AR
Arkansas House Bill HB1532

Arkansas 2025 Regular Session

Arkansas House Bill HB1532

Introduced
2/19/25  

Caption

To Create The Arkansas Rare Disease Advisory Council.

Impact

The formation of this council would lead to significant changes in how the state addresses the needs of rare disease patients. The council is tasked with educating lawmakers, healthcare providers, and the public about rare diseases, and it has the authority to make policy recommendations that could influence healthcare regulations and access within Arkansas. This could pave the way for improved funding and resource allocation for rare disease research and treatment, potentially benefiting thousands of residents in Arkansas who suffer from these conditions.

Summary

House Bill 1532 aims to establish the Arkansas Rare Disease Advisory Council, a body designed to improve the consideration and treatment of individuals living with rare diseases within the state. It recognizes the challenges faced by these individuals, including limited access to appropriate healthcare, delays in diagnosis, and a lack of FDA-approved treatments. The bill emphasizes the need for an organized effort to gather expertise, insights, and experience from a diverse group of stakeholders with the aim of enhancing public health policies for rare disease management.

Contention

While the bill has garnered support for tackling a critical and often overlooked health issue, there might be points of contention regarding funding and resource prioritization within the state. Opponents may raise concerns about the effectiveness of an advisory council without guaranteed financial backing or legislative weight to enforce changes in healthcare provisions. Additionally, the inclusion of diverse stakeholders could lead to differing views on the best approaches to addressing the needs of patients, which might complicate consensus-building within the council.

Companion Bills

No companion bills found.

Previously Filed As

AR HB1357

To Create The Rare Disease Advisory Council.

AR SB449

To Create The Arkansas Broadband Advisory Council; And To Declare An Emergency.

AR HB1166

To Add An Additional Member To The Alzheimer's Disease And Dementia Advisory Council.

AR SB443

To Create The Arkansas Employment First Act; To Establish The Arkansas Office Of Employment First; To Establish The Employment First Advisory Committee; And To Establish The Employment First Business Partner Program.

AR SCR7

To Designate March 2023 As Rare Kidney Disease Awareness Month In Arkansas To Increase Public Awareness And Understanding Of The Genetic Causes Of Rare Kidney Disease.

AR SB425

To Establish The Arkansas State Apprenticeship Agency Act; To Establish The Arkansas State Apprenticeship Agency; And To Establish The Arkansas Apprenticeship Council.

AR SB278

To Terminate The Arkansas Health And Opportunity For Me Program; And To Transfer All Beneficiaries In The Arkansas Home And Opportunity For Me Program To The Traditional Arkansas Medicaid Program.

AR SB495

To Create The Protect Arkansas Act; To Amend Arkansas Law Concerning Sentencing And Parole; To Amend Arkansas Law Concerning Certain Criminal Offenses; And To Create The Legislative Recidivism Reduction Task Force.

AR HB1359

To Abolish Certain Boards; To Create The Arkansas State Board Of Mental Health Professionals; And To Declare An Emergency.

AR HB1780

Concerning Cybersecurity Insurance; To Establish The Arkansas Self-funded Cyber Response Program And The Arkansas Cyber Response Board; And To Create The Arkansas Self-funded Cyber Response Program Trust Fund.

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CA AB696

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TX HB4423

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