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| 1 | + | CALIFORNIA LEGISLATURE 20172018 REGULAR SESSION Senate Bill No. 643Introduced by Senator PanFebruary 17, 2017 An act to amend Section 125130 of the Health and Safety Code, relating to public health. LEGISLATIVE COUNSEL'S DIGESTSB 643, as introduced, Pan. The Holden-Moscone-Garamendi Genetically Handicapped Persons Program: Duchenne muscular dystrophy.Existing law, the Holden-Moscone-Garamendi Genetically Handicapped Persons Program, requires the Director of the State Department of Health Care Services to establish and administer a program for the medical care of persons with genetically handicapping conditions, including, but not limited to, cystic fibrosis, hemophilia, sickle cell disease, and Huntingtons disease. The program also provides access to social support services that may help ameliorate the physical, psychological, and economic problems attendant to genetically handicapping conditions, in order that the genetically handicapped person may function at an optimal level commensurate with the degree of impairment.This bill would add Duchenne muscular dystrophy to the list of medical conditions eligible for the program.Digest Key Vote: MAJORITY Appropriation: NO Fiscal Committee: YES Local Program: NO Bill TextThe people of the State of California do enact as follows:SECTION 1. Section 125130 of the Health and Safety Code is amended to read:125130. (a) The Director of Health Care Services shall establish and administer a program for the medical care of persons with genetically handicapping conditions, including cystic fibrosis, hemophilia, sickle cell disease, Huntingtons disease, Friedreichs Ataxia, Josephs disease, Von Hippel-Landau Hippel-Lindau syndrome, Duchenne muscular dystrophy, and the following hereditary metabolic disorders: phenylketonuria, homocystinuria, branched chain amino acidurias, disorders of propionate and methylmalonate metabolism, urea cycle disorders, hereditary orotic aciduria, Wilsons Disease, galactosemia, disorders of lactate and pyruvate metabolism, tyrosinemia, hyperornithinemia, and other genetic organic acidemias that require specialized treatment or service available from only a limited number of program-approved sources.(b) The program shall also provide access to social support services, services that may help ameliorate the physical, psychological, and economic problems attendant to genetically handicapping conditions, in order that the genetically handicapped person may function at an optimal level commensurate with the degree of impairment.(c) The medical and social support services may be obtained through physicians and surgeons surgeons, Genetically Handicapped Persons Program specialized centers, and other providers that qualify pursuant to the regulations of the department to provide the services. Medical care, as used in this section, is limited to noncustodial medical and support services.(d) The director shall adopt regulations that are necessary for the implementation of this article. | |
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| 3 | + | CALIFORNIA LEGISLATURE 20172018 REGULAR SESSION Senate Bill No. 643Introduced by Senator PanFebruary 17, 2017 An act to amend Section 125130 of the Health and Safety Code, relating to public health. LEGISLATIVE COUNSEL'S DIGESTSB 643, as introduced, Pan. The Holden-Moscone-Garamendi Genetically Handicapped Persons Program: Duchenne muscular dystrophy.Existing law, the Holden-Moscone-Garamendi Genetically Handicapped Persons Program, requires the Director of the State Department of Health Care Services to establish and administer a program for the medical care of persons with genetically handicapping conditions, including, but not limited to, cystic fibrosis, hemophilia, sickle cell disease, and Huntingtons disease. The program also provides access to social support services that may help ameliorate the physical, psychological, and economic problems attendant to genetically handicapping conditions, in order that the genetically handicapped person may function at an optimal level commensurate with the degree of impairment.This bill would add Duchenne muscular dystrophy to the list of medical conditions eligible for the program.Digest Key Vote: MAJORITY Appropriation: NO Fiscal Committee: YES Local Program: NO | |
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| 5 | - | Enrolled September 13, 2017 Passed IN Senate May 31, 2017 Passed IN Assembly September 11, 2017 | |
| 6 | 5 | ||
| 7 | - | Enrolled September 13, 2017 | |
| 8 | - | Passed IN Senate May 31, 2017 | |
| 9 | - | Passed IN Assembly September 11, 2017 | |
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| 7 | + | ||
| 10 | 8 | ||
| 11 | 9 | CALIFORNIA LEGISLATURE 20172018 REGULAR SESSION | |
| 12 | 10 | ||
| 13 | 11 | Senate Bill No. 643 | |
