Texas Senate Bill SB1667

Texas 2013 - 83rd Regular

Caption

Relating to a chronic neurological disease registry; authorizing a fee.

Impact

The establishment of the chronic neurological disease registry under SB1667 is expected to have significant implications for public health in Texas. By collecting detailed information from neurologists regarding patients diagnosed with chronic neurological diseases, the DSHS will facilitate better data analysis, potentially leading to advancements in treatment and care. Additionally, the bill stipulates that the DSHS publish an annual report to the legislature, which could influence future healthcare policies and funding aimed at combating these diseases.

Summary

SB1667, relating to a chronic neurological disease registry, aims to establish a state-maintained registry for chronic neurological diseases, specifically multiple sclerosis and Parkinson's disease. The bill mandates the Department of State Health Services (DSHS) to create and uphold a centralized database containing information on diagnosed cases from September 1, 2013, onward. This registry is designed to serve as a vital resource for medical research, aiding in the understanding and treatment of these debilitating conditions.

Sentiment

Overall sentiment around SB1667 appears to be supportive, particularly from healthcare professionals and advocates for chronic disease research. Many stakeholders recognize the bill's potential to improve patient outcomes and enhance the state's ability to address the challenges posed by chronic neurological diseases. However, there may also be concerns regarding the confidentiality of patient data, as the bill includes strict guidelines to ensure that sensitive information remains protected.

Contention

While the bill has garnered broad support, there are points of contention regarding data privacy and the burden on healthcare providers. Critics may argue that requiring neurologists to report detailed patient data could lead to challenges related to patient confidentiality and the administrative load placed on medical practitioners. The bill includes provisions to protect the confidentiality of the data collected, yet concerns may persist about how these regulations will be enforced and whether they adequately safeguard individual identities.