Texas Senate Bill SR70

Texas 2021 - 87th 3rd C.S.

Caption

Recognizing Kalliope Benitez and joining her efforts to raise awareness of Battens CLN5 disease.

Impact

The resolution emphasizes the necessity of raising awareness about Battens CLN5 disease, which has been historically underrepresented in discussions about health issues. By promoting knowledge and understanding of the disorder, SR70 aims to foster community support and encourage research efforts that could improve outcomes for affected individuals. It signifies a step towards not just individual recognition but also collective action in combating health issues that often receive little attention in public discourse.

Summary

Senate Resolution 70 (SR70) serves to recognize Kalliope Benitez, a courageous young individual who is battling Battens CLN5 disease. The resolution aims to raise awareness about this rare inherited disorder of the nervous system, which often manifests in young children. Kalliope's journey reflects the struggles associated with this condition, as she once thrived among her peers but later required full-time assistance due to the disease's debilitating effects. SR70 not only acknowledges Kalliope's fight but also highlights the importance of understanding and supporting those affected by Battens CLN5 disease.

Contention

While the resolution is largely supportive, it underscores the broader challenge of raising awareness for rare diseases that impact children. Such conditions are often overshadowed by more common health concerns, which can lead to delayed diagnoses and limited resources for research and treatment. The resolution encourages not just recognition of Kalliope but also mobilizes community efforts to elevate the conversation around Battens CLN5 disease, potentially spurring advocacy and funding for research.