California 2017-2018 Regular Session

California Senate Bill SCR73 Compare Versions

Only one version of the bill is available at this time.

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1	1	CALIFORNIA LEGISLATURE 20172018 REGULAR SESSION Senate Concurrent Resolution No. 73Introduced by Senator Nielsen(Coauthors: Senators Berryhill, Dodd, Fuller, Glazer, and Wieckowski)(Coauthors: Assembly Members Baker, Gallagher, and Salas)July 20, 2017 Relative to Krabbe Disease Awareness Month. LEGISLATIVE COUNSEL'S DIGESTSCR 73, as introduced, Nielsen. Krabbe Disease Awareness Month.This measure would proclaim the month of September 2017 as Krabbe Disease Awareness Month in the State of California.Digest Key Fiscal Committee: NO Bill TextWHEREAS, Globoid cell leukodystrophy, or Krabbe disease, is caused by a deficiency in an enzyme called galactosylceramidase; and WHEREAS, The enzyme deficiency impairs the growth and maintenance of myelin resulting in central nervous system disruptions; and WHEREAS, The disease affects muscle tone and movement and may cause vision and hearing loss, among other devastating effects; and WHEREAS, In most cases, Krabbe disease develops in babies before six months of age, although it can occur in older children and in adults; and WHEREAS, The symptoms of Krabbe disease include feeding difficulties, unexplained crying, loss of head control, fevers, vomiting, extreme irritability, changes in muscle tone, limb and muscle stiffness, poor coordination of movements, seizures, progressive loss of hearing and sight, spasticity, and loss of developmental milestones; andWHEREAS, Most children who develop Krabbe disease in infancy die before they reach two years of age, dying most often from respiratory failure or complications of immobility and markedly decreased muscle tone; and WHEREAS, There is no cure for Krabbe disease and treatment mainly involves easing symptoms; and WHEREAS, Krabbe disease affects about one in every 100,000 people in the United States; now, therefore, be it Resolved by the Senate of the State of California, the Assembly thereof concurring, That the Legislature hereby proclaims the month of September 2017 as Krabbe Disease Awareness Month; and be it furtherResolved, That the Secretary of the Senate transmit copies of this resolution to the author for appropriate distribution.
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3	3	CALIFORNIA LEGISLATURE 20172018 REGULAR SESSION Senate Concurrent Resolution No. 73Introduced by Senator Nielsen(Coauthors: Senators Berryhill, Dodd, Fuller, Glazer, and Wieckowski)(Coauthors: Assembly Members Baker, Gallagher, and Salas)July 20, 2017 Relative to Krabbe Disease Awareness Month. LEGISLATIVE COUNSEL'S DIGESTSCR 73, as introduced, Nielsen. Krabbe Disease Awareness Month.This measure would proclaim the month of September 2017 as Krabbe Disease Awareness Month in the State of California.Digest Key Fiscal Committee: NO
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9	9	CALIFORNIA LEGISLATURE 20172018 REGULAR SESSION
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11	11	Senate Concurrent Resolution No. 73
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13	13	Introduced by Senator Nielsen(Coauthors: Senators Berryhill, Dodd, Fuller, Glazer, and Wieckowski)(Coauthors: Assembly Members Baker, Gallagher, and Salas)July 20, 2017
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15	15	Introduced by Senator Nielsen(Coauthors: Senators Berryhill, Dodd, Fuller, Glazer, and Wieckowski)(Coauthors: Assembly Members Baker, Gallagher, and Salas)
16	16	July 20, 2017
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18	18	Relative to Krabbe Disease Awareness Month.
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20	20	LEGISLATIVE COUNSEL'S DIGEST
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22	22	## LEGISLATIVE COUNSEL'S DIGEST
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24	24	SCR 73, as introduced, Nielsen. Krabbe Disease Awareness Month.
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26	26	This measure would proclaim the month of September 2017 as Krabbe Disease Awareness Month in the State of California.
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28	28	This measure would proclaim the month of September 2017 as Krabbe Disease Awareness Month in the State of California.
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30	30	## Digest Key
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32	32	## Bill Text
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34	34	WHEREAS, Globoid cell leukodystrophy, or Krabbe disease, is caused by a deficiency in an enzyme called galactosylceramidase; and
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36	36	WHEREAS, The enzyme deficiency impairs the growth and maintenance of myelin resulting in central nervous system disruptions; and
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38	38	WHEREAS, The disease affects muscle tone and movement and may cause vision and hearing loss, among other devastating effects; and
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40	40	WHEREAS, In most cases, Krabbe disease develops in babies before six months of age, although it can occur in older children and in adults; and
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42	42	WHEREAS, The symptoms of Krabbe disease include feeding difficulties, unexplained crying, loss of head control, fevers, vomiting, extreme irritability, changes in muscle tone, limb and muscle stiffness, poor coordination of movements, seizures, progressive loss of hearing and sight, spasticity, and loss of developmental milestones; and
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44	44	WHEREAS, Most children who develop Krabbe disease in infancy die before they reach two years of age, dying most often from respiratory failure or complications of immobility and markedly decreased muscle tone; and
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46	46	WHEREAS, There is no cure for Krabbe disease and treatment mainly involves easing symptoms; and
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48	48	WHEREAS, Krabbe disease affects about one in every 100,000 people in the United States; now, therefore, be it
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50	50	Resolved by the Senate of the State of California, the Assembly thereof concurring, That the Legislature hereby proclaims the month of September 2017 as Krabbe Disease Awareness Month; and be it further
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52	52	Resolved, That the Secretary of the Senate transmit copies of this resolution to the author for appropriate distribution.