II 119THCONGRESS 1 STSESSION S. 1227 To require the Administrator of the Centers for Medicare & Medicaid Services and the Commissioner of Social Security to review and simplify the processes, procedures, forms, and communications for family caregivers to assist individuals in establishing eligibility for, enrolling in, and main- taining and utilizing coverage and benefits under the Medicare, Medicaid, CHIP, and Social Security programs respectively, and for other purposes. IN THE SENATE OF THE UNITED STATES APRIL1 (legislative day, MARCH31), 2025 Mr. M ARKEY(for himself, Mrs. CAPITO, Mr. HICKENLOOPER, Mrs. HYDE- S MITH, Mr. BLUMENTHAL, Mr. TILLIS, Ms. KLOBUCHAR, Mr. SCOTTof Florida, Ms. B ALDWIN, Ms. LUMMIS, Mr. KELLY, Mrs. BRITT, Ms. H IRONO, Mr. ROUNDS, Mr. WHITEHOUSE, Mr. CASSIDY, Mr. COONS, and Mr. S CHMITT) introduced the following bill; which was read twice and re- ferred to the Committee on Finance A BILL To require the Administrator of the Centers for Medicare & Medicaid Services and the Commissioner of Social Security to review and simplify the processes, procedures, forms, and communications for family caregivers to assist individuals in establishing eligibility for, enrolling in, and maintaining and utilizing coverage and benefits under the Medicare, Medicaid, CHIP, and Social Security pro- grams respectively, and for other purposes. Be it enacted by the Senate and House of Representa-1 tives of the United States of America in Congress assembled, 2 VerDate Sep 11 2014 02:55 Apr 05, 2025 Jkt 059200 PO 00000 Frm 00001 Fmt 6652 Sfmt 6201 E:\BILLS\S1227.IS S1227 kjohnson on DSK7ZCZBW3PROD with $$_JOB 2 •S 1227 IS SECTION 1. SHORT TITLE. 1 This Act may be cited as the ‘‘Alleviating Barriers 2 for Caregivers Act’’ or the ‘‘ABC Act’’. 3 SEC. 2. REVIEW OF MEDICARE, MEDICAID, CHIP, AND SO-4 CIAL SECURITY TO SIMPLIFY PROCESSES. 5 PROCEDURES, FORMS, AND COMMUNICA-6 TIONS. 7 (a) D EFINITIONS.—In this Act: 8 (1) A DMINISTRATOR.—The term ‘‘Adminis-9 trator’’ means the Administrator of the Centers for 10 Medicare & Medicaid Services. 11 (2) CHIP.—The term ‘‘CHIP’’ means the Chil-12 dren’s Health Insurance Program established under 13 title XXI of the Social Security Act (42 U.S.C. 14 1397aa et seq.). 15 (3) C OMMISSIONER.—The term ‘‘Commis-16 sioner’’ means the Commissioner of Social Security. 17 (4) C OVERED AGENCIES .—The term ‘‘covered 18 agencies’’ means the Centers for Medicare & Med-19 icaid Services and the Social Security Administra-20 tion. 21 (5) C OVERED OFFICIALS.—The term ‘‘covered 22 officials’’ means the Administrator and Commis-23 sioner. 24 VerDate Sep 11 2014 02:55 Apr 05, 2025 Jkt 059200 PO 00000 Frm 00002 Fmt 6652 Sfmt 6201 E:\BILLS\S1227.IS S1227 kjohnson on DSK7ZCZBW3PROD with $$_JOB 3 •S 1227 IS (6) COVERED PROGRAMS .—The term ‘‘covered 1 programs’’ means Medicare, Medicaid, CHIP, and 2 the Social Security programs. 3 (7) D ISABILITY.—The term ‘‘disability’’ has the 4 meaning given such term in section 3 of the Ameri-5 cans with Disabilities Act of 1990 (42 U.S.C. 6 12102). 7 (8) F AMILY CAREGIVER.—The term ‘‘family 8 caregiver’’ has the meaning given the term in section 9 2 of the RAISE Family Caregivers Act (42 U.S.C. 10 3030s note). 11 (9) M EDICAID.—The term ‘‘Medicaid’’ means 12 the Medicaid program established under title XIX of 13 the Social Security Act (42 U.S.C. 1396 et seq.). 14 (10) M EDICARE.—The term ‘‘Medicare’’ means 15 the Medicare program established under title XVIII 16 of the Social Security Act (42 U.S.C. 1395 et seq.). 17 (11) S TATE.—The term ‘‘State’’ means any of 18 the 50 States, the District of Columbia, the Com-19 monwealth of Puerto Rico, the United States Virgin 20 Islands, Guam, American Samoa, or the Common-21 wealth of the Northern Mariana Islands. 22 (12) S OCIAL SECURITY PROGRAMS .—The term 23 ‘‘Social Security programs’’ means each of the fol-24 lowing: 25 VerDate Sep 11 2014 02:55 Apr 05, 2025 Jkt 059200 PO 00000 Frm 00003 Fmt 6652 Sfmt 6201 E:\BILLS\S1227.IS S1227 kjohnson on DSK7ZCZBW3PROD with $$_JOB 4 •S 1227 IS (A) The programs for old-age and sur-1 vivors insurance benefits and disability insur-2 ance benefits established under title II of the 3 Social Security Act (42 U.S.C. 401 et seq.). 