89R20687 TBO-D
By: Middleton S.R. No. 429
R E S O L U T I O N
WHEREAS, Rett Syndrome Awareness Month is being observed in
October 2025 to promote better understanding of this developmental
disorder; and
WHEREAS, Every two hours, a child is born with Rett syndrome,
a rare postnatal genetic neurological disorder that occurs almost
exclusively in females; symptoms first appear in infants and
toddlers between the ages of 6 to 18 months, followed by a period of
regression when motor skills are gradually lost over time; and
WHEREAS, Individuals with Rett syndrome require assistance
with daily tasks throughout their lives; more than half of those
diagnosed with the condition lose their ability to walk, and many
suffer from impairments such as loss of speech, seizures,
scoliosis, and irregular breathing patterns; one of the most
distinctive signs of Rett syndrome is near constant repetitive hand
movements while awake; and
WHEREAS, Biomedical research suggests that neurological
symptoms may be reversed even decades after diagnosis; scientists
discovered the gene that causes Rett syndrome in 1999, and there
have since been several breakthroughs in developing a cure; the
first FDA-approved treatment launched in 2023; and
WHEREAS, The International Rett Syndrome Foundation is one of
the world's largest private sources of funds for Rett syndrome
research; the organization works to address the full spectrum of
the disorder while advocating for policies that enhance the quality
of life for patients and their families; and
WHEREAS, Rett syndrome is a serious and life-changing
condition, and Rett Syndrome Awareness Month serves as a means of
rallying support for vital research and resources that can help
improve the outlook for those living with the disorder; now,
therefore, be it
RESOLVED, That the Senate of the 89th Texas Legislature
hereby recognize October 2025 as Rett Syndrome Awareness Month and
encourage all Texans to learn more about the condition.