1 | 1 | | HB242INTRODUCED |
---|
2 | 2 | | Page 0 |
---|
3 | 3 | | HB242 |
---|
4 | 4 | | LUZ7AWY-1 |
---|
5 | 5 | | By Representative Rigsby |
---|
6 | 6 | | RFD: Ways and Means General Fund |
---|
7 | 7 | | First Read: 11-Feb-25 |
---|
8 | 8 | | 1 |
---|
9 | 9 | | 2 |
---|
10 | 10 | | 3 |
---|
11 | 11 | | 4 |
---|
12 | 12 | | 5 LUZ7AWY-1 02/05/2025 JC (L)lg 2025-284 |
---|
13 | 13 | | Page 1 |
---|
14 | 14 | | First Read: 11-Feb-25 |
---|
15 | 15 | | SYNOPSIS: |
---|
16 | 16 | | Under existing law, the Medicaid program does |
---|
17 | 17 | | not cover rapid whole genome sequencing. |
---|
18 | 18 | | This bill would require Medicaid to pay for |
---|
19 | 19 | | rapid whole genome sequencing for hospitalized infants, |
---|
20 | 20 | | children, and younger adults who suffer from acute or |
---|
21 | 21 | | complex illnesses that have causes that elude the more |
---|
22 | 22 | | conventional means of medical detection, in order to |
---|
23 | 23 | | determine if the origin is genetic. |
---|
24 | 24 | | A BILL |
---|
25 | 25 | | TO BE ENTITLED |
---|
26 | 26 | | AN ACT |
---|
27 | 27 | | Relating to Medicaid, to require coverage of rapid |
---|
28 | 28 | | whole genome sequencing for certain individuals in the |
---|
29 | 29 | | Medicaid program. |
---|
30 | 30 | | BE IT ENACTED BY THE LEGISLATURE OF ALABAMA: |
---|
31 | 31 | | Section 1. (a) For the purposes of this section, "rapid |
---|
32 | 32 | | whole genome sequencing" is defined as an investigation of the |
---|
33 | 33 | | entire human genome, including coding and non-coding regions |
---|
34 | 34 | | and mitochondrial deoxyribonucleic acid, which yields a |
---|
35 | 35 | | preliminary positive result of a disease-causing genetic |
---|
36 | 36 | | change within five days, and a final result of the same within |
---|
37 | 37 | | 1 |
---|
38 | 38 | | 2 |
---|
39 | 39 | | 3 |
---|
40 | 40 | | 4 |
---|
41 | 41 | | 5 |
---|
42 | 42 | | 6 |
---|
43 | 43 | | 7 |
---|
44 | 44 | | 8 |
---|
45 | 45 | | 9 |
---|
46 | 46 | | 10 |
---|
47 | 47 | | 11 |
---|
48 | 48 | | 12 |
---|
49 | 49 | | 13 |
---|
50 | 50 | | 14 |
---|
51 | 51 | | 15 |
---|
52 | 52 | | 16 |
---|
53 | 53 | | 17 |
---|
54 | 54 | | 18 |
---|
55 | 55 | | 19 |
---|
56 | 56 | | 20 |
---|
57 | 57 | | 21 |
---|
58 | 58 | | 22 |
---|
59 | 59 | | 23 |
---|
60 | 60 | | 24 |
---|
61 | 61 | | 25 |
---|
62 | 62 | | 26 |
---|
63 | 63 | | 27 |
---|
64 | 64 | | 28 HB242 INTRODUCED |
---|
65 | 65 | | Page 2 |
---|
66 | 66 | | change within five days, and a final result of the same within |
---|
67 | 67 | | 14 days. The term includes patient-only whole genome |
---|
68 | 68 | | sequencing and duo and trio whole genome sequencing of the |
---|
69 | 69 | | patient and his or her biological parents. |
---|
70 | 70 | | (b) Subject to prior approval or a waiver from the |
---|
71 | 71 | | Centers for Medicare and Medicaid Services, the Alabama |
---|
72 | 72 | | Medicaid Agency shall cover rapid whole genome sequencing for |
---|
73 | 73 | | an individual covered by Medicaid who meets all of the |
---|
74 | 74 | | following criteria: |
---|
75 | 75 | | (1) Is 21 years of age or younger. |
---|
76 | 76 | | (2) Has a complex or acute illness of unknown etiology |
---|
77 | 77 | | that is not confirmed to be caused by environmental exposure, |
---|
78 | 78 | | toxic ingestion, infection that responds to therapy, or |
---|
79 | 79 | | trauma. |
---|
80 | 80 | | (3) Is a hospital inpatient in an intensive care unit, |
---|
81 | 81 | | including a neonatal intensive care unit, or a high acuity |
---|
82 | 82 | | pediatric unit. |
---|
83 | 83 | | Section 2. This act shall become effective on October |
---|
84 | 84 | | 1, 2025. |
---|
85 | 85 | | 29 |
---|
86 | 86 | | 30 |
---|
87 | 87 | | 31 |
---|
88 | 88 | | 32 |
---|
89 | 89 | | 33 |
---|
90 | 90 | | 34 |
---|
91 | 91 | | 35 |
---|
92 | 92 | | 36 |
---|
93 | 93 | | 37 |
---|
94 | 94 | | 38 |
---|
95 | 95 | | 39 |
---|
96 | 96 | | 40 |
---|
97 | 97 | | 41 |
---|
98 | 98 | | 42 |
---|
99 | 99 | | 43 |
---|
100 | 100 | | 44 |
---|
101 | 101 | | 45 |
---|
102 | 102 | | 46 |
---|