4 (B) The program for supplemental security 5 income benefits established under title XVI of 6 such Act (42 U.S.C. 1381 et seq.). 7 (b) R EVIEW OFPROGRAMS.— 8 (1) I N GENERAL.—The Administrator and the 9 Commissioner shall jointly conduct a review of the 10 eligibility determination and application processes, 11 procedures, forms, and communications of Medicare, 12 Medicaid, CHIP, and the Social Security programs. 13 (2) G OALS OF THE REVIEW.—In conducting the 14 reviews under paragraph (1), the covered officials 15 shall seek ways to— 16 (A) simplify and streamline policies and 17 procedures for determining eligibility for, enroll-18 ing in, maintaining coverage in, and utilizing 19 the full benefits available under the covered 20 programs; 21 (B) reduce the frequency of family care-22 givers having to— 23 (i) provide the same information to 24 covered agencies more than once; 25 VerDate Sep 11 2014 02:55 Apr 05, 2025 Jkt 059200 PO 00000 Frm 00004 Fmt 6652 Sfmt 6201 E:\BILLS\S1227.IS S1227 kjohnson on DSK7ZCZBW3PROD with $$_JOB 5 •S 1227 IS (ii) complete— 1 (I) multiple documents for each 2 covered agency; or 3 (II) documents requesting the 4 same or similar information for mul-5 tiple covered agencies; or 6 (iii) provide information to the cov-7 ered agencies that— 8 (I) the covered agencies already 9 have; or 10 (II) the covered agencies can eas-11 ily receive from other Federal agen-12 cies; and 13 (C) make it easier for family caregivers to 14 work with the covered agencies and the State 15 agencies responsible for administering State 16 Medicaid and CHIP plans by— 17 (i) providing information on eligibility 18 for, enrollment in, maintaining coverage in, 19 and utilizing the full benefits available 20 under the covered programs to family care-21 givers; 22 (ii) improving communications be-23 tween family caregivers and employees of 24 covered agencies by— 25 VerDate Sep 11 2014 02:55 Apr 05, 2025 Jkt 059200 PO 00000 Frm 00005 Fmt 6652 Sfmt 6201 E:\BILLS\S1227.IS S1227 kjohnson on DSK7ZCZBW3PROD with $$_JOB 6 •S 1227 IS (I) decreasing call wait times; 1 (II) ensuring that employees of 2 covered agencies and the State agen-3 cies responsible for administering 4 State Medicaid and CHIP plans pro-5 vide timely answers to the questions 6 of family caregivers; 7 (III) improving the websites of 8 the covered programs— 9 (aa) by making it easier for 10 family caregivers to find informa-11 tion regarding benefit avail-12 ability, eligibility, and how to 13 maintain coverage; and 14 (bb) by designing such 15 websites to align with the re-16 quirements of the Americans 17 with Disabilities Act (42 U.S.C. 18 12101 et seq.) regarding web de-19 sign; 20 (IV) improving the timely access 21 to in-person appointments or meetings 22 between employees of covered agencies 23 and family caregivers; 24 VerDate Sep 11 2014 02:55 Apr 05, 2025 Jkt 059200 PO 00000 Frm 00006 Fmt 6652 Sfmt 6201 E:\BILLS\S1227.IS S1227 kjohnson on DSK7ZCZBW3PROD with $$_JOB 7 •S 1227 IS (V) providing translation or in-1 terpretation services for family care-2 givers for whom English is not their 3 primary language; and 4 (VI) providing information to 5 family caregivers in accessible for-6 mats, including formats compatible 7 with American Sign Language and 8 multiple languages; 9 (iii) ensuring that employees of cov-10 ered agencies and the State agencies re-11 sponsible for administering State Medicaid 12 and CHIP plans understand how the cov-13 ered programs can help family caregivers; 14 (iv) improving the relationship be-15 tween family caregivers and the covered 16 agencies and the State agencies responsible 17 for administering State Medicaid and 18 CHIP plans, which may include regularly 19 meeting with family caregivers, individuals 20 entitled to, receiving services from, or fil-21 ing for, 1 or more of the covered programs, 22 and other stakeholders of the covered pro-23 grams; 24 VerDate Sep 11 2014 02:55 Apr 05, 2025 Jkt 059200 PO 00000 Frm 00007 Fmt 6652 Sfmt 6201 E:\BILLS\S1227.IS S1227 kjohnson on DSK7ZCZBW3PROD with $$_JOB 8 •S 1227 IS (v) ensuring that employees of covered 1 agencies and the State agencies responsible 2 for administering State Medicaid and 3 CHIP plans who are responsible for resolv-4 ing disputes, appeals, and grievances with-5 in the covered programs receive education, 6 training, and guidance on specific issues 7 faced by family caregivers who participate 8 in the covered programs; and 9 (vi) taking other actions the covered 10 officials may identify. 