| 14 | 12 | ||
| 15 | - | Introduced by Senator | |
| 13 | + | Introduced by Senator PanFebruary 17, 2017 | |
| 16 | 14 | ||
| 17 | - | Introduced by Senator Pan | |
| 15 | + | Introduced by Senator Pan | |
| 18 | 16 | February 17, 2017 | |
| 19 | 17 | ||
| 20 | 18 | An act to amend Section 125130 of the Health and Safety Code, relating to public health. | |
| 21 | 19 | ||
| 22 | 20 | LEGISLATIVE COUNSEL'S DIGEST | |
| 23 | 21 | ||
| 24 | 22 | ## LEGISLATIVE COUNSEL'S DIGEST | |
| 25 | 23 | ||
| 26 | - | SB 643, Pan. The Holden-Moscone-Garamendi Genetically Handicapped Persons Program: Duchenne muscular dystrophy. | |
| 24 | + | SB 643, as introduced, Pan. The Holden-Moscone-Garamendi Genetically Handicapped Persons Program: Duchenne muscular dystrophy. | |
| 27 | 25 | ||
| 28 | - | Existing law, the Holden-Moscone-Garamendi Genetically Handicapped Persons Program, requires the Director of Health Care Services to establish and administer a program for the medical care of persons with genetically handicapping conditions, including, but not limited to, cystic fibrosis, hemophilia, sickle cell disease, and Huntingtons disease. The program also provides access to social support services that may help ameliorate the physical, psychological, and economic problems attendant to genetically handicapping conditions, in order that the genetically handicapped person may function at an optimal level commensurate with the degree of impairment.This bill would add Duchenne muscular dystrophy to the list of medical conditions eligible for the program. | |
| 26 | + | Existing law, the Holden-Moscone-Garamendi Genetically Handicapped Persons Program, requires the Director of the State Department of Health Care Services to establish and administer a program for the medical care of persons with genetically handicapping conditions, including, but not limited to, cystic fibrosis, hemophilia, sickle cell disease, and Huntingtons disease. The program also provides access to social support services that may help ameliorate the physical, psychological, and economic problems attendant to genetically handicapping conditions, in order that the genetically handicapped person may function at an optimal level commensurate with the degree of impairment.This bill would add Duchenne muscular dystrophy to the list of medical conditions eligible for the program. | |
| 29 | 27 | ||
| 30 | - | Existing law, the Holden-Moscone-Garamendi Genetically Handicapped Persons Program, requires the Director of Health Care Services to establish and administer a program for the medical care of persons with genetically handicapping conditions, including, but not limited to, cystic fibrosis, hemophilia, sickle cell disease, and Huntingtons disease. The program also provides access to social support services that may help ameliorate the physical, psychological, and economic problems attendant to genetically handicapping conditions, in order that the genetically handicapped person may function at an optimal level commensurate with the degree of impairment. | |
| 28 | + | Existing law, the Holden-Moscone-Garamendi Genetically Handicapped Persons Program, requires the Director of the State Department of Health Care Services to establish and administer a program for the medical care of persons with genetically handicapping conditions, including, but not limited to, cystic fibrosis, hemophilia, sickle cell disease, and Huntingtons disease. The program also provides access to social support services that may help ameliorate the physical, psychological, and economic problems attendant to genetically handicapping conditions, in order that the genetically handicapped person may function at an optimal level commensurate with the degree of impairment. | |
| 31 | 29 | ||
| 32 | 30 | This bill would add Duchenne muscular dystrophy to the list of medical conditions eligible for the program. | |
| 33 | 31 | ||
| 34 | 32 | ## Digest Key | |
| 35 | 33 | ||
| 36 | 34 | ## Bill Text | |
| 37 | 35 | ||
| 38 | - | The people of the State of California do enact as follows:SECTION 1. Section 125130 of the Health and Safety Code is amended to read:125130. (a) The Director of Health Care Services shall establish and administer a program for the medical care of persons with genetically handicapping conditions, including cystic fibrosis, hemophilia, sickle cell disease, Huntingtons disease, Friedreichs Ataxia, Josephs disease, Von Hippel-Lindau syndrome, Duchenne muscular dystrophy, and the following hereditary metabolic disorders: phenylketonuria, homocystinuria, branched chain amino acidurias, disorders of propionate and methylmalonate metabolism, urea cycle disorders, hereditary orotic aciduria, Wilsons Disease, galactosemia, disorders of lactate and pyruvate metabolism, tyrosinemia, hyperornithinemia, and other genetic organic acidemias that require specialized treatment or service available from only a limited number of program-approved sources.