The resolution emphasizes the importance of awareness and research surrounding Chiari malformation. It encourages participation in the Conquer Chiari Walk Across America, a nationwide event aimed at raising funds for research and support for those affected by the condition. Such grassroots initiatives are vital not only for supporting individual patients but also for promoting scientific advancements in understanding and treating Chiari malformations. By declaring a month dedicated to this awareness, the resolution aims to foster community engagement and increase visibility of the disorder among the public and policymakers.
Summary
House Resolution No. 121 (AR121) aims to recognize September 2018 as Chiari Malformation Awareness Month in California. This recognition is intended to bring attention to Chiari malformation (CM), a neurological disorder affecting over 300,000 individuals in the United States. The disorder, characterized by defects in the cerebellum which control balance, can create significant pressure on the cerebellum and brainstem, potentially obstructing the normal flow of cerebral spinal fluid. Understanding and awareness of CM is deemed critically important as symptoms often manifest during adolescence or early adulthood, leading to various debilitating effects including severe pain, vertigo, and swallowing difficulties.
Contention
While the resolution is largely supportive and aims to spread awareness, it highlights ongoing discussions about the need for increased funding and research related to Chiari malformations. The resolution points out that more research is necessary to identify causes and develop better treatment options. This shines a light on the broader challenges faced by those with neurological disorders, indicating a need for more attention and resources from the healthcare system and legislative bodies. By encouraging such awareness activities, AR121 seeks not only to acknowledge CM but also to advocate for improvements in patient care and support.