11 (3) I NPUT FROM FAMILY CAREGIVERS , ORGANI-12 ZATIONS, AND STATE ENTITIES.—In conducting the 13 reviews under paragraph (1), the covered officials 14 shall seek input from— 15 (A) family caregivers, including family 16 caregivers with a disability, that have interacted 17 with the covered programs; 18 (B) State, regional, national, and Tribal 19 organizations representing or working with fam-20 ily caregivers or individuals receiving care from 21 family caregivers; and 22 (C) State Medicaid and CHIP programs. 23 (c) A CTION.—After the reviews under subsection (b) 24 have been completed, the covered officials shall take ac-25 VerDate Sep 11 2014 02:55 Apr 05, 2025 Jkt 059200 PO 00000 Frm 00008 Fmt 6652 Sfmt 6201 E:\BILLS\S1227.IS S1227 kjohnson on DSK7ZCZBW3PROD with $$_JOB 9 •S 1227 IS tions that will simplify and streamline policies and proce-1 dures that improve customer service for individuals enti-2 tled to, receiving services from, or filing for, any of the 3 covered programs, and family caregivers. 4 (d) R EPORT TOCONGRESS.— 5 (1) I N GENERAL.—No later than 2 years after 6 the date of enactment of this Act, the covered offi-7 cials shall each submit a report to the Committee on 8 Finance of the Senate, the Committee on Ways and 9 Means of the House of Representatives, and the 10 Committee on Energy and Commerce of the House 11 of Representatives that details the results of the re-12 spective reviews each covered official conducted 13 under subsection (b). 14 (2) C ONTENTS OF THE REPORT .—The reports 15 required under paragraph (1) shall contain— 16 (A) issues that the covered officials identi-17 fied in the reviews and their findings; 18 (B) the actions that the covered officials 19 are taking to address the issues in subpara-20 graph (A); 21 (C) an estimate on when the actions in 22 subparagraph (B) will be completed; 23 (D) projected annual costs to implement 24 the actions identified in subparagraph (B); and 25 VerDate Sep 11 2014 02:55 Apr 05, 2025 Jkt 059200 PO 00000 Frm 00009 Fmt 6652 Sfmt 6201 E:\BILLS\S1227.IS S1227 kjohnson on DSK7ZCZBW3PROD with $$_JOB 10 •S 1227 IS (E) any recommended change in Federal 1 law to address any issue identified in subpara-2 graph (A). 3 (3) U PDATED REPORTS.—The covered officials 4 shall each submit a report 2 years after submitting 5 the report required under paragraph (1) providing 6 an update to the contents identified in paragraph 7 (2). 8 (4) P UBLICATION OF THE REPORTS .—The cov-9 ered officials shall make the reports required under 10 paragraphs (1) and (3) publicly accessible on the 11 websites of covered agencies. 12 (e) R EDUCINGREDTAPE FORSTATEMEDICAID AND 13 CHIP P ROGRAMS.—Not later than 1 year after the date 14 of enactment of this Act, the Administrator shall issue a 15 letter to each State Medicaid and CHIP Director to— 16 (1) encourage State Medicaid agencies to con-17 duct reviews of State Medicaid programs and State 18 CHIP programs similar to the reviews conducted at 19 the Federal level under subsection (b); 20 (2) provide suggestions, informed by the results 21 of such Federal reviews, for promising practices that 22 States could take to reduce administrative burdens 23 on family caregivers in supporting individuals enti-24 tled to, receiving service from, or filing for, 1 or 25 VerDate Sep 11 2014 02:55 Apr 05, 2025 Jkt 059200 PO 00000 Frm 00010 Fmt 6652 Sfmt 6201 E:\BILLS\S1227.IS S1227 kjohnson on DSK7ZCZBW3PROD with $$_JOB 11 •S 1227 IS more of the covered programs in applying for and 1 receiving assistance under State Medicaid programs 2 and State CHIP programs; and 3 (3) identify best practices to support family 4 caregivers. 5 Æ VerDate Sep 11 2014 02:55 Apr 05, 2025 Jkt 059200 PO 00000 Frm 00011 Fmt 6652 Sfmt 6301 E:\BILLS\S1227.IS S1227 kjohnson on DSK7ZCZBW3PROD with $$_JOB