(b) The program shall also provide access to social support services that may help ameliorate the physical, psychological, and economic problems attendant to genetically handicapping conditions, in order that the genetically handicapped person may function at an optimal level commensurate with the degree of impairment.(c) The medical and social support services may be obtained through physicians and surgeons, Genetically Handicapped Persons Program specialized centers, and other providers that qualify pursuant to the regulations of the department to provide the services. Medical care, as used in this section, is limited to noncustodial medical and support services.(d) The director shall adopt regulations that are necessary for the implementation of this article. | |
| 36 | + | The people of the State of California do enact as follows:SECTION 1. Section 125130 of the Health and Safety Code is amended to read:125130. (a) The Director of Health Care Services shall establish and administer a program for the medical care of persons with genetically handicapping conditions, including cystic fibrosis, hemophilia, sickle cell disease, Huntingtons disease, Friedreichs Ataxia, Josephs disease, Von Hippel-Landau Hippel-Lindau syndrome, Duchenne muscular dystrophy, and the following hereditary metabolic disorders: phenylketonuria, homocystinuria, branched chain amino acidurias, disorders of propionate and methylmalonate metabolism, urea cycle disorders, hereditary orotic aciduria, Wilsons Disease, galactosemia, disorders of lactate and pyruvate metabolism, tyrosinemia, hyperornithinemia, and other genetic organic acidemias that require specialized treatment or service available from only a limited number of program-approved sources.(b) The program shall also provide access to social support services, services that may help ameliorate the physical, psychological, and economic problems attendant to genetically handicapping conditions, in order that the genetically handicapped person may function at an optimal level commensurate with the degree of impairment.(c) The medical and social support services may be obtained through physicians and surgeons surgeons, Genetically Handicapped Persons Program specialized centers, and other providers that qualify pursuant to the regulations of the department to provide the services. Medical care, as used in this section, is limited to noncustodial medical and support services.(d) The director shall adopt regulations that are necessary for the implementation of this article. | |
| 39 | 37 | ||
| 40 | 38 | The people of the State of California do enact as follows: | |
| 41 | 39 | ||
| 42 | 40 | ## The people of the State of California do enact as follows: | |
| 43 | 41 | ||
| 44 | - | SECTION 1. Section 125130 of the Health and Safety Code is amended to read:125130. (a) The Director of Health Care Services shall establish and administer a program for the medical care of persons with genetically handicapping conditions, including cystic fibrosis, hemophilia, sickle cell disease, Huntingtons disease, Friedreichs Ataxia, Josephs disease, Von Hippel-Lindau syndrome, Duchenne muscular dystrophy, and the following hereditary metabolic disorders: phenylketonuria, homocystinuria, branched chain amino acidurias, disorders of propionate and methylmalonate metabolism, urea cycle disorders, hereditary orotic aciduria, Wilsons Disease, galactosemia, disorders of lactate and pyruvate metabolism, tyrosinemia, hyperornithinemia, and other genetic organic acidemias that require specialized treatment or service available from only a limited number of program-approved sources.(b) The program shall also provide access to social support services that may help ameliorate the physical, psychological, and economic problems attendant to genetically handicapping conditions, in order that the genetically handicapped person may function at an optimal level commensurate with the degree of impairment.(c) The medical and social support services may be obtained through physicians and surgeons, Genetically Handicapped Persons Program specialized centers, and other providers that qualify pursuant to the regulations of the department to provide the services. Medical care, as used in this section, is limited to noncustodial medical and support services.(d) The director shall adopt regulations that are necessary for the implementation of this article. | |
