81R32379 ALB-F
By: Lucio, et al. S.B. No. 1612
Substitute the following for S.B. No. 1612:
By: Rose C.S.S.B. No. 1612
A BILL TO BE ENTITLED
AN ACT
relating to the provision of information by health and human
services agencies to assist children with velocardiofacial
syndrome.
BE IT ENACTED BY THE LEGISLATURE OF THE STATE OF TEXAS:
SECTION 1. Subchapter D, Chapter 117, Human Resources Code,
is amended by adding Section 117.076 to read as follows:
Sec. 117.076. INFORMATION REGARDING VELOCARDIOFACIAL
SYNDROME. (a) The commission shall ensure that each health and
human services agency that provides intervention services to young
children is provided with information developed by the commission
regarding velocardiofacial syndrome.
(b) Each health and human services agency described by
Subsection (a) shall provide the information regarding
velocardiofacial syndrome to appropriate health care coordinators
and therapists and to parents of a child who is known by the agency
to have at least two of the following conditions:
(1) hypotonicity;
(2) communication delay;
(3) articulation disorder;
(4) resonance disorder;
(5) nasal regurgitation during feeding as an infant
with no history of a cleft palate;
(6) recurrent ear infections as well as diagnosis of
cardiac anomaly, feeding disorder, cleft palate, or submucosal
cleft palate; or
(7) fine motor or gross motor skills delay.
(c) The commission shall develop the information required
under Subsection (a) using medically accurate, peer-reviewed
literature. The information must include:
(1) an explanation of velocardiofacial syndrome
symptoms, diagnosis, and treatment options;
(2) information on relevant state agency and nonprofit
resources, parent support groups, and available Medicaid waiver
programs; and
(3) a recommendation for follow-up with a health care
provider for evaluation of the underlying etiology and an
explanation that the existence of any of the conditions listed in
Subsection (b) will not necessarily result in a diagnosis of
velocardiofacial syndrome.
(d) The executive commissioner may adopt rules as necessary
to implement this section.
SECTION 2. This Act takes effect September 1, 2009.