To Create The Arkansas Rare Disease Advisory Council.
Impact
The formation of this council would lead to significant changes in how the state addresses the needs of rare disease patients. The council is tasked with educating lawmakers, healthcare providers, and the public about rare diseases, and it has the authority to make policy recommendations that could influence healthcare regulations and access within Arkansas. This could pave the way for improved funding and resource allocation for rare disease research and treatment, potentially benefiting thousands of residents in Arkansas who suffer from these conditions.
Summary
House Bill 1532 aims to establish the Arkansas Rare Disease Advisory Council, a body designed to improve the consideration and treatment of individuals living with rare diseases within the state. It recognizes the challenges faced by these individuals, including limited access to appropriate healthcare, delays in diagnosis, and a lack of FDA-approved treatments. The bill emphasizes the need for an organized effort to gather expertise, insights, and experience from a diverse group of stakeholders with the aim of enhancing public health policies for rare disease management.
Contention
While the bill has garnered support for tackling a critical and often overlooked health issue, there might be points of contention regarding funding and resource prioritization within the state. Opponents may raise concerns about the effectiveness of an advisory council without guaranteed financial backing or legislative weight to enforce changes in healthcare provisions. Additionally, the inclusion of diverse stakeholders could lead to differing views on the best approaches to addressing the needs of patients, which might complicate consensus-building within the council.
To Create The Arkansas Employment First Act; To Establish The Arkansas Office Of Employment First; To Establish The Employment First Advisory Committee; And To Establish The Employment First Business Partner Program.
To Designate March 2023 As Rare Kidney Disease Awareness Month In Arkansas To Increase Public Awareness And Understanding Of The Genetic Causes Of Rare Kidney Disease.
To Establish The Arkansas State Apprenticeship Agency Act; To Establish The Arkansas State Apprenticeship Agency; And To Establish The Arkansas Apprenticeship Council.
To Terminate The Arkansas Health And Opportunity For Me Program; And To Transfer All Beneficiaries In The Arkansas Home And Opportunity For Me Program To The Traditional Arkansas Medicaid Program.
To Create The Protect Arkansas Act; To Amend Arkansas Law Concerning Sentencing And Parole; To Amend Arkansas Law Concerning Certain Criminal Offenses; And To Create The Legislative Recidivism Reduction Task Force.
Concerning Cybersecurity Insurance; To Establish The Arkansas Self-funded Cyber Response Program And The Arkansas Cyber Response Board; And To Create The Arkansas Self-funded Cyber Response Program Trust Fund.