| 42 | + | SECTION 1. Section 125130 of the Health and Safety Code is amended to read:125130. (a) The Director of Health Care Services shall establish and administer a program for the medical care of persons with genetically handicapping conditions, including cystic fibrosis, hemophilia, sickle cell disease, Huntingtons disease, Friedreichs Ataxia, Josephs disease, Von Hippel-Landau Hippel-Lindau syndrome, Duchenne muscular dystrophy, and the following hereditary metabolic disorders: phenylketonuria, homocystinuria, branched chain amino acidurias, disorders of propionate and methylmalonate metabolism, urea cycle disorders, hereditary orotic aciduria, Wilsons Disease, galactosemia, disorders of lactate and pyruvate metabolism, tyrosinemia, hyperornithinemia, and other genetic organic acidemias that require specialized treatment or service available from only a limited number of program-approved sources.(b) The program shall also provide access to social support services, services that may help ameliorate the physical, psychological, and economic problems attendant to genetically handicapping conditions, in order that the genetically handicapped person may function at an optimal level commensurate with the degree of impairment.(c) The medical and social support services may be obtained through physicians and surgeons surgeons, Genetically Handicapped Persons Program specialized centers, and other providers that qualify pursuant to the regulations of the department to provide the services. Medical care, as used in this section, is limited to noncustodial medical and support services.(d) The director shall adopt regulations that are necessary for the implementation of this article. | |
| 45 | 43 | ||
| 46 | 44 | SECTION 1. Section 125130 of the Health and Safety Code is amended to read: | |
| 47 | 45 | ||
| 48 | 46 | ### SECTION 1. | |
| 49 | 47 | ||
| 50 | - | 125130. (a) The Director of Health Care Services shall establish and administer a program for the medical care of persons with genetically handicapping conditions, including cystic fibrosis, hemophilia, sickle cell disease, Huntingtons disease, Friedreichs Ataxia, Josephs disease, Von Hippel-Lindau syndrome, Duchenne muscular dystrophy, and the following hereditary metabolic disorders: phenylketonuria, homocystinuria, branched chain amino acidurias, disorders of propionate and methylmalonate metabolism, urea cycle disorders, hereditary orotic aciduria, Wilsons Disease, galactosemia, disorders of lactate and pyruvate metabolism, tyrosinemia, hyperornithinemia, and other genetic organic acidemias that require specialized treatment or service available from only a limited number of program-approved sources.(b) The program shall also provide access to social support services that may help ameliorate the physical, psychological, and economic problems attendant to genetically handicapping conditions, in order that the genetically handicapped person may function at an optimal level commensurate with the degree of impairment.(c) The medical and social support services may be obtained through physicians and surgeons, Genetically Handicapped Persons Program specialized centers, and other providers that qualify pursuant to the regulations of the department to provide the services. Medical care, as used in this section, is limited to noncustodial medical and support services.(d) The director shall adopt regulations that are necessary for the implementation of this article. | |
| 48 | + | 125130. (a) The Director of Health Care Services shall establish and administer a program for the medical care of persons with genetically handicapping conditions, including cystic fibrosis, hemophilia, sickle cell disease, Huntingtons disease, Friedreichs Ataxia, Josephs disease, Von Hippel-Landau Hippel-Lindau syndrome, Duchenne muscular dystrophy, and the following hereditary metabolic disorders: phenylketonuria, homocystinuria, branched chain amino acidurias, disorders of propionate and methylmalonate metabolism, urea cycle disorders, hereditary orotic aciduria, Wilsons Disease, galactosemia, disorders of lactate and pyruvate metabolism, tyrosinemia, hyperornithinemia, and other genetic organic acidemias that require specialized treatment or service available from only a limited number of program-approved sources.(b) The program shall also provide access to social support services, services that may help ameliorate the physical, psychological, and economic problems attendant to genetically handicapping conditions, in order that the genetically handicapped person may function at an optimal level commensurate with the degree of impairment.(c) The medical and social support services may be obtained through physicians and surgeons surgeons, Genetically Handicapped Persons Program specialized centers, and other providers that qualify pursuant to the regulations of the department to provide the services. Medical care, as used in this section, is limited to noncustodial medical and support services.(d) The director shall adopt regulations that are necessary for the implementation of this article. | |
| 51 | 49 | ||
