II
119THCONGRESS
1
STSESSION S. 532
To authorize the Secretary of Health and Human Services to collect registra-
tion fees from members of the Organ Procurement and Transplantation
Network, and for other purposes.
IN THE SENATE OF THE UNITED STATES
FEBRUARY12, 2025
Mr. G
RASSLEY(for himself and Mr. CASSIDY) introduced the following bill;
which was read twice and referred to the Committee on Health, Edu-
cation, Labor, and Pensions
A BILL
To authorize the Secretary of Health and Human Services
to collect registration fees from members of the Organ
Procurement and Transplantation Network, and for
other purposes.
Be it enacted by the Senate and House of Representa-1
tives of the United States of America in Congress assembled, 2
SECTION 1. SHORT TITLE. 3
This Act may be cited as the ‘‘OPTN Fee Collection 4
Authority Act’’. 5
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•S 532 IS
SEC. 2. ORGAN PROCUREMENT AND TRANSPLANTATION 1
NETWORK. 2
Section 372 of the Public Health Service Act (42 3
U.S.C. 274) is amended— 4
(1) in subsection (b)(2)— 5
(A) by moving the margins of subpara-6
graphs (M) through (O) 2 ems to the left; 7
(B) in subparagraph (A)— 8
(i) in clause (i), by striking ‘‘, and’’ 9
and inserting ‘‘; and’’; and 10
(ii) in clause (ii), by striking the 11
comma at the end and inserting a semi-12
colon; 13
(C) in subparagraph (C), by striking 14
‘‘twenty-four-hour telephone service’’ and in-15
serting ‘‘24-hour telephone or information tech-16
nology service’’; 17
(D) in each of subparagraphs (B) through 18
(M), by striking the comma at the end and in-19
serting a semicolon; 20
(E) in subparagraph (N), by striking 21
‘‘transportation, and’’ and inserting ‘‘transpor-22
tation;’’; 23
(F) in subparagraph (O), by striking the 24
period and inserting a semicolon; and 25
(G) by adding at the end the following: 26
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•S 532 IS
‘‘(P) encourage the integration of electronic 1
health records systems through application program-2
ming interfaces (or successor technologies) among 3
hospitals, organ procurement organizations, and 4
transplant centers, including the use of automated 5
electronic hospital referrals and the grant of remote, 6
electronic access to hospital electronic health records 7
of potential donors by organ procurement organiza-8
tions, in a manner that complies with the privacy 9
regulations promulgated under the Health Insurance 10
Portability and Accountability Act of 1996, at part 11
160 of title 45, Code of Federal Regulations, and 12
subparts A, C, and E of part 164 of such title (or 13
any successor regulations); and 14
‘‘(Q) consider establishing a dashboard to dis-15
play the number of transplants performed, the types 16
of transplants performed, the number and types of 17
organs that entered the Organ Procurement and 18
Transplantation Network system and failed to be 19
transplanted, and other appropriate statistics, which 20
should be updated more frequently than annually.’’; 21
and 22
(2) by adding at the end the following: 23
‘‘(d) R
EGISTRATIONFEES.— 24
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•S 532 IS
‘‘(1) IN GENERAL.—The Secretary may collect 1
registration fees from any member of the Organ 2
Procurement and Transplantation Network for each 3
transplant candidate such member places on the list 4
described in subsection (b)(2)(A)(i). Such registra-5
tion fees shall be collected and distributed only to 6
support the operation of the Organ Procurement 7
and Transplantation Network. Such registration fees 8
are authorized to remain available until expended. 9
‘‘(2) C
OLLECTION.—The Secretary may collect 10
the registration fees under paragraph (1) directly or 11
through awards made under subsection (b)(1)(A). 12
‘‘(3) D
ISTRIBUTION.—Any amounts collected 13
under this subsection shall— 14
‘‘(A) be credited to the currently applicable 15
appropriation, account, or fund of the Depart-16
ment of Health and Human Services as discre-17
tionary offsetting collections; and 18
‘‘(B) be available, only to the extent and in 19
the amounts provided in advance in appropria-20
tions Acts, to distribute such fees among 21
awardees described in subsection (b)(1)(A). 22
‘‘(4) T
RANSPARENCY.—The Secretary shall— 23
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•S 532 IS
‘‘(A) promptly post on the website of the 1
Organ Procurement and Transplantation Net-2
work— 3
‘‘(i) the amount of registration fees 4
collected under this subsection from each 5
member of the Organ Procurement and 6
Transplantation Network; and 7
‘‘(ii) a list of activities such fees are 8
used to support; and 9
‘‘(B) update the information posted pursu-10
ant to subparagraph (A), as applicable for each 11
calendar quarter for which fees are collected 12
under paragraph (1). 13
‘‘(5) GAO
REVIEW.—Not later than 2 years 14
after the date of enactment of this subsection, the 15
Comptroller General of the United States shall, to 16
the extent data are available— 17
‘‘(A) conduct a review concerning the ac-18
tivities under this subsection; and 19
‘‘(B) submit to the Committee on Health, 20
Education, Labor, and Pensions and the Com-21
mittee on Finance of the Senate and the Com-22
mittee on Energy and Commerce of the House 23
of Representatives, a report on such review, in-24
cluding related recommendations, as applicable. 25
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•S 532 IS
‘‘(6) SUNSET.—The authority to collect reg-1
istration fees under paragraph (1) shall expire on 2
the date that is 3 years after the date of enactment 3
of the OPTN Fee Collection Authority Act.’’. 4
Æ
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