section apply only to services delivered within 7 the state of Rhode Island; provided, that all health insurance carriers shall be required to provide 8 coverage for those benefits mandated by this section outside of the state of Rhode Island where it 9 can be established through a pre-authorization process that the required services are not available 10 in the state of Rhode Island from a provider in the health insurance carrier’s network. 11 (d) Each health insurance carrier shall collect and provide to the office of the health 12 insurance commissioner, in a form and frequency acceptable to the commissioner, information and 13 data reflecting the costs and the savings of adding the benefit coverage provided in this section. On 14 or before January 1, 2025, the office of the health insurance commissioner shall report to the general 15 assembly a cost-benefit analysis of the implementation of the benefit coverage provided in this 16 section. The intent of this cost-benefit analysis is to determine if adding the benefit coverage 17 provided in this section produces a net savings to health insurance carriers and to policyholders. 18 (e) This section shall sunset and be repealed effective December 31, 2025. 19 SECTION 5. This act shall take effect upon passage. 20 ======== LC001991 ======== LC001991 - Page 6 of 6 EXPLANATION BY THE LEGISLATIVE COUNCIL OF A N A C T RELATING TO INSURANCE -- ACCIDENT AND SICKNESS INSURANCE POLICIES *** This act would remove the sunset provision of all statutory law requiring coverage for the 1 treatment of pediatric autoimmune neuropsychiatric disorders associated with streptococcal 2 infections and pediatric acute onset neuropsychiatric syndrome, thus requiring insurance coverage 3 to continue. 4 This act would take effect upon passage. 5 ======== LC001991 ========