| 52 | - | 125130. (a) The Director of Health Care Services shall establish and administer a program for the medical care of persons with genetically handicapping conditions, including cystic fibrosis, hemophilia, sickle cell disease, Huntingtons disease, Friedreichs Ataxia, Josephs disease, Von Hippel-Lindau syndrome, Duchenne muscular dystrophy, and the following hereditary metabolic disorders: phenylketonuria, homocystinuria, branched chain amino acidurias, disorders of propionate and methylmalonate metabolism, urea cycle disorders, hereditary orotic aciduria, Wilsons Disease, galactosemia, disorders of lactate and pyruvate metabolism, tyrosinemia, hyperornithinemia, and other genetic organic acidemias that require specialized treatment or service available from only a limited number of program-approved sources.(b) The program shall also provide access to social support services that may help ameliorate the physical, psychological, and economic problems attendant to genetically handicapping conditions, in order that the genetically handicapped person may function at an optimal level commensurate with the degree of impairment.(c) The medical and social support services may be obtained through physicians and surgeons, Genetically Handicapped Persons Program specialized centers, and other providers that qualify pursuant to the regulations of the department to provide the services. Medical care, as used in this section, is limited to noncustodial medical and support services.(d) The director shall adopt regulations that are necessary for the implementation of this article. | |
| 50 | + | 125130. (a) The Director of Health Care Services shall establish and administer a program for the medical care of persons with genetically handicapping conditions, including cystic fibrosis, hemophilia, sickle cell disease, Huntingtons disease, Friedreichs Ataxia, Josephs disease, Von Hippel-Landau Hippel-Lindau syndrome, Duchenne muscular dystrophy, and the following hereditary metabolic disorders: phenylketonuria, homocystinuria, branched chain amino acidurias, disorders of propionate and methylmalonate metabolism, urea cycle disorders, hereditary orotic aciduria, Wilsons Disease, galactosemia, disorders of lactate and pyruvate metabolism, tyrosinemia, hyperornithinemia, and other genetic organic acidemias that require specialized treatment or service available from only a limited number of program-approved sources.(b) The program shall also provide access to social support services, services that may help ameliorate the physical, psychological, and economic problems attendant to genetically handicapping conditions, in order that the genetically handicapped person may function at an optimal level commensurate with the degree of impairment.(c) The medical and social support services may be obtained through physicians and surgeons surgeons, Genetically Handicapped Persons Program specialized centers, and other providers that qualify pursuant to the regulations of the department to provide the services. Medical care, as used in this section, is limited to noncustodial medical and support services.(d) The director shall adopt regulations that are necessary for the implementation of this article. | |
| 53 | 51 | ||
| 54 | - | 125130. (a) The Director of Health Care Services shall establish and administer a program for the medical care of persons with genetically handicapping conditions, including cystic fibrosis, hemophilia, sickle cell disease, Huntingtons disease, Friedreichs Ataxia, Josephs disease, Von Hippel-Lindau syndrome, Duchenne muscular dystrophy, and the following hereditary metabolic disorders: phenylketonuria, homocystinuria, branched chain amino acidurias, disorders of propionate and methylmalonate metabolism, urea cycle disorders, hereditary orotic aciduria, Wilsons Disease, galactosemia, disorders of lactate and pyruvate metabolism, tyrosinemia, hyperornithinemia, and other genetic organic acidemias that require specialized treatment or service available from only a limited number of program-approved sources.(b) The program shall also provide access to social support services that may help ameliorate the physical, psychological, and economic problems attendant to genetically handicapping conditions, in order that the genetically handicapped person may function at an optimal level commensurate with the degree of impairment.(c) The medical and social support services may be obtained through physicians and surgeons, Genetically Handicapped Persons Program specialized centers, and other providers that qualify pursuant to the regulations of the department to provide the services. Medical care, as used in this section, is limited to noncustodial medical and support services.(d) The director shall adopt regulations that are necessary for the implementation of this article. | |
| 52 | + | 125130. (a) The Director of Health Care Services shall establish and administer a program for the medical care of persons with genetically handicapping conditions, including cystic fibrosis, hemophilia, sickle cell disease, Huntingtons disease, Friedreichs Ataxia, Josephs disease, Von Hippel-Landau Hippel-Lindau syndrome, Duchenne muscular dystrophy, and the following hereditary metabolic disorders: phenylketonuria, homocystinuria, branched chain amino acidurias, disorders of propionate and methylmalonate metabolism, urea cycle disorders, hereditary orotic aciduria, Wilsons Disease, galactosemia, disorders of lactate and pyruvate metabolism, tyrosinemia, hyperornithinemia, and other genetic organic acidemias that require specialized treatment or service available from only a limited number of program-approved sources.(b) The program shall also provide access to social support services, services that may help ameliorate the physical, psychological, and economic problems attendant to genetically handicapping conditions, in order that the genetically handicapped person may function at an optimal level commensurate with the degree of impairment.(c) The medical and social support services may be obtained through physicians and surgeons surgeons, Genetically Handicapped Persons Program specialized centers, and other providers that qualify pursuant to the regulations of the department to provide the services. Medical care, as used in this section, is limited to noncustodial medical and support services.(d) The director shall adopt regulations that are necessary for the implementation of this article. | |
| 55 | 53 | ||
| 56 | 54 | ||
| 57 | 55 | ||
| 58 | - | 125130. (a) The Director of Health Care Services shall establish and administer a program for the medical care of persons with genetically handicapping conditions, including cystic fibrosis, hemophilia, sickle cell disease, Huntingtons disease, Friedreichs Ataxia, Josephs disease, Von Hippel-Lindau syndrome, Duchenne muscular dystrophy, and the following hereditary metabolic disorders: phenylketonuria, homocystinuria, branched chain amino acidurias, disorders of propionate and methylmalonate metabolism, urea cycle disorders, hereditary orotic aciduria, Wilsons Disease, galactosemia, disorders of lactate and pyruvate metabolism, tyrosinemia, hyperornithinemia, and other genetic organic acidemias that require specialized treatment or service available from only a limited number of program-approved sources. | |
| 56 | + | 125130. (a) The Director of Health Care Services shall establish and administer a program for the medical care of persons with genetically handicapping conditions, including cystic fibrosis, hemophilia, sickle cell disease, Huntingtons disease, Friedreichs Ataxia, Josephs disease, Von Hippel-Landau Hippel-Lindau syndrome, Duchenne muscular dystrophy, and the following hereditary metabolic disorders: phenylketonuria, homocystinuria, branched chain amino acidurias, disorders of propionate and methylmalonate metabolism, urea cycle disorders, hereditary orotic aciduria, Wilsons Disease, galactosemia, disorders of lactate and pyruvate metabolism, tyrosinemia, hyperornithinemia, and other genetic organic acidemias that require specialized treatment or service available from only a limited number of program-approved sources. | |
| 59 | 57 | ||
| 60 | - | (b) The program shall also provide access to social support services that may help ameliorate the physical, psychological, and economic problems attendant to genetically handicapping conditions, in order that the genetically handicapped person may function at an optimal level commensurate with the degree of impairment. | |
| 58 | + | (b) The program shall also provide access to social support services, services that may help ameliorate the physical, psychological, and economic problems attendant to genetically handicapping conditions, in order that the genetically handicapped person may function at an optimal level commensurate with the degree of impairment. | |
| 61 | 59 | ||
| 62 | - | (c) The medical and social support services may be obtained through physicians and surgeons, Genetically Handicapped Persons Program specialized centers, and other providers that qualify pursuant to the regulations of the department to provide the services. Medical care, as used in this section, is limited to noncustodial medical and support services. | |
| 60 | + | (c) The medical and social support services may be obtained through physicians and surgeons surgeons, Genetically Handicapped Persons Program specialized centers, and other providers that qualify pursuant to the regulations of the department to provide the services. Medical care, as used in this section, is limited to noncustodial medical and support services. | |
| 63 | 61 | ||
| 64 | 62 | (d) The director shall adopt regulations that are necessary for the implementation of this article. |